Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 Sara, Maybe orthothics (sp) would help your feet, your orthro or other doc should be able to mold them to your boots instead of some other shoe that is normally used. Might be worth a try. I have problems with the top of my feet. At times they hurt to the point I can't stand for anything to touch them. It's weird because I get this terrible burning sensation. You said you are on Aristocort, what is this? I've never heard of it? I'm currently on Enbrel (just did my 4th shot this am), Arava and of course the dreaded prednisone. I'm hoping the Enbrel will be the miracle for me that it has been for so many others. Take care. Tery Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 Sara, The cost to the insurance company should not be a concern of your doctors. Getting the RA under control is most important, and finding what drug helps you. It must be really hard to work all day in boots that hurt. Do you have any alternatives to wearing them? a ----- Original Message ----- From: <sanfran867@...> < onelist> Sent: Monday, March 13, 2000 2:41 PM Subject: [ ] RA > From: sanfran867@... > > I am 46 yrs old and have had RA for 2yrs. I am going through the > guinea pig stage of treatment. Aristocort is what I am on now. Have > been on so many other drugs I've forgotten their names. How right > that doctors are reluctant to give the newer drugs because of the > cost to insurance companies. > I have a job that requires me to be on my feet 12 hours a day in > steel toe boots. My doctor says I am lucky because my RA travels. > It does not stay in one place long enough to cause joint disfigurment. > All i know is I hurt at the end of the day. My feet are the area > that RA visits most often. But I get by. > The information that I am getting from this group enables me to be a > participant not a guinea pig anymore in my treatment. > Thank You all. Sara > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/937/3/_/478567/_/952978161/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 Sara, My son was born with a club foot and the JRA has caused problems for that foot so i took him to orthitics and the molded a AFO brace for him with some padding in it for the pressure points. He complains of lots of pain and burning is parts of his foot. Walking can increase this pain and burning. The AFO fits around his foot and inserts into his shoe he also has a larger AFO that the smaller one fits into for more support because that leg is weaker then the other and both fit into the shoe and also have a lift on it because his leg is 1/2 inch shorter. Don't know if any of this would be a help to you but maybe it might. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 No I sure wish I did. The steel toed boots are required safety wear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Thank you all for the very helpful info. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Sara, Welcome to the list. I am glad you found us. If we have knowledge as patients we have more control over the disease and that is good for anyone. 12 hours on your feet - i hurt just reading about it. Pat At 07:41 PM 03/13/2000 +0000, you wrote: >From: sanfran867@... > >I am 46 yrs old and have had RA for 2yrs. I am going through the >guinea pig stage of treatment. Aristocort is what I am on now. Have >been on so many other drugs I've forgotten their names. How right >that doctors are reluctant to give the newer drugs because of the >cost to insurance companies. > I have a job that requires me to be on my feet 12 hours a day in >steel toe boots. My doctor says I am lucky because my RA travels. >It does not stay in one place long enough to cause joint disfigurment. >All i know is I hurt at the end of the day. My feet are the area >that RA visits most often. But I get by. >The information that I am getting from this group enables me to be a >participant not a guinea pig anymore in my treatment. > Thank You all. Sara > > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >1/937/3/_/478567/_/952978161/ >------------------------------------------------------------------------ > >URL to change your membership options: /group/ >RA-support website: http://www.rasupport.webprovider.com/ >Our chat room: www.delphi.com/RheumatoidArth1/start Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 A very warm welcome to you Sara ----- Original Message ----- From: <sanfran867@...> < onelist> Sent: Monday, March 13, 2000 2:41 PM Subject: [ ] RA > From: sanfran867@... > > I am 46 yrs old and have had RA for 2yrs. I am going through the > guinea pig stage of treatment. Aristocort is what I am on now. Have > been on so many other drugs I've forgotten their names. How right > that doctors are reluctant to give the newer drugs because of the > cost to insurance companies. > I have a job that requires me to be on my feet 12 hours a day in > steel toe boots. My doctor says I am lucky because my RA travels. > It does not stay in one place long enough to cause joint disfigurment. > All i know is I hurt at the end of the day. My feet are the area > that RA visits most often. But I get by. > The information that I am getting from this group enables me to be a > participant not a guinea pig anymore in my treatment. > Thank You all. Sara > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/937/3/_/478567/_/952978161/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 my husband john is 38 and has ra along with type 1 diabetes (insulin dep) and neuropathy he is home now on a med leave because the ra is so bad the dr has him on 8 methotrexates(weekly),20 mg predisone(daily)and right now a mix of viccodin and percocete for pain and he's waiting for approval on humira.has any one ever used this?how long?hows your lifestyle been since? right now hes ALWAYS tired sleeps alot and seems to be in depression because he cant do something as simple as open a soda bottle .hes only 38 and he says he feels like hes 90 does anyone have any tips?? advice??? it would be greatly appreciated my name is steph by the way!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 What are your symtoms??? Have you noticed any change since youv'e been on the medicine? Ronniebgw8490 <bgw8490@...> wrote: I have RA and fibromyalgia. I was finally diagnosed about 8 months ago. I have been on Enbrel shots for about 6 weeks now. Along with 20 mg prednisone a day. I don't know if the symptoms I have been experiencing lately is from RA or fibromyalgia. Anyone up tonight? Quote Link to comment Share on other sites More sharing options...
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