Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Has Tulsa been WARNED?????????? LOL..... have a bonza beaudi time BWBB SGIO > > >> > > Yes, you can still use your reservoir after you've frozen up> > > one of your portables. Be sure to always try to fill up> > > your Helios 30-40 minutes before you actually need it.> > > > > > You are not greedy at all. This is your life and your> > > mobility we're talking about. If you don't demand the> > > things that make life tolerable for you or get you> > > out of the house, no one else will. The emotional toll is> > > huge to feel that we're at the mercy of someone else,> > > having to beg and scrape for every little thing, but the> > > rewards of living a semi-normal life are priceless. I> > > know not every supplier agrees to things no matter how> > > persuasive or assertive you are, but Life Support has> > > been very generous to me.> > > > > > Hugs,> > > Gwynne IPF 7/04 listed for transplant 3/07 Texas> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 No...I haven't booked my hotel yet....which I should have long ago.....so I can still sneak in. > > > > > > > > Yes, you can still use your reservoir after you've frozen up > > > > one of your portables. Be sure to always try to fill up > > > > your Helios 30-40 minutes before you actually need it. > > > > > > > > You are not greedy at all. This is your life and your > > > > mobility we're talking about. If you don't demand the > > > > things that make life tolerable for you or get you > > > > out of the house, no one else will. The emotional toll is > > > > huge to feel that we're at the mercy of someone else, > > > > having to beg and scrape for every little thing, but the > > > > rewards of living a semi-normal life are priceless. I > > > > know not every supplier agrees to things no matter how > > > > persuasive or assertive you are, but Life Support has > > > > been very generous to me. > > > > > > > > Hugs, > > > > Gwynne IPF 7/04 listed for transplant 3/07 Texas > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 One thing my PA told me when I began using 02 at night and did not want to.. when we are asleep our bodies completely relax and our breathing becomes so shallow that we must use the 02. So I do, now. I am sure the c-pap gives you a little 02 so just maybe thats enough. When I take my cannula off in my sleep I wake up just gasping. then have to find it.. did I say " I HATE THIS CRUMMMMMY DISEASE " Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Well mine is interesting and still waiting to see final study and review with new pulmonologist. I either do or don't have obstructive issues, but when I hit REM I snore like the devil and my oxygen drops. When on BiPap it was fine. Now, if you'd told me the neck thing.....17 1/2. I do have heated humidity. The question was and is do I need CPAP or Oxygen or both. Right now the report is CPAP instead of Oxygen. But, I quite imagine a better sleep study is coming. My previous ones have been better than this one and my ex-wife's was also. They were taking a new approach and it leaves many unanswered issues. I haven't see the actual report from the study, but with the time so limited, don't know what I'll know when I do. Meanwhile, will use CPAP until new pulmonologist decides on next step. > > I've been wearing CPAP for OSA (obstructive sleep apnea) for about 5 years > now. > In most folks with OSA, the snoring is caused by the collapsing airway...now > that > I use CPAP, I can't even nap without it...and the minute I put it on I'm > 'out like a > light'. > > Things I've learned along the way: > -->Anyone with a 17 inch neck, or larger, probably has OSA. > -->All people with sleep apnea snore; all snorers do not have sleep apnea. > -->Most folks find CPAP machines with humidity more comfortable. > > brud+ > -- > God is good; everything else is a lesson. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 she calls him until she.........gets what she want.....then discards him like a piece of trash. So, you see, we are actually doing him a service when we put him in the freezer.....Sher Bauman wrote: Jim...poor bullwinkle...does bellewinkle call him for two months!? I did not know it's the female who makes the noise....but I guess females are usually the loud ones. lol Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Re: Bruce has used a c-pap over 30 years and when he puts that thing on his face he's OUT.. It is scary when he doesn't use it. like forgetting it when he travels.. nightmare. I hope you get a great sleep with it. Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." Bruce, are you going to run your 02 into your c-pap ? Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." I've had sleep issues for over twenty years, but I can't imagine anyone here who wouldn't have some. We're all dealing with a lot. Our minds don't shut down that easily. Leanne starts thinking of everyone here and everyone she's talked to. Racing minds don't sleep. I take my sleep meds, they work better some nights than others. Tonight is my first night with CPAP and my Mattress Genie.....should be interesting to say the least.> I don't sleep well most nights...> > I know the prednisone plays havoc in our nervous systems and with our > sleep habits...But I did notice a lot of you were posting at around 2-> 3am....> > I was asleep at 10pm or so but then at 2am i started tossing and > turning andfinally got out of bed to read emails...> > A good night's sleep for me is 6 hours (actually that is a great nights > sleep), my doc says I need to go for another sleep test...this will be > my 4th.