Re: Re: feeling old

[Guest guest]

Babs, About the Prednisone causing

misery...Last summer and through the fall and winter my husband had a

horrid cluster of cluster headaches.

These monsterous headaches ( migraine in pain but no known cause) came

2-4 times daily!!He uses o2 to knock the pain back instead

of Imitrex which can mess up hearts really fast and Prednisone at mega

doses!!!Now picture my house...I'm on Prednsone ( 25-30mg at the time I

think). and he was on 60 mg for weeks then 55, then 50 etc. was until

the cluster stopped at the end of the winter just in time for his

benign prostate to need surgery!!!!

There were many days when my kids would call, hear the tension over the

phone and come over to keep up apart!!!They were sure that we were

going to kill each other!!! Fun time !!!!

This getting old is not for sissies!!!

My 88 year old very healthy mom has frequently said" Whoever called

these the Golden Ages is a F------ Lier!

I didn't use the word,,,just fill it in!!

The Lunesta isn't working tonight so it's play on computer night!!!

Z fibriotic NSIP/05

Z

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

Potter,

reader,carousel lover and MomMom to

Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

Barbara wrote:

, when I was young and naive, I would tell my Mom (who it

turns

out had scleroderma and had every right to feel bad) that she was

only as old as she felt. She snapped back at me once "then I feel

like I'm 90, dammit"!

I quit telling her how she should feel at her age.....LOL!!!

Now, being 47 and having been told that chronologically speaking I

have the body of a woman in her 70's, I can understand what my Mom

was saying. I hurt someplace on my body every day.

It is so hard to live in a body that won't cooperate, turns

traitorous and then fails you when your mind feels young and is still

full of hopes and dreams. Ya know, they say that growing old ain't

for sissies, and I would like to add that having PF is also not for

sissies.

A big pat on the back to all of us for being on this board and

reaching out to each other in an effort to understand and hopefully,

to ultimately beat this disease.

You all inspire me greatly. I love the spunk and grit that is shown

by so many. Y'all keep fighting the good fight and know that I pray

for all of you!

Hugs and Hope...

Babs in Texas 47 YO

DX Nov. 1999 with PF due to Lupus/Scleroderma. Also RA, Raynauds,

Sjogrens, Fibro, DM, and possibly Crohn's.

>

> Joyce,

> I think this is the worst about this disease it makes us feel so

old. Even though logically, there are plenty of young people who

are ill and need walkers, oxygen, hospital beds, etc., and plenty of

90 year olds rushing around the mall without any of the "sickbed

paraphernalia." I think we so associate young with well and sick

with old when really it has nothing to do with age. Now if I could

just "feel" logically instead of just think logically I would have

this whipped!

>

> Sarcoid/PF 3/2006 California

>

>

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