Re: Prostate-specific antigen screening: Pro - Abstract

[Guest guest]

Here is my view about early detection and

mortality. Through modern medicine even men with stage 4 prostate cancer

can prolong their lives to the point that yes they do die of something

else. This does skew the mortality data. The problem comes in with

the quality of life those men who have advanced stages of PCa have. As I sit

here with my stage three cancer recovering from surgery waiting to get just

well enough so I can start a couple of months of radiation therapy. I am

51 years old and will never have a natural erection again. I will

probably have to where pads or require more surgery to control my incontinence.

I am already having bowel problems because of the invasion of the PCa into my

rectum. The radiation is going to make that worse. Viagra and

Cialis will not help because the nerves that they effect are gone. The one

medicine that I have to try for ED is extremely painful. When I do

climax urine goes every where. Romantic isn’t it. Yes when

the treatments are over I will live but there is going to be a big inconvenience

in a private part of my life.

I feel very envious of those patients

where their PCa was discovered early, those T1 and T2 have a much better chance

of a full recovery to a normal male functioning life. I will most likely die

from something other than PCa but I would have been a lot happier if this was

detected earlier. I don’t see this kind of situation mentioned in those

discussions. They only seem to care if you lived or died.

From:

ProstateCancerSupport [mailto:ProstateCancerSupport ]

On Behalf Of Kathy Meade

Sent: Friday, March 26, 2010 8:11

AM

To: 'Prostate Problems Mailing

LIst'; Circle; Pcan; ProstateCancerSupport

Subject:

Prostate-specific antigen screening: Pro - Abstract

This article addresses something that has bothered me

about the recent

debate about early detection of prostate cancer. The discussion seems to

focus exclusively on survival. Is there an advantage for men with disease

for identifying earlier to avoid or at least potentially postpone metastatic

disease?

Kathy

[Guest guest]

Hey Larry, are we haing fun yet?/lol

I'm 53 & had my prostate removed when I was 48. PSA started to rise so I had Tomotherapy (radiation) been on lupron & casodex at times--my incontinence was not too bad (thankfully)--I did have a penile implant which works well, although since my prostate removal my sex drive or libido has gone from (rate 1-10) an 8 most of my life to about a 1 now. My PSA is still on the rise, had blood work 8 months ago & it was 68.00--I'm sure by now it is well over 100.00--- & unlike you I feel I WILL most likely die from PCa because of my age--(unless I get hit by a truck tomorrow) ---So anyway hang in there./

Ralph

Subject: RE: Prostate-specific antigen screening: Pro - AbstractTo: ProstateCancerSupport Date: Friday, March 26, 2010, 2:39 PM

Here is my view about early detection and mortality. Through modern medicine even men with stage 4 prostate cancer can prolong their lives to the point that yes they do die of something else. This does skew the mortality data. The problem comes in with the quality of life those men who have advanced stages of PCa have. As I sit here with my stage three cancer recovering from surgery waiting to get just well enough so I can start a couple of months of radiation therapy. I am 51 years old and will never have a natural erection again. I will probably have to where pads or require more surgery to control my incontinence. I am already having bowel problems because of the invasion of the PCa into my rectum. The radiation is going to make that worse. Viagra and Cialis will not help

because the nerves that they effect are gone. The one medicine that I have to try for ED is extremely painful. When I do climax urine goes every where. Romantic isn’t it. Yes when the treatments are over I will live but there is going to be a big inconvenience in a private part of my life.

I feel very envious of those patients where their PCa was discovered early, those T1 and T2 have a much better chance of a full recovery to a normal male functioning life. I will most likely die from something other than PCa but I would have been a lot happier if this was detected earlier. I don’t see this kind of situation mentioned in those discussions. They only seem to care if you lived or died.

From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan cerSupport@ yahoogroups. com] On Behalf Of Kathy MeadeSent: Friday, March 26, 2010 8:11 AMTo: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo rtyahoogroups (DOT) comSubject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract

This article addresses something that has bothered me about the recentdebate about early detection of prostate cancer. The discussion seems tofocus exclusively on survival. Is there an advantage for men with diseasefor identifying earlier to avoid or at least potentially postpone metastaticdisease?Kathy

[Guest guest]

This group is so damn negative.

I had RP at age 48 in 1996. bPSA 50+, T3N1M0, LN-SV removal + margins in colon.

