Re: New poll for Breathe-Support

[Guest guest]

So far I would say the poll results are a rather strong condemnation.

The doctors " just don't get it. " Treat the human, not the disease.

Take the oath you took seriously...all of it.

I hope everyone participates as this poll is one that I would love to

see everyone's response. I may even write down the results and carry

them with me to some pulmonologists or at least to my primary for him

to share with some colleagues.

Let's see.....you've got a terminal disease. I might give you some

drugs. You might get a transplant. Ok, I've done my job of diagnosis.

Next.

Some think their job ended with diagnosis. Do they realize they are

treating us like our life ended there too? Well, mine didn't. It's

full and vital thanks to me finding a place to get help. Here and my

counselor.

>

> I took the poll . Wish there had been yes/no options.

> None of the posted questions could be answered yes by me...

> Now HERE is a real opportunity! Get brochures from Leanne and

plaster hospitals and Dr. offices with them. Leave them 'wherever'!

Word will get out.

>

> Speaking of which, Leanne, I need more brochures....thanks

> Mama-Sher, 69; IPF, 3-06, OR.

> Don't fret about tomorrow, God is already there!

> New poll for Breathe-Support

>

>

>

> Enter your vote today! A new poll has been created for the

> Breathe-Support group:

>

> What were you told by your pulmonologists to help you live with

your disease?

>

> Select as many of the following as are true. You may select

multiple answers.

>

> o I was told about this or another online support group by my

doctor.

> o I was told about PFF or CPF by my doctor.

> o I was told places to go online for additional information by my

doctor.

> o I was given literature about the disease by my doctor.

> o I was told about a local PF support group by my doctor (not

general Lung) by my doctor.

> o I was given information about how to live with PF by my doctor.

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/Breathe-Support/surveys?id=1979905

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo!

Groups

> web site listed above.

>

> Thanks!

>