Re: I need to vent & question

[Guest guest]

,

I'm sorry to hear that Lizzy needed to have the tenotomy done again. I have

heard of it, but don't know anyone who has had to have it done twice. You

will be done with the casts in no time and it will be behind you. I know it's

easy for me to say since we didn't have to go back into casts, but you will

get through this.

kson wrote:

> Hello Everyone,

> I was wondering if anyone or if you have heard of any child

> having to go throught he tenonomy twice? had to have the

> right foot done again. I am so upset that they had to do that. I

> brought her to Iowa City to have the casts removed because her feet

> were getting too big and her feet were looking kinda on the blue

> side. They took them off and the resident sent me to the " brace

> shop " for the DBB. Well, her right foot kept slipping so I emailed

> Dr. Ponseti. He told me today that she should have had another cast

> put on instead of the shoes. ARRRGH! Poor Lizzy has to be in casts

> now for another 3 weeks. Just when I got so used to and loving giving

> her a bath on a daily basis. We were so close, why why why! People

> say thank God it happened now and not later, but I'm not looking at

> it that way! I thought I got rid of those casts! Now I gotta look

> at them for another 3 weeks and give sponge baths. Thanks for

> letting me vent!

>

>

> ------------------------------------------------------------------------

>

> ------------------------------------------------------------------------

>

[Guest guest]

Yes, I have heard that some doctors have suggested it and although

I don't know if Dr. Ponseti ever had it happen, I did ask Dr. Colburn

about this. (Dr. Colburn is a Ponseti method doctor here at our site)

Dr. Colburn said he could see how it could happen. If I can relate

what he said, I believe he said that during the tenotomy, it is possible

to nick the achilles giving the appearance/feel of a 'complete severing'

when

in fact, it has only partially been cut. He seemed to think that,especially

with a doctor NEW to the Ponseti method, that inexperience with performing

tenotomies could certainly make it possible for the tenotomy to be

incomplete.

I don't know who exactly did the tenotomy in Iowa, but I suppose, since it

is a teaching hospital, that a resident assisted in the proceedure and

maybe it was not a complete tenotomy. Of course that is a LARGE assumption,

and I don't want to imply that that is what happened. Only that it is one

of many possibilities.

There are probably many reasons why another tenotomy may be needed.

Of course, I really don't know what the reason is in 's case, it

may NOT be that the tenotomy was only partially done. I suppose it could

be from a very tight achilles or something, but I do think having to redo

a tenotomy is not all that common. But if her foot is not dorsiflexing

well, it seems that this is the normal course of action that they would

take and certainly least invasive.

That had to be some depressing news regardless of why/how. Hopefully the

3 weeks will pass by quickly and you will be back to the regular routine

of happy bathtime soon.

Have they already done the tenotomy? If not, when is it scheduled?

Lori

> I need to vent & question

>

>

> Hello Everyone,

> I was wondering if anyone or if you have heard of any child

> having to go throught he tenonomy twice? had to have the

> right foot done again. I am so upset that they had to do that. I

> brought her to Iowa City to have the casts removed because her feet

> were getting too big and her feet were looking kinda on the blue

> side. They took them off and the resident sent me to the " brace

> shop " for the DBB. Well, her right foot kept slipping so I emailed

> Dr. Ponseti. He told me today that she should have had another cast

> put on instead of the shoes. ARRRGH! Poor Lizzy has to be in casts

> now for another 3 weeks. Just when I got so used to and loving giving

> her a bath on a daily basis. We were so close, why why why! People

> say thank God it happened now and not later, but I'm not looking at

> it that way! I thought I got rid of those casts! Now I gotta look

> at them for another 3 weeks and give sponge baths. Thanks for

> letting me vent!

>

>

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> http://click./1/4054/3/_/675489/_/958447966/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Hello and Lizzy,

I have herd of the tenonomy being done twice. At once we were told that Ivy

would have to have another tenonomy and were fully prepared for that. Ivy

had a tenonomy done at three months by an " non Ponseti " Dr. We switched to

Dr. Ponseti when Ivy was five months old. She had on 18 casts all together.

(Only three of those done by Dr. Ponseti)

I can also fully empathize with the disappointment and discouragement that

you feel about Lizzy's foot. We too have gone through a " relapse " ; You

think that you are done with the casting but things are just not " right "

Some positive points about this though are, one that Lizzy is still able to

be corrected without surgery. Secondly, three weeks of cast is better than

three months which would be close to what she would have to be in if she was

to have a surgery. Thirdly, Lizzy will not remember this... Mom always will

but she won't.

I truly am sorry for you and Lizzy. However when the cast come off after

this next three weeks it will be a time to rejoice over those free feet!