The best case prognosis for me was five years survival. My doc said I would

never have erections again. I proved that wrong because I survived 15 years

instead. Ha! I wake up every morning with erections when I am not doing HB, and

some mornings even when I am doing HB!

Salvage RT in 1998 due rising PSA. Did lots of stuff since then, kept a 'PSA

diary' & learned a lot.

Been around longer than the vast majority of members here because I think out of

the box. Analysed the problem, challenged conventional wisdoms, looked for

causes and ways to combat the disease. Fighting spirit.

Sammy.

http://fitcare.org.uk/

>

>

>

> Subject: RE: Prostate-specific antigen screening: Pro

- Abstract

> To: ProstateCancerSupport

> Date: Friday, March 26, 2010, 2:39 PM

>

>

>  

>

>

>

>

>

> Here is my view about early detection and mortality.  Through modern medicine

even men with stage 4 prostate cancer can prolong their lives to the point that

yes they do die of something else.  This does skew the mortality data.  The

problem comes in with the quality of life those men who have advanced stages of

PCa have.  As I sit here with my stage three cancer recovering from surgery

waiting to get just well enough so I can start a couple of months of radiation

therapy.  I am 51 years old and will never have a natural erection again.  I

will probably have to where pads or require more surgery to control my

incontinence.  I am already having bowel problems because of the invasion of

the PCa into my rectum.  The radiation is going to make that worse.   Viagra

and Cialis will not help because the nerves that they effect are gone.  The one

medicine that I have to try for ED is extremely  painful.  When I do climax

urine goes every where. 

> Romantic isn’t it.  Yes when the treatments are over I will live but there

is going to be a big inconvenience in a private part of my life.

>  

> I feel very envious of those patients where their PCa was discovered early,

those T1 and T2 have a much better chance of a full recovery to a normal male

functioning life. I will most likely die from something other than PCa but I

would have been a lot happier if this was detected earlier. I don’t see this

kind of situation mentioned in those discussions.  They only seem to care if

you lived or died.

>  

>

>

>

>

> From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan cerSupport@

yahoogroups. com] On Behalf Of Kathy Meade

> Sent: Friday, March 26, 2010 8:11 AM

> To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo

rtyahoogroups (DOT) com

> Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro -

Abstract

>  

>

>

>

> This article addresses something that has bothered me about the recent

> debate about early detection of prostate cancer. The discussion seems to

> focus exclusively on survival. Is there an advantage for men with disease

> for identifying earlier to avoid or at least potentially postpone metastatic

> disease?

>

> Kathy

>

[Guest guest]

To Sammy:

Nice to hear from you. I had prostate cancer. I was 56 years old. I was diagnosed, the day, before my partners 40th birthday.

I'm happy just being alive. My partner, best friend, and dog are wonderful support. I'm thrilled.

I don't have erections anymore. I have urinary incontinence, but that is going to be solved.

Staying positive is the only way to live.

Friends,

Doug Archer, San Diego

To: ProstateCancerSupport Sent: Fri, March 26, 2010 5:18:51 PMSubject: Re: Prostate-specific antigen screening: Pro - Abstract

This group is so damn negative.I had RP at age 48 in 1996. bPSA 50+, T3N1M0, LN-SV removal + margins in colon. The best case prognosis for me was five years survival. My doc said I would never have erections again. I proved that wrong because I survived 15 years instead. Ha! I wake up every morning with erections when I am not doing HB, and some mornings even when I am doing HB! Salvage RT in 1998 due rising PSA. Did lots of stuff since then, kept a 'PSA diary' & learned a lot. Been around longer than the vast majority of members here because I think out of the box. Analysed the problem, challenged conventional wisdoms, looked for causes and ways to combat the disease. Fighting spirit.Sammy.http://fitcare. org.uk/>

