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Babs,

YYYEEEESSS, I do love puppy breath!!!

Gingerbread Judy,

Thanks for the priceless mental image of you

in a pile of cookies and crumbs. Hey, whatever

it takes to get some sleep!

P,

You're at 8.5L, but do you get to turn that down

a bit when you're sitting? If so, the Companion

will last longer. Mine's at 10-15 when I'm walking

or moving around, but I normally turn it down to

4-6 when I'm seated. If I'm not walking around

a museum or shopping, the Companion will

usually last me 1.5 -2 hours. You'll learn more

about how long yours will last with your lifestyle

as you go along. Just don't put too much trust

in the fish-scale type gauge on the Companion

that measures how much 02 is left - it isn't

very accurate, and it's better to fill a little earlier

than you think you need than to run out and

get in a pickle.

This is important: if you have a Companion on a

high flow at the end of its usage time (and it

doesn't take that long), the tubing tends to freeze

to the portable. Because of this, ALWAYS carry an

extra cannula, because when this happens, you

won't be able to get the tubing off the tank until

it thaws out. Twice I've actually broken off the

tip of frozen tubing trying to pull it off.

If you fill a Companion in the morning, you won't

get much evaporation if you want to use it later

in the day. (I actually think the Marathons bleed out

more quickly. They also take longer to fill, which I

think is weird.) But if you wait until the next day,

you'll need to top it off again. As Bruce said,

it's best to fill around 30 minutes before you

use it, leaving it sitting on an open counter or

somewhere besides an enclosed bag while it settles.

After it's used and empty, the inside of it will be

frosty, and it will puddle up wherever you leave

it. So unless it's near a sink, it's good to set it

on a small towel or bag.

Hope this helps.

Joyce,

I have the same frustrations as you with getting

the high flow humidifiers to fit on airtight so the

02 will flow. They're maddening!!!!!!! I also have

to put doubled-over handtowels between the

humidifiers and the reservoirs (I have 2 Y'd together)

in order to get them not to make a spitting noise

when they're set on anything higher than 6.

As to your other point, when a portable stops filling

halfway through, it's usually because you aren't

pushing down hard enough. When it freezes to

the mother ship or spews out the bottom, it's

typically because you have overfilled it. You

have to be ridiculously attuned to recognizing

the noise it makes when it's time to yank it off the

reservoir. grrrrrrrrrrrrr. It does seem like there's

a conspiracy against us.

Hugs,

Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas

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Gwynne,

Thanks so much for the information. I believe it could be made easier!

I do appreciate you.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Babs,> YYYEEEESSS, I do love puppy breath!!!> > Gingerbread Judy,> Thanks for the priceless mental image of you> in a pile of cookies and crumbs. Hey, whatever> it takes to get some sleep!> > P,> You're at 8.5L, but do you get to turn that down> a bit when you're sitting? If so, the Companion> will last longer. Mine's at 10-15 when I'm walking> or moving around, but I normally turn it down to> 4-6 when I'm seated. If I'm not walking around> a museum or shopping, the Companion will> usually last me 1.5 -2 hours. You'll learn more> about how long yours will last with your lifestyle> as you go along. Just don't put too much trust> in the fish-scale type gauge on the Companion> that measures how much 02 is left - it isn't> very accurate, and it's better to fill a little earlier> than you think you need than to run out and> get in a pickle.> This is important: if you have a Companion on a> high flow at the end of its usage time (and it> doesn't take that long), the tubing tends to freeze> to the portable. Because of this, ALWAYS carry an> extra cannula, because when this happens, you> won't be able to get the tubing off the tank until> it thaws out. Twice I've actually broken off the> tip of frozen tubing trying to pull it off.> > If you fill a Companion in the morning, you won't> get much evaporation if you want to use it later> in the day. (I actually think the Marathons bleed out> more quickly. They also take longer to fill, which I> think is weird.) But if you wait until the next day,> you'll need to top it off again. As Bruce said,> it's best to fill around 30 minutes before you> use it, leaving it sitting on an open counter or> somewhere besides an enclosed bag while it settles.> After it's used and empty, the inside of it will be> frosty, and it will puddle up wherever you leave> it. So unless it's near a sink, it's good to set it> on a small towel or bag.> Hope this helps.> > Joyce,> I have the same frustrations as you with getting> the high flow humidifiers to fit on airtight so the> 02 will flow. They're maddening!!!!!!! I also have> to put doubled-over handtowels between the> humidifiers and the reservoirs (I have 2 Y'd together)> in order to get them not to make a spitting noise> when they're set on anything higher than 6.> As to your other point, when a portable stops filling> halfway through, it's usually because you aren't> pushing down hard enough. When it freezes to> the mother ship or spews out the bottom, it's> typically because you have overfilled it. You> have to be ridiculously attuned to recognizing> the noise it makes when it's time to yank it off the> reservoir. grrrrrrrrrrrrr. It does seem like there's> a conspiracy against us.> > Hugs,> Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas>

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