Re: Migraines in kids w/CF

[Guest guest]

In a message dated 11/02/1999 1:17:30 PM Eastern Standard Time,

Circa1992@... writes:

<< Does anyone have a child with CF that also suffers with migraines? >>

my 15 year old does. she has had migraines since age 9. dr's just say

there's nothing they can find. i also have migraines.

marcie

[Guest guest]

In a message dated 11/02/1999 1:48:42 PM Eastern Standard Time,

Weiner.Janet@... writes:

<< Migraines have a close relationship to the menstrual cycle and usually get

better with menopause. >>

not so with me. menopause about 10 years ago. still get those stupid

migraines, they sometimes last 2- 3 days.

marcie

[Guest guest]

Hi Liz,

has had headaches on and off for most of her life. Sometimes they

can be pretty debilitating. She had sinus surgery at age 6, but I was never

sure that the sinuses were the cause, as she still got them afterward.

Since I have had them myself since I was at least 5 I have wondered if there

was a hereditary pattern to them? Of course I also wondered if 's had

anything to do with CF?

Anyway, my own experience, which I try to pass on to , is to be sure

to keep an even blood sugar, not missing any meals. Extreme heat in the

summer, and dehydration will start them too. As will stress. When they

happen to me I have to take out my contact lens or glasses, and rest in a

dark room. Food and sleep are the only things that will really stop them

once they get going. Of course food can be a problem, as they usually make

me nauseous too.

Hope it helps.

(Mother of , 10 wcf, and , 2 nocf)

Migraines in kids w/CF

> From: Circa1992@...

>

> I have a quick question for the group...

>

> Does anyone have a child with CF that also suffers with migraines?

My

> son , now almost 4 1/2, has been having migaines for the past 3 weeks

> and it absolutely kills me to see him in such pain! He had migarines once

> before, for a 1 week period last Dec. Naturally, we've tried to figure

out

> what could be causing them and we've come up with nothing. We went to

both

> the ENT and pedi neurologist earlier this year and thankfully they both

said

> that everything looks good, as in his sinuses are fine. I just hate that

> there is something else for to deal with (God how I wish I could

take

> them instead of him!) He has been so drained and fatigued since they

> started. I just heard from the pediatric neurologist's office, and they

are

> going to squeeze us in on Thursday (figures...already an incredibly busy

day:

> I'm driving for 's filed trip, a piece of furiture is being delivered

so

> I have to be home from 2-5 to let them in, and has sparring

class...his

> favorite!) Oy, and now a trip to the Doc!? Anyhow, I was just wondering

if

> anyone here had any input. Thanks in advance!

>

> Fondly,

> Liz {,7, & 's, 4 w/CF, mom}

>

> > This is a secular list.

>

> The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

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[Guest guest]

Janet doesn't have a fatty ass at all. She is just trying to join the club.

In fact, she somewhat resembles Bullock. I know for a fact she eats

salads for lunch and as we all know, from her postings, she loves yogurt.

[Guest guest]

Hi Meg,

You were asking if anyone had an opinion on Robin's going to school to tell

her daughter's class about the dx of cf. My very strong suggestion would be

to do this ONLY if it is ok with her daughter.

My daughter has VERY STRONG feelings about my talking with anyone about her

cf. When she was first diagnosed she was in first grade. She confided in

one of her best friends, who promptly told a bunch of other kids. To this

day will not speak to that original girl. It ruined their

friendship. Yes, it is true that word gets around among the kids, but

is comfortable with this. When kids come to our house and ask why

takes medicine at meals I tell them she cannot digest food without

the pills, which is entirely true. I leave the decision as to whether to

mention CF up to . Besides, how many kids would know what cf means? I

think that the teachers, or school staff, are the only ones who really NEED

to know, so I do meet with the teacher at the beginning of the school year

to discuss and educate. I think talking about the dx is a matter of

respecting your child's privacy, which even little ones have.

I believe that there are a few on this list with cf; do you have an opinion?

(mother of , 10 going on 30, wcf, and , the toddler terrorist)

Re: Migraines in kids w/CF

> From: MMolls@...

>

> My Maureen also complains of headaches she is 9yrs old she seems to get

them

> more frequently during the school year It might be dehydration that was

> something I never thought about.

>

> ROBIN.......Can't tell you how many times I too have heard those words " I

> wish I did not have to take all these pills or treatments " Breaks your

heart

> It seems to be easier this year, 4th grade, don't know why but it is

easier

> and less stressful with the kids. Has your daughter told the class about

the

> DX yet? I was wondering if it would be easier just to go in and explain

> everything. She would get less questions and feel more comfortable with

> everything anyone else have an opinion?

>

> ONE MORE THING........Maureen has been on Tobi since 10/15 and I see a

weight

> gain on her is it me or the Tobi?? Anyone else have this?

>

> Meg

> Mom of 2

> 9yowcf & 4yowocf

>

> > This is a secular list.

>

> The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

> ----------------------------------------

>

> If you know someone who would find cfparents useful, have them follow this

link: http://www.onelist.com/subscribe/cfparents

>

> ----------------------------------------

>

> Come chat at our webpage! http://members.tripod.com/cfparents/

>

> ----------------------------------------

>

>

>

[Guest guest]

Robin

Thanks for your reply. Maureen (9yrs old) is the one who wants to talk about

it to the class. She has an oral presentation to give to the class next week

it has to be on a " Collection " she has like dolls etc.. She said why don't I

do my collection of pills? I said let me talk to the teacher biggest problem

is that there is a time limit and how could you hope to give an explanation

to 27 4th graders with a time limit. I am still waiting to hear from the

teacher. At this point only teachers and admin and health office knows of

her diagnosis I did not wish to make it a big deal last year after we first

got the diagnosis because we did not know much about it or how it would

affect Moe. I still feel the less we make of it the better we are. I too

tell kids that Moe needs the enzymes when she eats in order to digest and

other than that we say she has asthma which is true too she does have mild

asthma so that explains the coughing and Dr appointments So far so good.

I'll let you know what the outcome of the presentation is

Meg

Mom to Moe