> > From: Larry Helber <lhelber@... >> Subject: RE: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract> To: ProstateCancerSuppo rtyahoogroups (DOT) com> Date: Friday, March 26, 2010, 2:39 PM> > >  > > > > > > Here is my view about early detection and mortality. Through modern medicine even men with stage 4 prostate cancer can prolong their lives to the point that yes they do die of something else. This does skew the mortality data. The problem comes in with the quality of life those men who have advanced stages of PCa have. As I sit here with my stage three cancer recovering from surgery waiting to get just well enough so I can start a couple of

months of radiation therapy. I am 51 years old and will never have a natural erection again. I will probably have to where pads or require more surgery to control my incontinence. I am already having bowel problems because of the invasion of the PCa into my rectum. The radiation is going to make that worse.  Viagra and Cialis will not help because the nerves that they effect are gone. The one medicine that I have to try for ED is extremely  painful. When I do climax urine goes every where. > Romantic isn’t it. Yes when the treatments are over I will live but there is going to be a big inconvenience in a private part of my life. >  > I feel very envious of those patients where their PCa was discovered early, those T1 and T2 have a much better chance of a full recovery to a normal male functioning life. I will most likely die from

something other than PCa but I would have been a lot happier if this was detected earlier. I don’t see this kind of situation mentioned in those discussions. They only seem to care if you lived or died.>  > > > > > From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan cerSupport@ yahoogroups. com] On Behalf Of Kathy Meade> Sent: Friday, March 26, 2010 8:11 AM> To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo rtyahoogroups (DOT) com> Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract>  > > > > This article addresses something that has bothered me about the recent> debate about early detection of prostate cancer. The discussion seems to> focus exclusively on survival. Is there an advantage for men with disease> for identifying earlier to avoid

or at least potentially postpone metastatic> disease?> > Kathy>

[Guest guest]

I think you missed the point of the post. This

is not about how bad I have it. The reply was about the recent debate on if early

detection of prostate cancer being necessary and how it is based only on the

results of mortality figures.  I am making the statement that there is more to this

disease than just mortality.  Early detection goes a long way to preventing a

lot of the side effects that this disease presents. Had my cancer been caught

earlier I feel I would have been in much better shape today. It isn’t so

I will deal with it.

I applaud your success in dealing with

this disease.  I hope in 15 years I can say the same thing. That is my goal. I

am also willing to bet that early on you may have hoped your numbers weren’t

so bad either.  I really enjoyed Ralph’s reply. Especially his opening

line “Are we having fun yet?â€. That injection of humor made me

laugh and said to me “hey I understand where you are coming from lets

laugh about it and continue on and try and beat this thing.†A very

positive statement IHMO.

In my opinion the real issue is the AMA is

being pressured to reduce the cost, the doctors are going to the thumb their noses

at it because they don’t want to be subject to malpractice suits.  The

same thing happened with breast cancer not too long ago. My sons are going to

be instructed to go for early and regular testing.

This group is so damn negative.

I had RP at age 48 in 1996. bPSA 50+, T3N1M0, LN-SV removal + margins in colon.

The best case prognosis for me was five years survival. My doc said I would

never have erections again. I proved that wrong because I survived 15 years

instead. Ha! I wake up every morning with erections when I am not doing HB, and

some mornings even when I am doing HB!

Salvage RT in 1998 due rising PSA. Did lots of stuff since then, kept a 'PSA

diary' & learned a lot.

Been around longer than the vast majority of members here because I think out

of the box. Analysed the problem, challenged conventional wisdoms, looked for

causes and ways to combat the disease. Fighting spirit.

Sammy.

http://fitcare.org.uk/

>

>

>

> Subject: RE: Prostate-specific antigen

screening: Pro - Abstract

> To: ProstateCancerSupport

> Date: Friday, March 26, 2010, 2:39 PM

>

>

> Â

>

>

>

>

>

> Here is my view about early detection and mortality. Through modern

medicine even men with stage 4 prostate cancer can prolong their lives to the

point that yes they do die of something else. This does skew the

mortality data. The problem comes in with the quality of life those men

who have advanced stages of PCa have. As I sit here with my stage three

cancer recovering from surgery waiting to get just well enough so I can start a

couple of months of radiation therapy. I am 51 years old and will never

have a natural erection again. I will probably have to where pads or

require more surgery to control my incontinence. I am already having

bowel problems because of the invasion of the PCa into my rectum. The

radiation is going to make that worse.  Viagra and Cialis will not

help because the nerves that they effect are gone. The one medicine that

I have to try for ED is extremely  painful. When I do climax urine

goes every where.Â

> Romantic isn’t it. Yes when the treatments are over I

will live but there is going to be a big inconvenience in a private part of my

life.

> Â

> I feel very envious of those patients where their PCa was discovered

early, those T1 and T2 have a much better chance of a full recovery to a normal

male functioning life. I will most likely die from something other than PCa but

I would have been a lot happier if this was detected earlier. I

don’t see this kind of situation mentioned in those

discussions. They only seem to care if you lived or died.

