Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Thank you so much Eva. I have never heard of Rice Dream before. Next time I go to Walmart or HEB I'll see if they have it or if they don't maybe the health food store does in Waxahachie. I do the same as you do when I get out of the car. I have never gone to a chiropractor. Maybe he could help. It gets to where I can hardly walk. Joyce ============================================================================== I am writing back to Joyce McCrary who asked me what Rice Dream is. I am allergic to the protein in dairy products and soy does not agree with me also, as it irritates my bladder because of the interstitial cystitis that I have, so I buy Rice Dream which is Rice Milk. It tastes pretty good in my cereal. You can buy it in the cold section or on the shelf sometimes near the organic stuff in the regular supermarket. I also have low back pain and I regularly see my chiropractor who does adjustments and I get massage therapy there also. I make sure when I get in and out of my car that I sit down and swing in both feet to get in and when I get out of the car, I make sure I have both feet on the ground before I get out. I used to get in the car one foot first and it hurts my back terribly so. When I brush my teeth I also bend at the knees and that helps too, plus I do stretches that help also while lying on my back. Exercise does not seem to help with the rheumatoid arthritis pain in my wrists, shoulders, and ankles.. Eva W. ----- Original Message ----- From: Harold Van Tuyl Rheumatoid Arthritis Sent: Tuesday, August 31, 2004 7:41 PM Subject: Re: Glucosamine/chondroitin I got the same story from my RD that Nita got. I tried it for about a year and gave up because it didn't help (or hurt). God bless. ----- Original Message ----- From: Nita Rheumatoid Arthritis Sent: Tuesday, August 31, 2004 3:55 PM Subject: Glucosamine/chondroitin Joyce,I have a sister, who is 20 years my senior, and she has osteoarthritis. Because she takes glucosamine/chondroitin regularly per doctor instruction and it seems to help, I asked dh's rheumy about the drugs when we had our first consultation.He said, "It probably won't hurt you, but it's not likely to help your RA either."It isn't exactly inexpensive, even though the best price I know about is at Sam's Club, so dh is leaving it off.Just thought I'd share what the doc said.HTH :0),Nita> Eva,> What is Rice Dream? I drink milk in the mornings and hot cocoa at night.> I have extreme pain in my lower back. I'm pretty fortunate as I rarely have> pain in my joints. I have been taking Glucosoman for two years but it> doesn't do a thing for my back.........Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Eva- Just remember that you are NOT alone. We are always an email away. This is a shock and life changing diagnoses but it doesn't have to be the end. There are a lot of good days ahead of you. That is not to say there won't be an occasional bump in the road. But, we have all walked in those same shoes and it does get easier to understand. You have to go through all the stags of grief that you would with any traumatic situation. You'll get through it and what better comfort to know that any question you have can get answered here from people whom have walked the walked. I was diagnosed at 33 with 3 children at the time of 9, 7, 5. Scary thing. And not to mention that my diagnosing doctor gave me 3-5 years to live. I am entering my 3rd year now and I know from the group and a CML specialist that I see now, that I will most likely live a normal life span and my CML will be treated with long term medications such as with heart disease or diabetes. Welcome to the group and hopefully you will find comfort with your new friends here. Sincerest wishes- Hugs and Hope- 35 CML 5/13/05 Gleevec 800mg until 8/07 Spyrcel 100 mg since 9/07 Wife and mother of 3 (12,9,7) # 907 in Zavie's Zero Club **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Thankyou sooo much. Talk to you soon. Eva @...: vegasrnjen@...: Sun, 9 Mar 2008 21:36:24 -0400Subject: Re: [ ] Eva Eva-Just remember that you are NOT alone. We are always an email away. This is a shock and life changing diagnoses but it doesn't have to be the end. There are a lot of good days ahead of you. That is not to say there won't be an occasional bump in the road. But, we have all walked in those same shoes and it does get easier to understand. You have to go through all the stags of grief that you would with any traumatic situation. You'll get through it and what better comfort to know that any question you have can get answered here from people whom have walked the walked.I was diagnosed at 33 with 3 children at the time of 9, 7, 5. Scary thing. And not to mention that my diagnosing doctor gave me 3-5 years to live. I am entering my 3rd year now and I know from the group and a CML specialist that I see now, that I will most likely live a normal life span and my CML will be treated with long term