Sorry you are back to sponging.

Best Wishes and prayers,

Sara and Ivy 8/17/99

> Hello Everyone,

> I was wondering if anyone or if you have heard of any child

> having to go throught he tenonomy twice? had to have the

> right foot done again. I am so upset that they had to do that. I

> brought her to Iowa City to have the casts removed because her feet

> were getting too big and her feet were looking kinda on the blue

> side. They took them off and the resident sent me to the " brace

> shop " for the DBB. Well, her right foot kept slipping so I emailed

> Dr. Ponseti. He told me today that she should have had another cast

> put on instead of the shoes. ARRRGH! Poor Lizzy has to be in casts

> now for another 3 weeks. Just when I got so used to and loving giving

> her a bath on a daily basis. We were so close, why why why! People

> say thank God it happened now and not later, but I'm not looking at

> it that way! I thought I got rid of those casts! Now I gotta look

> at them for another 3 weeks and give sponge baths. Thanks for

> letting me vent!

>

>

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> http://click./1/4054/3/_/675489/_/958447966/

> ------------------------------------------------------------------------

>

>

[Guest guest]

,

Christian did not need the tenotomy twice, but initially we thought he

was not going to need the tenotomy at all. We were working to stretch

the achilles through casting but because the achilles was too tight his

midfoot began to over-correct (the beginnings of a rocker bottom). So

not only did we need the tenotomy but we had to allow the

over-correction to release before proceeding with the tenotomy. This

meant extra trips to land and the huge disappointment of thinking we

were almost done when in fact we were far from finished. I understand

what you are feeling. It is very frustrating, at one point I even went

through some feelings of whether I made the right choice of treatment,

was this going to be worth it...etc.. I had a few good cries and tried

to find something positive. (In this case we made arrangements for Ed to

accompany me when Christian had the tenotomy, with just the three of us

minus the two older sisters it was like a big " date " . We don't get out

much!) It was a set back, but we got through it and we are very pleased

with the results. Have faith, ask questions if you have them, and try

to keep in mind that in the big picture an extra three weeks isn't so

bad. Although when you're facing it does seem like an eternity!

Dr. H also practices in a teaching hospital and it is unnerving to think

that a resident could be performing their first tenotomy on your child.

Dr. H allowed residents to watch, and help hold, but in our case he did

all the manipulations and castings and the tenotomy himself. Every Dr.

has to do their first casting, their first tenotomy etc.. I also worked

in a teaching hospital as a secretary in an ICU, and know that residents

are well supervised by senior residents and attending physicians. This

is a difficult issue though.

Anyway, , good luck, and you'll be giving those real baths again

before you know it!

Donna B.

kson wrote:

>

> Hello Everyone,

> I was wondering if anyone or if you have heard of any child

> having to go throught he tenonomy twice? had to have the

> right foot done again. I am so upset that they had to do that. I

> brought her to Iowa City to have the casts removed because her feet

> were getting too big and her feet were looking kinda on the blue

> side. They took them off and the resident sent me to the " brace

> shop " for the DBB. Well, her right foot kept slipping so I emailed

> Dr. Ponseti. He told me today that she should have had another cast

> put on instead of the shoes. ARRRGH! Poor Lizzy has to be in casts

> now for another 3 weeks. Just when I got so used to and loving giving

> her a bath on a daily basis. We were so close, why why why! People

> say thank God it happened now and not later, but I'm not looking at

> it that way! I thought I got rid of those casts! Now I gotta look

> at them for another 3 weeks and give sponge baths. Thanks for

> letting me vent!

>

>

> ------------------------------------------------------------------------

> Best friends, most artistic, class clown Find 'em here:

> http://click./1/4054/3/_/675489/_/958447966/

> ------------------------------------------------------------------------

>

>

[Guest guest]

We were in Iowa City Yesterday the 15th. Dr Ponseti did it right away. Dr

Ponseti told me that when I brought her down 2 weeks ago with concerns that

her feet were a little cramped in her casts, they removed the casts and put

her in the DBB. Dr P said they should have put another cast on. I don't

know, kinda upsets me that they only sent a resident to check on her and not

Dr weinstein. Sure hope the next 3 weeks fly by! Thank you for all the

encouragement.

[Guest guest]

,

I'm sorry to hear that Lizzy had to have another tenotomy. That would

be very frustrating! Here's a thought, though... Rose was casted until

she was 7 months old! Many kids who end up with regular surgery can be

casted for longer than that. It is very frustrating, though, when things

don't go the way they're supposed to. I hope this 3 weeks flies by for

you and Lizzy. Take care.

JOy

http://community.webtv.net/joybelle15/ROSESCLUBFOOTPAGE