Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Gwynne, What an exciting time for your family. Congratulations to . I to will be watching for the movie. Maybe you can give us a heads up when it is released. What a great accomplishment. I just hate test results. When do you talk to your Dr.? Oh in San , little OD going on this AM.You just tell the Dr. "Here ya go, Now I need the "CALL". " I just hate it that some in our group have to waitwhat seems like forever. God's speed and Blessings to you sweet Lady. Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 How exciting . You should brag, what an accomplishment at such a young age.I cant wait to see the film. IPF 2/07 IL --- Gwynne Keyland wrote: > Hi All, > My first news is to brag on my son . He's > 28 and works in film as a sound mixer. He worked on > a film after Katrina called Trouble the Water, about > a > couple during and after the hurricane. (Some of it > is > actual film videotaped by one of the survivors > during > the storm.) Last night it took the Grand Jury Prize > at > the Sundance Film Festival for documentary. He was > here at home visiting when we got the news, which > to us is very exciting!! I can't wait to see the > film. > > Also, we got the great news that, although he does > have GERD and a hiatal hernia, he does NOT have > Barrett's esophagus as we thought. That's such a > relief to me! > > I got my HRCT report (from last week) in the mail > to take with me to San . I haven't talked > with > the doc yet, and I know better than to read lab > reports > alone, but nonetheless I've seen it and a few things > were new, some not: > -extensive fibrotic changes throughout the lungs > bilaterally, predominantly subpleural and > predominant > in the lung bases; most severe in the inferior > portions > of the lungs > -mild/borderline cardiomegaly (enlarged heart) > -mild dilation of the main pulmonary artery, which > may indicate pulmonary hypertension - that's new. > -scattered areas of stable, mild traction > bronchiectasis > in lower lobes and right middle lobe > -no evidence of pericardial effusion or adenopathy > (swollen lymph glands) > -scattered areas of septal thickening and some > honeycombing in the lung bases > -two nodular opacities, which may represent areas of > fibrosis. Difference in size compared to former > CTs > could be due to technique - one bigger, one > smaller. > - " probable " subpleural calcified granuloma in left > lower lobe. One doc says " compatible with old > granulomatous disease " ; another says " may be > related to old empyema or hemothorax. " I had to > google those two, but now I'm wondering what > else I had at some point that nobody knew about!? > -differential perfusion between the 2 lungs is 46% > to left lung and 54% to right lung > > The numbers from my 24-hr. urine test also came > back. I tested high for protein: normal is 30-150, > and mine was 156mg/24 hr. My creatinine clearance > was also high at 174mL/min, with normal between > 88-128. That concerns me but maybe it shouldn't > too much in light of everything else. I'll find out > more > later. > > , > I'd love to be driving through the Central Highlands > of Tassie, but your travelogues are the next best > thing. Thanks so much for giving us such good > descriptions of your adventures. I've missed you - > Enjoy!!!! > > Joyce, > You could be right on target with your > self-diagnosis > although I hope not. I pray this will be the week > for > some results from THOSE people that will improve > your quality of life! Long live the Queen! > > Tina, > I'm very sorry you're feeling so lousy on the > Tracleer. > Maybe it'll be like many meds and have only short- > term side effects. I know many people do pretty well > on it, and maybe you will too after a week or so. > It's great that Kaleb wants to go to church. Take > care > and hang in there - as if you had a choice, right? > > Sophie, > Migraines are awful, and I can't imagine having them > for a lifetime. I'm glad yours are less frequent and > painful now, at least. It's good to have you join us > but I'm sorry about the awful diagnosis that brings > you > here. I was diagnosed in 2004 with IPF, but probably > had it for 3 years prior to that. If you've been > reading > our posts, you already know that we care and will be > here for you. Welcome, and God bless you. > > Sandie, > Severe pain and anxiety can effect blood pressure. > It is weird, but true. I found out about this when I > broke my femur in three places. What Bruce referred > to - people whose pressure goes up at the doctor's > office - is sometimes called " white coat fever " . > > Zena, > Please keep us posted on your sob and what you > find out from the medicos. I remember when I had > to stop walking my sweet dog, and it hit me hard - > now someone else does it for me. That was another > loss brought on by this illness. > > Hugs and blessings, > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Gwynnie... I'm so glad to read all this good news! I know it makes your mommy's heart swell. I didn't understand a lot of your test results but nevertheless I always wish you comfort and the best and highest good for you! Enjoy that smart son of yours! Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: my son & HRCT update Gwynne, What an exciting time for your family. Congratulations to . I to will be watching for the movie. Maybe you can give us a heads up when it is released. What a great accomplishment. I just hate test results. When do you talk to your Dr.? Oh in San , little OD going on this AM. You just tell the Dr. "Here ya go, Now I need the "CALL". " I just hate it that some in our group have to wait what seems like forever. God's speed and Blessings to you sweet Lady. Love and Prayers, Peggy ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
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