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Claire

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I am sorry that you had to find the group under these conditions

but so glad you found us, we welcome you with open arms. Private

person or not these diseases are just to much to bare by yourself, to

many unanswered questions and no one seems to really understand you or

your feelings, accept right here in this group because everyone is

relatively going through the same thing.

I think you said you were married, does your husband know about this

disease? Does he know how serious this is and does he support you?

And dont cause anymore damage to your body then the diseases are

already causing take your O2 your body needs it to survive.

Sandie

>

> Hi, am new at this. i was diagnosed with pf 1 year ago, also

emphzema. has not progressed much as of July. Don't really know what to

expect. don't really like doc. I am supposed to use oxygen at 2 for

exercise and I have resisted but i feel I need to. going to mailbox or

up stairs my level goes to about 77-78. I guess that is not good.

considering moving downstairs to den but feel like i am giving in. Know

I am rambling but not sure what to ask. Is progression very individual?

Glad for some answers.

>

> ---------------------------------

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