> Â

>

>

>

>

> From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan

cerSupport@ yahoogroups. com] On Behalf Of Kathy Meade

> Sent: Friday, March 26, 2010 8:11 AM

> To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo

rtyahoogroups (DOT) com

> Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro

- Abstract

> Â

>

>

>

> This article addresses something that has bothered me about the recent

> debate about early detection of prostate cancer. The discussion seems to

> focus exclusively on survival. Is there an advantage for men with disease

> for identifying earlier to avoid or at least potentially postpone

metastatic

> disease?

>

> Kathy

>

[Guest guest]

Larry I agree with you in a wider context screening and detection should not be

downgraded because of past misuse of PSA testing in the 'States by greedy

surgeons and radiologists. In China where rates are much lower anyway there is

evidence that early detection and timely treatment can save lives. Not sure what

the Chines intend to actually do when they detect PC earlier. If they go the

same route as America they will just end up with a lot of incontinent / impotent

guys who never needed treatment in the first place.

It looks like Crawford is now saying a PSA of 10 needs to be flagged. Combined

with %fPSA / PSADT and PSAvolume screening with a low rate of false positives

can be achieved.

If you live in any country with a socialised health service (e.g. UK NHS) you

will know that it can be difficult to get a PSA test if you are not symptomatic

- by which time the window for early detection and timely treatment has passed.

That was my case 15-16 years ago.

The great advantage of the profit driven American system is that it looks after

you as your disease advances - provided you have adequate health insurance of

course. It is then up to you to determine the best form of treatment to combat

the disease.

There are many ways of reducing the expense of treating PC and at the same time

improving your chances of survival. Just not doing PSA testing is a false

economy and I hope the Obama health system learns from the UK NHS blunders.

Sammy.

http://fitcare.org.uk/

> >

> >

> > From: Larry Helber <lhelber@>

> > Subject: RE: Prostate-specific antigen screening:

Pro - Abstract

> > To: ProstateCancerSuppo <mailto:ProstateCancerSupport%40yahoogroups.com>

rt

> > Date: Friday, March 26, 2010, 2:39 PM

> >

> >

> > Â

> >

> >

> >

> >

> >

> > Here is my view about early detection and mortality. Through modern

medicine even men with stage 4 prostate cancer can prolong their lives to the

point that yes they do die of something else. This does skew the mortality

data. The problem comes in with the quality of life those men who have

advanced stages of PCa have. As I sit here with my stage three cancer

recovering from surgery waiting to get just well enough so I can start a couple

of months of radiation therapy. I am 51 years old and will never have a

natural erection again. I will probably have to where pads or require more

surgery to control my incontinence. I am already having bowel problems

because of the invasion of the PCa into my rectum. The radiation is going to

make that worse.  Viagra and Cialis will not help because the nerves that

they effect are gone. The one medicine that I have to try for ED is extremely

 painful. When I do climax urine goes every where.Â

> > Romantic isn’t it. Yes when the treatments are over I will live

but there is going to be a big inconvenience in a private part of my life.

> > Â

> > I feel very envious of those patients where their PCa was discovered early,

those T1 and T2 have a much better chance of a full recovery to a normal male

functioning life. I will most likely die from something other than PCa but I

would have been a lot happier if this was detected earlier. I don’t see

this kind of situation mentioned in those discussions. They only seem to care

if you lived or died.

> > Â

> >

> >

> >

> >

> > From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan

cerSupport@ yahoogroups. com] On Behalf Of Kathy Meade

> > Sent: Friday, March 26, 2010 8:11 AM

> > To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo

rtyahoogroups (DOT) com

> > Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro -

Abstract

> > Â

> >

> >

> >

> > This article addresses something that has bothered me about the recent

> > debate about early detection of prostate cancer. The discussion seems to

> > focus exclusively on survival. Is there an advantage for men with disease

> > for identifying earlier to avoid or at least potentially postpone metastatic

> > disease?

