Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 My doctor called twice today. My hunch was right. I have developed Pulmonary Hypertension. I only began having symptoms in August, but he is telling me that it is severe. He is going to admit me to the hospital to do a heart cath and some other tests. Will also test new medication for the PH while I am there. He is going to call back with details. Not sure when. When I hung up, I had forgotten most of what he said. I can not tell you how much I don't want to do another cath or have any more needles. Just so tired of the pain. But, I will of course go meekly. I will let you know when I know. Bed saga still unfolding. I can hardly walk today, my back is out. I talked to the regional mgr. again today and agreed to try the air mattress .... she said I can always turn it back in. I have my twins here today. So much fun. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Bruce, I just sat here and read the entire Irene saga...what a mess!!! I hope she gets to at least stay over night to get some very needed rest from the turmoil they have put her through! Please tell her that we have her in our thoughts! Thank you for being there for her. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Joyce wrote: My doctor called twice today. My hunch was right. I have developed Pulmonary Hypertension. I only began having symptoms in August, but he is telling me that it is severe. He is going to admit me to the hospital to do a heart cath and some other tests. Will also test new medication for the PH while I am there. He is going to call back with details. Not sure when. When I hung up, I had forgotten most of what he said. I can not tell you how much I don't want to do another cath or have any more needles. Just so tired of the pain. But, I will of course go meekly. I will let you know when I know. Bed saga still unfolding. I can hardly walk today, my back is out. I talked to the regional mgr. again today and agreed to try the air mattress .... she said I can always turn it back in. I have my twins here today. So much fun. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.14/1247 - Release Date: 1/28/2008 10:59 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Joyce, I just don't hardly know what to say other than I love you and am so Very Very sorry you have more to bear.Please know you are not alone and that we will all be thinking of you and praying for you. I do wish someone could let us know how you do with your tests. I know they will keep you a few days.Take heart my sister friend. Jesus loves you. Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Well, at least the twins.....did you get oxygen? I know there is nothing we can do to help with the pain you're going through, so just want you to know you are always on our minds. > > > My doctor called twice today. My hunch was right. I have developed > Pulmonary Hypertension. I only began having symptoms in August, but he > is telling me that it is severe. He is going to admit me to the > hospital to do a heart cath and some other tests. Will also test new > medication for the PH while I am there. He is going to call back with > details. Not sure when. When I hung up, I had forgotten most of what > he said. > > I can not tell you how much I don't want to do another cath or have any > more needles. Just so tired of the pain. But, I will of course go > meekly. I will let you know when I know. > > Bed saga still unfolding. I can hardly walk today, my back is out. I > talked to the regional mgr. again today and agreed to try the air > mattress .... she said I can always turn it back in. > > I have my twins here today. So much fun. > > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Any word from the little one yet? Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Little one? > > Any word from the little one yet? > > > Love and Prayers, Peggy > ipf 6/04 > > Worry looks around. > Sorry looks back, > Faith looks up. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Dearest Queen Huggy Joyce, I'm so sorry your hunch was right....why on earth weren't you being monitored closely for this from the start. PH is a known development for ALL PF sufferers????? We'll all be thinking of you in the 'Big House' & hope it isn't too horrible an experience. Lots of love & hugs, in Oz >> > My doctor called twice today. My hunch was right. I have developed> Pulmonary Hypertension. I only began having symptoms in August, but he> is telling me that it is severe. He is going to admit me to the> hospital to do a heart cath and some other tests. Will also test new> medication for the PH while I am there. He is going to call back with> details. Not sure when. When I hung up, I had forgotten most of what> he said.> > I can not tell you how much I don't want to do another cath or have any> more needles. Just so tired of the pain. But, I will of course go> meekly. I will let you know when I know.> > Bed saga still unfolding. I can hardly walk today, my back is out. I> talked to the regional mgr. again today and agreed to try the air> mattress .... she said I can always turn it back in.> > I have my twins here today. So much fun.> > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> 2 COR. 12:10 ....when I am weak, then I am strong.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Joyce, you were right in your own diagnosis, and I must agree with and wonder why they didn't monitor for this earlier? Just makes me furious! I hate that you're having to endure all of this. One dang thing after another. Let us know when the tests will be done. I will be praying for you, very, very hard! Big Texas Hugs! Babs > > > My doctor called twice today. My hunch was right. I have developed > Pulmonary Hypertension. I only began having symptoms in August, but he > is telling me that it is severe. He is going to admit me to the > hospital to do a heart cath and some other tests. Will also test new > medication for the PH while I am there. He is going to call back with > details. Not sure when. When I hung up, I had forgotten most of what > he said. > > I can not tell you how much I don't want to do another cath or have any > more needles. Just so tired of the pain. But, I will of course go > meekly. I will let you know when I know. > > Bed saga still unfolding. I can hardly walk today, my back is out. I > talked to the regional mgr. again today and agreed to try the air > mattress .... she said I can always turn it back in. > > I have my twins here today. So much fun. > > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Oh Joyce, I'm so sorry to hear this. Much love and strength to you Love Ze xx>> > My doctor called twice today. My hunch was right. I have developed> Pulmonary Hypertension. I only began having symptoms in August, but he> is telling me that it is severe. He is going to admit me to the> hospital to do a heart cath and some other tests. Will also test new> medication for the PH while I am there. He is going to call back with> details. Not sure when. When I hung up, I had forgotten most of what> he said.