> > Who else is having sleep issues and why do you think that is?> > Steve-NY> NSIP,RB,COPD (2000)> Sleep Apnea> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > ---------------------------------> No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.2/1224 - Release Date: 1/14/2008 5:39 PM > > > > > > ---------------------------------> Never miss a thing. Make Yahoo your homepage.> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Jim... ain't nature grand? Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Re: Bruce has used a c-pap over 30 years and when he puts that thing on his face he's OUT.. It is scary when he doesn't use it. like forgetting it when he travels.. nightmare. I hope you get a great sleep with it. Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." Bruce, are you going to run your 02 into your c-pap ? Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." I've had sleep issues for over twenty years, but I can't imagine anyone here who wouldn't have some. We're all dealing with a lot. Our minds don't shut down that easily. Leanne starts thinking of everyone here and everyone she's talked to. Racing minds don't sleep. I take my sleep meds, they work better some nights than others. Tonight is my first night with CPAP and my Mattress Genie.....should be interesting to say the least.> I don't sleep well most nights...> > I know the prednisone plays havoc in our nervous systems and with our > sleep habits...But I did notice a lot of you were posting at around 2-> 3am....> > I was asleep at 10pm or so but then at 2am i started tossing and > turning andfinally got out of bed to read emails...> > A good night's sleep for me is 6 hours (actually that is a great nights > sleep), my doc says I need to go for another sleep test...this will be > my 4th.> > Who else is having sleep issues and why do you think that is?> > Steve-NY> NSIP,RB,COPD (2000)> Sleep Apnea> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > ---------------------------------> No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.2/1224 - Release Date: 1/14/2008 5:39 PM > > > > > > ---------------------------------> Never miss a thing. Make Yahoo your homepage.> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Lol.....as long as you get to Texas I don't care what you do to me. I wish it was April now instead of January. Well 103 days....not that I'm counting. Leanne uip Illinois > 1/03 > > > --------------------------------- > > > Never miss a thing. Make Yahoo your homepage. > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with Yahoo! > Mobile. Try it now. > > > > > > > > > > > > > > > > > --------------------------------- > > Looking for last minute shopping deals? Find them fast with Yahoo! > Search. > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Kathie...OR is not quite, entirely, smoke-free but getting pretty close. I am so glad! Are you going to San ? Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Bruce Bruce, A map! What a great idea! The Pacific NW can be beautiful in the summer/fall, right Sher? Washington is smokeless except for Native American casinos. I don't know about OR but I bet they are smokeless, too? Kathie WA NSIP '96 PAH> >> > Oh that would be a dream trip. Mark up a map and just GO. If I were > > in better shape and rich I WOULD DO IT..> > It does make for such fun day dreamin.> > > > > > Love and Prayers, Peggy> > ipf 6/04> > > > Worry looks around.> > Sorry looks back,> > Faith looks up.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 WHAT CHEST PAIN ????????????????????????? Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Thanks Bruce. Amber has a twin. Britni. Two brothers. many cousins. I am sure we would ALL line up. Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Could be....I'll check if I did....might have to be straight email. And I don't want two trillion emails...lol > > > > > > Kathie, > > > I've got the same problem - I can look at the photo > > > albums, but when someone posts a photo with their > > > e-mail, it doesn't go through for me. hmmmm. Also > > > some of the jokes, etc. that are shown as attachments > > > don't go through. > > > > > > Hugs, > > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Bruce, I get posts through my e-mail. It runs about 100 to 150 per day at times. I just find it so much easier to read without going to each one on the board. hee hee it isn't all that bad unless you miss a day. give it a try. How many days left??????? Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Ah, so another travel pops up, Hayward, Wisconsin....lol I know EK days are so far away and such another world too. Not sure I understand it at all. lol > > Bruce, says he is the hug approver. LOL He is after > all Super CareGiver. LOL (His title from Chattanooga.) After 40 > years he just expects what ever comes and is never sure what to > expect. > > > > > > As far as Leanne goes the lojack is a really good idea. The girl > moves. > > > > > > We do have several men here but they are mostly lurkers. I really > think they have a hard time getting a word in edgewise with all the > women. lol > > > > > > Love and Prayers, Peggy > > ipf 6/04 > > > > > > Worry looks around. > > Sorry looks back, > > Faith looks up. > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > Try it now. > > > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Quote Link to comment Share on other sites More sharing options...
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