> >

> > Kathy

> >

>

[Guest guest]

Early detection is key. When I was diagnosed at age 48 my PSA was 28.25--went to s Hopkins for surgery & my roomate was 42-43yrs old. PCa ran in his family so he knew to be tested, not the case for me & it was a fluke that my Dr. checked the box for PSA at a routine check up. Too bad I didn't find out earlier, my Dr's all said a few years earlier detection would of made a BIG difference. Oh well...Shit Happens & I feel lucky to have been diagnosed when I was at age 48. This standard PSA testing of only men over 50yrs old needs to be addressed, most men with PCa will die of something else because of the age they get it---(mid to late 60's-70's-80's) as long as they are pro-active about their situation. Those diagnosed in their 40's-50's- & early 60's doen't have that --Time is on their side thing going on....This is , of course

All in my opionion--Best of Luck to all you guys---Corners Up! (Keep Smiling)

Ralph-

Subject: RE: Re: Prostate-specific antigen screening: Pro - AbstractTo: ProstateCancerSupport Date: Friday, March 26, 2010, 11:18 PM

I think you missed the point of the post. This is not about how bad I have it. The reply was about the recent debate on if early detection of prostate cancer being necessary and how it is based only on the results of mortality figures. I am making the statement that there is more to this disease than just mortality. Early detection goes a long way to preventing a lot of the side effects that this disease presents. Had my cancer been caught earlier I feel I would have been in much better shape today. It isn’t so I will deal with it.

I applaud your success in dealing with this disease. I hope in 15 years I can say the same thing. That is my goal. I am also willing to bet that early on you may have hoped your numbers weren’t so bad either. I really enjoyed Ralph’s reply. Especially his opening line “Are we having fun yet?â€. That injection of humor made me laugh and said to me “hey I understand where you are coming from lets laugh about it and continue on and try and beat this thing.†A very positive statement IHMO.

In my opinion the real issue is the AMA is being pressured to reduce the cost, the doctors are going to the thumb their noses at it because they don’t want to be subject to malpractice suits. The same thing happened with breast cancer not too long ago. My sons are going to be instructed to go for early and regular testing.

This group is so damn negative.I had RP at age 48 in 1996. bPSA 50+, T3N1M0, LN-SV removal + margins in colon. The best case prognosis for me was five years survival. My doc said I would never have erections again. I proved that wrong because I survived 15 years instead. Ha! I wake up every morning with erections when I am not doing HB, and some mornings even when I am doing HB! Salvage RT in 1998 due rising PSA. Did lots of stuff since then, kept a 'PSA diary' & learned a lot. Been around longer than the vast majority of members here because I think out of the box. Analysed the problem, challenged conventional wisdoms, looked for causes and ways to combat the disease. Fighting spirit.Sammy.http://fitcare. org.uk/> > > From: Larry Helber <lhelber@... >> Subject: RE: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract> To: ProstateCancerSuppo rtyahoogroups (DOT) com> Date: Friday, March 26, 2010, 2:39 PM> > >  > > > > > > Here is my view about early detection and mortality. Through modern medicine even men with stage 4 prostate cancer can prolong their lives to the point that yes they do die of something else. This does skew the mortality data. The problem comes in with the quality of life those men who have advanced

stages of PCa have. As I sit here with my stage three cancer recovering from surgery waiting to get just well enough so I can start a couple of months of radiation therapy. I am 51 years old and will never have a natural erection again. I will probably have to where pads or require more surgery to control my incontinence. I am already having bowel problems because of the invasion of the PCa into my rectum. The radiation is going to make that worse.  Viagra and Cialis will not help because the nerves that they effect are gone. The one medicine that I have to try for ED is extremely  painful. When I do climax urine goes every where. > Romantic isn’t it. Yes when the treatments are over I will live but there is going to be a big inconvenience in a private part of my life. >  > I feel very envious of those patients where their PCa

was discovered early, those T1 and T2 have a much better chance of a full recovery to a normal male functioning life. I will most likely die from something other than PCa but I would have been a lot happier if this was detected earlier. I don’t see this kind of situation mentioned in those discussions. They only seem to care if you lived or died.>  > > > > > From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan cerSupport@ yahoogroups. com] On Behalf Of Kathy Meade> Sent: Friday, March 26, 2010 8:11 AM> To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo rtyahoogroups (DOT) com> Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract>  > > > > This article addresses something that has bothered me about the recent> debate about early detection of prostate cancer.