> > I can not tell you how much I don't want to do another cath or have any> more needles. Just so tired of the pain. But, I will of course go> meekly. I will let you know when I know.> > Bed saga still unfolding. I can hardly walk today, my back is out. I> talked to the regional mgr. again today and agreed to try the air> mattress .... she said I can always turn it back in.> > I have my twins here today. So much fun.> > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> 2 COR. 12:10 ....when I am weak, then I am strong.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Wait a minute what did I miss. I didnt know Joyce diagnosed herself? Can some one catch me up because I missed soemthing. JOYCE - I am so sorry that you have to goto the big house and have more needles and all that. But I am sure your doctor is doing it because he wants you to feel better and I know you trust him! Keep us posted! Sandie > > > My doctor called twice today. My hunch was right. I have developed > Pulmonary Hypertension. I only began having symptoms in August, but he > is telling me that it is severe. He is going to admit me to the > hospital to do a heart cath and some other tests. Will also test new > medication for the PH while I am there. He is going to call back with > details. Not sure when. When I hung up, I had forgotten most of what > he said. > > I can not tell you how much I don't want to do another cath or have any > more needles. Just so tired of the pain. But, I will of course go > meekly. I will let you know when I know. > > Bed saga still unfolding. I can hardly walk today, my back is out. I > talked to the regional mgr. again today and agreed to try the air > mattress .... she said I can always turn it back in. > > I have my twins here today. So much fun. > > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Joyce, I so hope you are feeling better soon. If there is anything I can do, just give a shout!! Always in my thoughts and prayers. CaroBruce Moreland wrote: Well, at least the twins.....did you get oxygen? I know there is nothing we can do to help with the pain you're going through, so just want you to know you are always on our minds. >> > My doctor called twice today. My hunch was right. I have developed> Pulmonary Hypertension. I only began having symptoms in August, but he> is telling me that it is severe. He is going to admit me to the> hospital to do a heart cath and some other tests. Will also test new> medication for the PH while I am there. He is going to call back with> details. Not sure when. When I hung up, I had forgotten most of what> he said.> > I can not tell you how much I don't want to do another cath or have any> more needles. Just so tired of the pain. But, I will of course go> meekly. I will let you know when I know.> > Bed saga still unfolding. I can hardly walk today, my back is out. I> talked to the regional mgr. again today and agreed to try the air> mattress .... she said I can always turn it back in.> > I have my twins here today. So much fun.> > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> 2 COR. 12:10 ....when I am weak, then I am strong.>CaroAsthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06Mississippi Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Joyce, I so hope you are feeling better soon. If there is anything I can do, just give a shout!! Always in my thoughts and prayers. CaroBruce Moreland wrote: Well, at least the twins.....did you get oxygen? I know there is nothing we can do to help with the pain you're going through, so just want you to know you are always on our minds. >> > My doctor called twice today. My hunch was right. I have developed> Pulmonary Hypertension. I only began having symptoms in August, but he> is telling me that it is severe. He is going to admit me to the> hospital to do a heart cath and some other tests. Will also test new> medication for the PH while I am there. He is going to call back with> details. Not sure when. When I hung up, I had forgotten most of what> he said.> > I can not tell you how much I don't want to do another cath or have any> more needles. Just so tired of the pain. But, I will of course go> meekly. I will let you know when I know.> > Bed saga still unfolding. I can hardly walk today, my back is out. I> talked to the regional mgr. again today and agreed to try the air> mattress .... she said I can always turn it back in.> > I have my twins here today. So much fun.> > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> 2 COR. 12:10 ....when I am weak, then I am strong.>CaroAsthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06Mississippi Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Joyce... I'm so sorry for what you must deal with. Maybe you will at the very least get a good nights sleep in the hospital! I know you don't want any more testing. You have more reserve than you give yourself credit for! I continue to pray for you. Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! NOT good news My doctor called twice today. My hunch was right. I have developed Pulmonary Hypertension. I only began having symptoms in August, but he is telling me that it is severe. He is going to admit me to the hospital to do a heart cath and some other tests. Will also test new medication for the PH while I am there. He is going to call back with details. Not sure when. When I hung up, I had forgotten most of what he said. I can not tell you how much I don't want to do another cath or have any more needles. Just so tired of the pain. But, I will of course go meekly. I will let you know when I know. Bed saga still unfolding. I can hardly walk today, my back is out. I talked to the regional mgr. again today and agreed to try the air mattress .... she said I can always turn it back in. I have my twins here today. So much fun. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Please take me off the mailing list, it's just way too many emailsSher Bauman wrote: Joyce... I'm so sorry for what you must deal with. Maybe you will at the very least get a good nights sleep in the hospital! I know you don't want any more testing. You have more reserve than you give yourself credit for! I continue to pray for you. Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! NOT good news My doctor called twice today. My hunch was right. I have developed Pulmonary Hypertension. I only began having symptoms in August, but he is telling me that it is severe. He is going to admit me to the hospital to do a heart cath and some other tests. Will also test new medication for the PH while I am there. He is going to call back with details. Not sure when. When I hung up, I had forgotten most of what he said. I can not tell you how much I don't want to do another cath or have any more needles. Just so tired of the pain. But, I will of course go meekly. I will let you know when I know. Bed saga still unfolding. I can hardly walk today, my back is out. I talked to the regional mgr. again today and agreed to try the air mattress .... she said I can always turn it back in. I have my twins here today. So much fun. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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