Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Everyone could learn so much from Irene about standing up for yourself and your rights as a patient. I'm sure some think she's a royal PITA (love acronyms to see who can figure them out), but they're the ones who aren't paying attention. But, I'll tell you this, there is no one on this board who has taken more control of their medical treatment. I adore her, but I sure as heck would be scared to stand in her way. I've learned the same. I had one psychiatrist who I tried and tried to say nicely my frustration and the feeling of my counselor that there were also medical problems undiagnosed. Only when I slammed the door on my way out (quite a bit too hard I'm afraid) did she get the point at all. My parting letter to my pulmonologists is very nice, but basically says you're in the hospital all the time and don't have time for me. I need someone who does. We all know our bodies. If we feel there is something wrong, then there is. We may not know why or what, but we know its not right. I love sending the advance letter idea. Had never thought of that. But if they get the letter describing it all and asking if they can help and you hear nothing back, guess that is your answer. At least you should get a call from a nurse setting up an appointment and saying he read it and he can help. Ideally, you get what Irene did...a phone call. Again, I would write it all down in some form. One, so I wouldn't forget anything. Two, seeing how serious you are by writing it and reading the words can have an impact. Sandie, you can do it. In fact, your level of anger and frustration right now is there for just that reason-to give you the drive to do it, to help you overcome the exhaustion and to help you force someone to give you the help you need. And, oh, Irene, you are too young to have any of those things. Heck I'm too young to have a terminal disease. Aren't we all too young? I was too healthy for my diagnosis. I didn't show enough pain I guess so it went undone too long. I must learn to lie about my pain level since I don't feel it normally so people will listen. > > > > > > > > > > > > > > > > > > > > > > > > Hi all I am not sure what is going on but I am > > > > thinking > > > > > > I am > > > > > > > > > > > having > > > > > > > > > > > > an anxiety attack. I dont have anxiety or at > > least > > > I > > > > > > didnt > > > > > > > > think > > > > > > > > > > > > so. I may also be having an allergice reaction. > > My > > > > > pulse > > > > > > is > > > > > > > a > > > > > > > > > > > > little high about 96 I dont have a oximeter or > a > > > > blood > > > > > > > > pressure > > > > > > > > > > > cup > > > > > > > > > > > > but they are on my list to get as soon as I > have > > > some > > > > > > > money. > > > > > > > > Our > > > > > > > > > > > dog > > > > > > > > > > > > the baby has been sick since December and I > > brought > > > > him > > > > > > > back > > > > > > > > to > > > > > > > > > > > the > > > > > > > > > > > > vet yesterday because he was getting sick > again. > > He > > > > was > > > > > > > > > > scheduled > > > > > > > > > > > > for an ultrasound next week but we moved it up > to > > > > > today, > > > > > > my > > > > > > > > > > > husband > > > > > > > > > > > > stayed home from work so he could bring him > over > > to > > > > the > > > > > > > next > > > > > > > > town > > > > > > > > > > > and > > > > > > > > > > > > meet the ultrasound doc and have it done in > > another > > > > > vet. > > > > > > > Any > > > > > > > > ways > > > > > > > > > > > he > > > > > > > > > > > > had a blockage ad we had to take him back to > our > > > vet > > > > > and > > > > > > > have > > > > > > > > > > > surgery > > > > > > > > > > > > done I think this threw me over the edge. > > > > > > > > > > > > > > > > > > > > > > > > Now I just feel very funny, I feel like my > airway > > > is > > > > > > > closing > > > > > > > > in > > > > > > > > > > on > > > > > > > > > > > > me. I feel dizzy, lightheaded, very sleepy and > > > tired. > > > > > but > > > > > > > > > > unable > > > > > > > > > > > to > > > > > > > > > > > > calm down or relax and when I talk to anyone I > > tend > > > > to > > > > > > get > > > > > > > > more > > > > > > > > > > > > worked up, so I found walking through the house > > > over > > > > > and > > > > > > > over > > > > > > > > is > > > > > > > > > > > > helping but I cant kick the feeling. The > > medication > > > > is > > > > > an > > > > > > > > > > > antibiotic > > > > > > > > > > > > and its name is: Avelox 400 mg take one a day. > > > > > > > > > > > > > > > > > > > > > > > > has anyone experienced anything like this? > > > > > > > > > > > > > > > > > > > > > > > > Thanks > > > > > > > > > > > > Sandie > > > > > > > > > > > > > > > > > > > > > > > > Ps. I am hoping some one is up late and on here > > > > because > > > > > > I am > > > > > > > > > > > scared! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment ? with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
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