The discussion seems to> focus exclusively on survival. Is there an advantage for men with disease> for identifying earlier to avoid or at least potentially postpone metastatic> disease?> > Kathy>

[Guest guest]

This is another piece of misinformation - this time about the UK NHS. What Sammy says was not true generally 15 years ago, as I was getting routine annual PSA tests even 25 years ago as were men of my age then (I'm 66 now) in England. It is certainly not so today. If, aged 50, you want a PSA test you can get it at once. If there is a family history of PCa you can get it earlier. No problem.

Furthermore, the care received in the UK by those found with an raised PSA level is exemplary and rapid.

I attack failings in the NHS when I find them but this is not one of them.

To: ProstateCancerSupport Sent: Saturday, 27 March, 2010 10:01:02Subject: Re: Prostate-specific antigen screening: Pro - Abstract

Larry I agree with you in a wider context screening and detection should not be downgraded because of past misuse of PSA testing in the 'States by greedy surgeons and radiologists. In China where rates are much lower anyway there is evidence that early detection and timely treatment can save lives. Not sure what the Chines intend to actually do when they detect PC earlier. If they go the same route as America they will just end up with a lot of incontinent / impotent guys who never needed treatment in the first place.It looks like Crawford is now saying a PSA of 10 needs to be flagged. Combined with %fPSA / PSADT and PSAvolume screening with a low rate of false positives can be achieved.If you live in any country with a socialised health service (e.g. UK NHS) you will know that it can be difficult to get a PSA test if you are not symptomatic - by which time the window for early detection and timely treatment has passed. That was my

case 15-16 years ago. The great advantage of the profit driven American system is that it looks after you as your disease advances - provided you have adequate health insurance of course. It is then up to you to determine the best form of treatment to combat the disease.There are many ways of reducing the expense of treating PC and at the same time improving your chances of survival. Just not doing PSA testing is a false economy and I hope the Obama health system learns from the UK NHS blunders.Sammy.http://fitcare. org.uk/> > > > > > From: Larry Helber <lhelber@>> > Subject: RE: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract> > To: ProstateCancerSuppo <mailto:ProstateCan cerSupport% 40yahoogroups. com> rtyahoogroups (DOT)

com> > Date: Friday, March 26, 2010, 2:39 PM> > > > > >  > > > > > > > > > > > > Here is my view about early detection and mortality. Through modern medicine even men with stage 4 prostate cancer can prolong their lives to the point that yes they do die of something else. This does skew the mortality data. The problem comes in with the quality of life those men who have advanced stages of PCa have. As I sit here with my stage three cancer recovering from surgery waiting to get just well enough so I can start a couple of months of radiation therapy. I am 51 years old and will never have a natural erection again. I will probably have to where pads or require more surgery to control my incontinence. I am already having bowel problems because of the invasion of the PCa into my rectum. The radiation is going to make that worse. Â

Viagra and Cialis will not help because the nerves that they effect are gone. The one medicine that I have to try for ED is extremely  painful. When I do climax urine goes every where. > > Romantic isn’t it. Yes when the treatments are over I will live but there is going to be a big inconvenience in a private part of my life. > >  > > I feel very envious of those patients where their PCa was discovered early, those T1 and T2 have a much better chance of a full recovery to a normal male functioning life. I will most likely die from something other than PCa but I would have been a lot happier if this was detected earlier. I don’t see this kind of situation mentioned in those discussions. They only seem to care if you lived or died.> >  > > > > > > > > > > From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan cerSupport@

yahoogroups. com] On Behalf Of Kathy Meade> > Sent: Friday, March 26, 2010 8:11 AM> > To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo rtyahoogroups (DOT) com> > Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract> > Â > > > > > > > > This article addresses something that has bothered me about the recent> > debate about early detection of prostate cancer. The discussion seems to> > focus exclusively on survival. Is there an advantage for men with disease> > for identifying earlier to avoid or at least potentially postpone metastatic> > disease?> > > > Kathy> >>

[Guest guest]

To Larry:

Our situations are similar. I was 56 years old when my prostate cancer was diagnosed. Due to hypertension, my erections are not what they were. Drugs are not helping. When I climax, urine is all over the place. I may have surgery to correct the incontinence; minor procedure and done in office setting.

When I had my first Bowel Movement after surgery, it was an experience I never had before. I thought I was about to lose it all.

Let me know how you are doing. We can be support to each other. I think we need to find other ways to define our manhood. I'm doing some volunteering with the cancer society.

Wishing you the best, Hang in there my friend.

