Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Allegens causing your HP? Please ask them if they know what PF is while they are there. Now as to your PAH, that is normal from PF. And your doctor is so very very very very very very .....did I say very.....right on your oxygen. Anytime it drops below 90 you're endangering every organ of your body including your heart. We think of oxygen for shortness of breath but its to protect other organs too. At early stages that is more important. I wouldn't use it today for sob (although I should) but I sure am for my other organs. So I'm fanatical about maintaining my sats above 90% and will as long as that is possible. I strongly suspect you'll need oxygen at night when our levels drop. I also, knowing many doctors disagree, recommend an oximete so you can monitor your levels adequately. > > So, I've been with a head cold since Thursday....not feeling all that > well yet. > > I found out on Friday from Dr. Raghu that I now have PAH, Pulmonary > Arterial Hypertension...or high blood pressure in my lung. I still > don't understand it all. Kathie is good at explaining things to me > all the time! > > I am wondering if others have this DX too, and what it means to you, > and what meds are you taking for it. > > My CT shows more honeycoming, and a little more fibrosis...however, > nothing earth shattering...it's a slow progress down. So, I am on > Pred - 20 mg for 14 days, then 10 1/2 until my next 3 month appt. > Also, on Impuran (or whatever it's called, I have the generic - and I > can't pronounce that! I am on it until I meet in three months too. > > It was suggested rather strongly that I use my O2 more. It's hard to > become used to having to use it. Mostly, I wait until my quick > breathing subsides - but, I know that is wrong. > > And, I am going to be set up for overnight sleep apnea test- to see > if I am breathing rightat night. > > American Lung Assoc is sending someone to our house Feb 5th to check > for allergens that may be causing my HP. > > I work from 3-11 tonight, and am tired so I'll end this now!! > > Joy/Seattle > Hypersensitivity Pneumonia > Interstitial PF > Pulmonary Artierial Hypertension (PAH) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Joy, so sorry that you're not feeling well, and then get hit with the news of the PH. I think you and Joyce have had quite enough for one week! I used Imuran for many years with only the usual side effects. I had to stop when it began affecting my liver. I don't know much about PH, but I just wanted to let you know that I will be praying for you and hoping that the medicine they give you is helpful. Big Hugs from Babs in Texas DX with PF Nov. 1999 due to lupus/scleroderma/ra > > So, I've been with a head cold since Thursday....not feeling all that > well yet. > > I found out on Friday from Dr. Raghu that I now have PAH, Pulmonary > Arterial Hypertension...or high blood pressure in my lung. I still > don't understand it all. Kathie is good at explaining things to me > all the time! > > I am wondering if others have this DX too, and what it means to you, > and what meds are you taking for it. > > My CT shows more honeycoming, and a little more fibrosis...however, > nothing earth shattering...it's a slow progress down. So, I am on > Pred - 20 mg for 14 days, then 10 1/2 until my next 3 month appt. > Also, on Impuran (or whatever it's called, I have the generic - and I > can't pronounce that! I am on it until I meet in three months too. > > It was suggested rather strongly that I use my O2 more. It's hard to > become used to having to use it. Mostly, I wait until my quick > breathing subsides - but, I know that is wrong. > > And, I am going to be set up for overnight sleep apnea test- to see > if I am breathing rightat night. > > American Lung Assoc is sending someone to our house Feb 5th to check > for allergens that may be causing my HP. > > I work from 3-11 tonight, and am tired so I'll end this now!! > > Joy/Seattle > Hypersensitivity Pneumonia > Interstitial PF > Pulmonary Artierial Hypertension (PAH) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Gosh Joy! I am so sorry your feeling tired and now you ahve this other to add to it. Know that you are in my thoughts and prayers! Sandie > > So, I've been with a head cold since Thursday....not feeling all that > well yet. > > I found out on Friday from Dr. Raghu that I now have PAH, Pulmonary > Arterial Hypertension...or high blood pressure in my lung. I still > don't understand it all. Kathie is good at explaining things to me > all the time! > > I am wondering if others have this DX too, and what it means to you, > and what meds are you taking for it. > > My CT shows more honeycoming, and a little more fibrosis...however, > nothing earth shattering...it's a slow progress down. So, I am on > Pred - 20 mg for 14 days, then 10 1/2 until my next 3 month appt. > Also, on Impuran (or whatever it's called, I have the generic - and I > can't pronounce that! I am on it until I meet in three months too. > > It was suggested rather strongly that I use my O2 more. It's hard to > become used to having to use it. Mostly, I wait until my quick > breathing subsides - but, I know that is wrong. > > And, I am going to be set up for overnight sleep apnea test- to see > if I am breathing rightat night. > > American Lung Assoc is sending someone to our house Feb 5th to check > for allergens that may be causing my HP. > > I work from 3-11 tonight, and am tired so I'll end this now!! > > Joy/Seattle > Hypersensitivity Pneumonia > Interstitial PF > Pulmonary Artierial Hypertension (PAH) > Quote Link to comment Share on other sites More sharing options...
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