Hi to all of you

[Guest guest]

Hi everyone, I seem to have over 1000 e-mails in my box. Thank you all for your notes. I have not read all correspondence , but will figure out how to cut the volume a bit. About me, I am 79 years old and have been diagnosed with PF after many years of not knowing what was going on, I guess I am relieved to have any kind of diagnosis, and of course because of my advanced age my Dr. does not want to put me through the steroids/viagra/and whatever else the cockeyed medical world has thought up. I really am sort of angry, that does not do a lot of good. I have 9 children/we have a sad history of autoimmune disease, 2 sons with advanced MS and one grandson just diagnosed, 1 daughter with crippling RA, my mother and sister had something on that order, I have found some things I think help, I am on oxygen24/7 and I take NAC as per my dr. not a prescription/seems to help the fatigue. so i do stay in my pj's some days. I retired from the Law Enforcement center/was a

communications officer/matron/jailer, so I know lots of those words I would like to use. I argue with drs, they are NOT going to have the last word, I AM. we live in Northern Iowa, and my husband, like a lot of others doesn't have a clue, I have to ignore the way the wash turns out and the kitchen. Really hard to still have your brain and know what you would be doing if your body would let you, sorry to ramble and I will stay in touch. I take some other things from the alt. med. place.liquid oxy and a lung tonic with cordyceps, looks like swamp water. Later, Gen

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[Guest guest]

DEar Gen,

Welcome to the Board , we will care about you & support your journey through listening & responding to questions. Sorry you've been having such a tough time.

I find it simpler to reasd the Posts directly from the web-site. That way they don not clog up my E-mail system. Just go the the Edit Membership link & cahnge your preference. you can also choose a DIGEST form which should be simpler that receiving individual posts as separate e-mails in your own system.

REgards,

in Australia (aka in Oz)

IPF: Fibrotic NSIP/ UIP????

Reynauds'

May 2007 >> Hi everyone, I seem to have over 1000 e-mails in my box. Thank you all for your notes. I have not read all correspondence , but will figure out how to cut the volume a bit. About me, I am 79 years old and have been diagnosed with PF after many years of not knowing what was going on, I guess I am relieved to have any kind of diagnosis, and of course because of my advanced age my Dr. does not want to put me through the steroids/viagra/and whatever else the cockeyed medical world has thought up. I really am sort of angry, that does not do a lot of good. I have 9 children/we have a sad history of autoimmune disease, 2 sons with advanced MS and one grandson just diagnosed, 1 daughter with crippling RA, my mother and sister had something on that order, I have found some things I think help, I am on oxygen24/7 and I take NAC as per my dr. not a prescription/seems to help the fatigue. so i do stay in my pj's some days. I retired from the Law Enforcement center/was a communications> officer/matron/jailer, so I know lots of those words I would like to use. I argue with drs, they are NOT going to have the last word, I AM. we live in Northern Iowa, and my husband, like a lot of others doesn't have a clue, I have to ignore the way the wash turns out and the kitchen. Really hard to still have your brain and know what you would be doing if your body would let you, sorry to ramble and I will stay in touch. I take some other things from the alt. med. place.liquid oxy and a lung tonic with cordyceps, looks like swamp water. Later, Gen> > ---------------------------------> Never miss a thing. Make Yahoo your homepage.>