Doug Archer, San Diego

To: ProstateCancerSupport Sent: Fri, March 26, 2010 11:39:05 AMSubject: RE: Prostate-specific antigen screening: Pro - Abstract

Here is my view about early detection and mortality. Through modern medicine even men with stage 4 prostate cancer can prolong their lives to the point that yes they do die of something else. This does skew the mortality data. The problem comes in with the quality of life those men who have advanced stages of PCa have. As I sit here with my stage three cancer recovering from surgery waiting to get just well enough so I can start a couple of months of radiation therapy. I am 51 years old and will never have a natural erection again. I will probably have to where pads or require more surgery to control my incontinence. I am already having bowel problems because of the invasion of the PCa into my rectum. The radiation is going to make that worse. Viagra and Cialis will not help

because the nerves that they effect are gone. The one medicine that I have to try for ED is extremely painful. When I do climax urine goes every where. Romantic isn’t it. Yes when the treatments are over I will live but there is going to be a big inconvenience in a private part of my life.

I feel very envious of those patients where their PCa was discovered early, those T1 and T2 have a much better chance of a full recovery to a normal male functioning life. I will most likely die from something other than PCa but I would have been a lot happier if this was detected earlier. I don’t see this kind of situation mentioned in those discussions. They only seem to care if you lived or died.

From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan cerSupport@ yahoogroups. com] On Behalf Of Kathy MeadeSent: Friday, March 26, 2010 8:11 AMTo: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo rtyahoogroups (DOT) comSubject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract

This article addresses something that has bothered me about the recentdebate about early detection of prostate cancer. The discussion seems tofocus exclusively on survival. Is there an advantage for men with diseasefor identifying earlier to avoid or at least potentially postpone metastaticdisease?Kathy

[Guest guest]

Misinformation in the USA about the Canadian and British health care systems is

rampant, presumably fostered by opponents of change in this country. It is very

refreshing to have members who correct misconceptions here and elsewhere.

Rich L

> > >

> > >

> > > From: Larry Helber <lhelber@>

> > > Subject: RE: [ProstateCancerSupp ort] Prostate-specific antigen screening:

Pro - Abstract

> > > To: ProstateCancerSuppo <mailto:ProstateCan cerSupport% 40yahoogroups.

com> rtyahoogroups (DOT) com

> > > Date: Friday, March 26, 2010, 2:39 PM

> > >

> > >

> > > Â

> > >

> > >

> > >

> > >

> > >

> > > Here is my view about early detection and mortality. Through modern

medicine even men with stage 4 prostate cancer can prolong their lives to the

point that yes they do die of something else. This does skew the mortality

data. The problem comes in with the quality of life those men who have

advanced stages of PCa have. As I sit here with my stage three cancer

recovering from surgery waiting to get just well enough so I can start a couple

of months of radiation therapy. I am 51 years old and will never have a

natural erection again. I will probably have to where pads or require more

surgery to control my incontinence. I am already having bowel problems because

of the invasion of the PCa into my rectum. The radiation is going to make that

worse.  Viagra and Cialis will not help because the nerves that they effect

are gone. The one medicine that I have to try for ED is extremely Â

painful. When I do climax urine goes every

> where.Â

> > > Romantic isn’t it. Yes when the treatments are over I will live

but there is going to be a big inconvenience in a private part of my life.

> > > Â

> > > I feel very envious of those patients where their PCa was discovered

early, those T1 and T2 have a much better chance of a full recovery to a normal

male functioning life. I will most likely die from something other than PCa but

I would have been a lot happier if this was detected earlier. I don’t see

this kind of situation mentioned in those discussions. They only seem to care

if you lived or died.

> > > Â

> > >

> > >

> > >

> > >

> > > From: ProstateCancerSuppo rtyahoogroups (DOT) com [mailto:ProstateCan

cerSupport@ yahoogroups. com] On Behalf Of Kathy Meade

> > > Sent: Friday, March 26, 2010 8:11 AM

> > > To: 'Prostate Problems Mailing LIst'; Circle; Pcan; ProstateCancerSuppo

rtyahoogroups (DOT) com

> > > Subject: [ProstateCancerSupp ort] Prostate-specific antigen screening: Pro

- Abstract

> > > Â

> > >

> > >

> > >

> > > This article addresses something that has bothered me about the recent

> > > debate about early detection of prostate cancer. The discussion seems to

> > > focus exclusively on survival. Is there an advantage for men with disease

> > > for identifying earlier to avoid or at least potentially postpone

metastatic

> > > disease?