medications such as with heart disease or diabetes.Welcome to the group and hopefully you will find comfort with your new friends here.Sincerest wishes- Hugs and Hope- 35CML 5/13/05Gleevec 800mg until 8/07Spyrcel 100 mg since 9/07Wife and mother of 3 (12,9,7)# 907 in Zavie's Zero Club**************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)[Non-text portions of this message have been removed] _________________________________________________________________ Create a handy button so your friends can add U to their buddy list. Try it now! http://g.msn.ca/ca55/211 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 tahnkx for the update eva glad you were able to survive the visit the bug warrior will have to interpret the numbers i'm totally duh about numbers too. glad you made it through lov aliza yaffa **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hi Eva, The fact that your white count hasn't moved in 3 weeks is really great and tends to indicate that your disease is slow moving (not aggressive). Your Hgb and Hct are pretty low but not low enough to get any of the red cell booster drugs. Your MCV (I assume the W was a typo), is a measurement of your red blood cells, as is the RDW. I've never seen RDW counts expressed with 4 digits before so I'll assume that a count of 1405 would be the same as 14.05 for other labs. If so, this count is normal. Your platelet count (blood cells that help your blood clot) is normal as is their size which is reflected in the MPV. The Hydrea and Allopurinol are standard for early treatment but when your white count gets down to near normal levels, you'll probably stop those drugs. Lorazepam is for anxiety. The fact that they are watching you every week is a very good thing and standard for this period of time. When you become more stable, those blood draws and appointments will space out. All in all, it looks like you're doing great and you seem to be in good hands as well. You're now well on your way to the Zero Club By the way, PCR's should be done every 3 months but they're much more useful once you reach CCR (when your BMB comes back at zero). Take care, Tracey > > > That wasn't quite as scary as I expected. I am seeing a Dr. Stakiw who trained under Dr. Lipton at Princess Margaret Hospital in Toronto. > My numbers are LKCS-231.0 > HGB-100 > HCT-0.304 > MCW-99.0 > RDW-1405 > PLT-371 > MPV-7.7 > What all this means I do not know other than my white cell count is the same as 3 weeks ago . I am being started on 400 Mg Gleevec > Hydrea, alloprins and lorazapam. > I have to go back every week for the next four weeks and we will see how it goes. I also have to go to a chemo information meeting next Friday from 2-4. Thanks for all the hugs and support Eva Brown > > > @...: evaob365@...: Wed, 19 Mar 2008 06:31:05 -0400Subject: RE: [ ] Eva > > > > > Thanks Sharon. Eva Brown@...: onthewtr@...: Tue, 18 Mar 2008 19:12:31 -0700Subject: RE: [ ] EvaHug hug hug hug to EvaSharon_____ From: [mailto: ] On Behalf Of evabrownSent: Tuesday, March 18, 2008 6:19 PM@...: RE: [ ] EvaThanks Rhonda, My girlfriend is going with me and she is taking a notebook.Thanks for the hugs, I needed that. Eva Browngroups (DOT) <mailto:% 40From> comFrom:Sionitoaol (DOT) <mailto:Sionito% 40aol.comDate> comDate: Tue, 18 Mar 200820:18:10 -0400Subject: RE: [ ] EvaHey Eva,Good luck and big hugs for tomorrow.Zavie is right (as always) aboutthe tape recorder because the information is flowing so fast and your brainmay still be on 'stunned'.? At least I was!? ? Another suggestion is to havea friend/family go with you and ask them to take notes so you can listen tothe doc and look him (or her) in the eyes while they are answering.? Then atleast you have the notes to check later.?Ask for the doc, or the assistant'semail so you can ask more questions later.? ?Breathe and think calmthoughts.We are with you in spirit!Blessings,Rhondadx nov 2007?[Non-textportions of this message have been removed] __________________________________________________________At a loss for words? Find them by playing Seekadoo! Play now!http://g.msn. <http://g.msn.ca/ca55/208> ca/ca55/208[Non-text portions of this message have been removed][Non-text portions of this message have been removed] __________________________________________________________Create a handy button so your friends can add U to their buddy list. Try it now!http://g.msn.ca/ca55/211[Non-text portions of this message have been removed] > > > > > > > _________________________________________________________________ > Your chance to win great prizes with Windows Live Mail and MobileMail. Click here to learn how. > http://g.msn.ca/ca55/207 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 _________________________________________________________________ Enter the Hunt & you could win a 2008 Eclipse Spyder! Click here to enter! http://g.msn.ca/ca55/213 Quote Link to comment Share on other sites More sharing options...
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