Re: Peyronie's disease: Colchicine vs. Colchicine plus vitamin E

[Guest guest]

There is a piece on Peyronie’s

Disease at http://prostatecancerinfolink.net/2010/06/17/peyronies-disease-after-rp-incidence-and-predictors/

and I have recently updated my page on the subject – at http://www.yananow.net/Peyronies.htm

The incidence of the disease appears to be

much higher than original estimates – possibly because few men talk about

it possibly because they are told the condition is ‘rare’ and

they assume there is no one else with the problem.

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of B

Sent: Monday, 21 June 2010 11:11

PM

To:

malemedicalproblems ; malemedicalproblemsgooglegroups; ProstateCancerSupport

Subject:

Peyronie's disease: Colchicine vs. Colchicine plus vitamin E

Oral conservative treatment with CCVE

failed to show statistically significant differences in efficacy in pain

relief, penile curvature or plaque size against CCM in this study. However,

there is slight evidence of a positive prognostic effect on the conservative

treatment when history of previous unsuccessful PD treatment was recorded, this

was statistically significant in the CCVE group, supporting the theory of a

combined treatment. A randomized double blind placebo controlled study with a

sample size calculation should be performed to confirm results....

Click on the below link for the full story:

<http://www.urotoday.com/3351/browse_categories/peyronies_disease/conservative_treatment_of_peyronies_disease_colchicine_vs_colchicine_plus_vitamin_e__abstract06212010.html>

You're welcome to browse within the above medical web site,

but you'll be requested to register, which you can safely do.

Non-doctors are welcome and there's never any spam.

[Guest guest]

Terry,

What were you diagnosed with ? " Still going strong " I am curious.

For your information. I had metastatic disease in 1996 with lymph node and

seminal vesicle involvement right from the start. My PSA was > 50 ng/ml which

made me demand a biopsy and some kind of treatment. B. 1947: Dx at the age of

49. The urologists thought I was some kind of pretender .. or too far gone to be

of any help. They indicated RT after many months of banging on doors. I demanded

RP and got it. It was the right decision. In the UK alone about 800 men below

the age of retirement die of advanced prostate cancer every year. Possibly

because they, or someone looking after them / advising them, who should have

known better, was a bit too complacent.

You can afford to be conservative if you have minimal disease. If your have

significant and well advanced disease as I did, it was a wake-up call for

everyone, including me. After finding out the extent of my disease, and learning

of my prognosis " Two years .. Five if you are lucky " (quote from kindly

urologist) I was frightened. Because I was very frightened, I became

enlightened. This enlightenment, more like an epiphany really, changed the way I

saw the world. Without it I would have perished within the allotted time.

Anyhow, to cut (sic) a long story short, my surgeon had to cut out some of my

bowel to remove diseased tissue and that left me " incompetant " for a while to

say the least! I feel a lot more confident and indeed " competant " now, after

surviving 14 years against the odds.

I feel I have a right to blow my trumpet. Tell the world (at least that small

portion of the world willing to listen) about my experience, and my

interpretation of the events leading to my survival. I am not looking to educate

or illuminate -- I am just looking for meaningful feedback. I figure there are a

few guys out there with a similar background to mine, with the same fighting

spirit, and the same no-nonsense outlook.

This is a long distance call: If we can get together and exchange notes maybe we

can achieve what 70+ years of medical research has failed to do. Namely, find an

effective treatment for advanced prostate cancer that does not involve

castration, and all the nasty, unmanly things that go with this awful treatment.

A spin-off might be saving some of those 800 or so lives (just in the UK) every

year from needlessly going under to this disease.

So, if you are out there guys, this is where to home in:-

www.FitCare.org.uk/epidemic/

... we can link up from there.

Sam.

>

> There is a piece on Peyronie's Disease at

> http://prostatecancerinfolink.net/2010/06/17/peyronies-disease-after-rp-inci

> dence-and-predictors/ and I have recently updated my page on the subject -

> at http://www.yananow.net/Peyronies.htm

>

>

>

> The incidence of the disease appears to be much higher than original

> estimates - possibly because few men talk about it possibly because they are

> told the condition is 'rare' and they assume there is no one else with the

> problem.

>

>

>

> All the best

>

> Prostate men need enlightening, not frightening

>

> Terry Herbert - diagnosed in 1996 and still going strong

>

> Read A Strange Place for unbiased information at

<snip>