> > >

> > > Kathy

> > >

> >

>

[Guest guest]



When I was diagnosed with PCa here in Spain in July 08 I rang my brother, who lives in England, and suggested he might want to be tested. He obtained an appointment with his NHS doctor within 2 days. He was immediately scheduled for a PSA test by his Doc no problem and had his results within 21 days of my diagnosis. Thankfully his level was below 0.9 despite being 3 years older than me (at the time 51).

Malaga,Spain

[ProstateCancerSupp ort] Prostate-specific antigen screening: Pro - Abstract> > > Â > > > > > > > > > > > > This article addresses something that has bothered me about the recent> > > debate about early detection of prostate cancer. The discussion seems to> > > focus exclusively on survival. Is there an advantage for men with disease> > > for identifying earlier to avoid or at least potentially postpone metastatic> > > disease?> > > > > > Kathy> > >> >>

[Guest guest]

Doug,

Thank you for your vote of support. I

agree this is what this group is supposed to be about. I am surprised that the

incontinence procedure or artificial sphincter is a minor procedure. I figured

that it would have been another trip to the hospital if I had to have that

done. I have an ED drug, a suppository (yup up there) that doesn’t quite

work. All it does right now is make the area really painful for about 3 hours.

Once inserted it certainly removes any urges to fool around. Maybe that is the

way it is supposed to work. J

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of Doug Archer

Sent: Sunday, March 28, 2010 3:32

AM

To: ProstateCancerSupport

Subject: Re:

Prostate-specific antigen screening: Pro - Abstract

To Larry:

Our situations are similar. I was 56 years old when my

prostate cancer was diagnosed. Due to hypertension, my erections are not what

they were. Drugs are not helping. When I climax, urine is all over the

place. I may have surgery to correct the incontinence; minor

procedure and done in office setting.

When I had my first Bowel Movement after surgery, it was

an experience I never had before. I thought I was about to lose it

all.

Let me know how you are doing. We can be support to each

other. I think we need to find other ways to define our manhood. I'm doing

some volunteering with the cancer society.

Wishing you the best, Hang in there my

friend.

Doug Archer, San

Diego

From: Larry Helber

<lhelberhelberhut>

To: ProstateCancerSupport

Sent: Fri, March 26, 2010 11:39:05

AM

Subject: RE:

Prostate-specific antigen screening: Pro - Abstract

Here is my view about early detection and mortality. Through

modern medicine even men with stage 4 prostate cancer can prolong their lives

to the point that yes they do die of something else. This does skew the

mortality data. The problem comes in with the quality of life those men

who have advanced stages of PCa have. As I sit here with my stage three

cancer recovering from surgery waiting to get just well enough so I can start a

couple of months of radiation therapy. I am 51 years old and will never

have a natural erection again. I will probably have to where pads or

require more surgery to control my incontinence. I am already having

bowel problems because of the invasion of the PCa into my rectum. The

radiation is going to make that worse. Viagra and Cialis will not

help because the nerves that they effect are gone. The one medicine that

I have to try for ED is extremely painful. When I do climax urine

goes every where. Romantic isn’t it. Yes when the treatments are

over I will live but there is going to be a big inconvenience in a private part

of my life.

I feel very envious of those patients where their PCa was

discovered early, those T1 and T2 have a much better chance of a full recovery

to a normal male functioning life. I will most likely die from something other

than PCa but I would have been a lot happier if this was detected earlier. I

don’t see this kind of situation mentioned in those discussions. They

only seem to care if you lived or died.

From: ProstateCancerSuppo rtyahoogroups (DOT) com

[mailto:ProstateCan cerSupport@ yahoogroups. com] On Behalf Of Kathy Meade

Sent: Friday, March 26, 2010 8:11

AM

To: 'Prostate Problems Mailing

LIst'; Circle; Pcan; ProstateCancerSuppo rtyahoogroups (DOT) com

Subject: [ProstateCancerSupp ort]

Prostate-specific antigen screening: Pro - Abstract

This

article addresses something that has bothered me about the recent

debate about early detection of prostate cancer. The discussion seems to

focus exclusively on survival. Is there an advantage for men with disease

for identifying earlier to avoid or at least potentially postpone metastatic

disease?

Kathy