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Very glad to belong to this group at this time..... seeing my Dad go through this is unspeakable, but at the same I typed that, the thought came to mind that - there is a beauty here also.....in the past week I have had to do things I thought I could never do, never thought I'd have the courage to.....Ms. Abena****

"There are two primary choices in life: to accept conditions as they exist,or accept the responsibility for changing them." "Forgiveness does not change the past, but it does enlarge the future.""ALL are called. Few chose to listen." "We're not here to earn God's love, we're here to spend it!" "Change how you see things, and the things you see will change"Date: Sun, 26 Sep 2010 15:06:24 +0000From: To: ProstateCancerSupport Subject: Digest Number 3410

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Prostate Cancer Support

Messages In This Digest (9 Messages)

1a.

my papaw

From: rcm71499@...

1b.

Re: my papaw

From: Metcalf

1c.

Re: my papaw

From: jonnorris2@...

1d.

Re: my papaw

From: Dan

1e.

Re: my papaw

From: Alan Meyer

2a.

3D transperineal mapping biopsy

From: Dennis Humphries

2b.

Re: 3D transperineal mapping biopsy

From: Alan Meyer

3.

Yana Updates September 15 - September 26 2010

From: Terry Herbert

4.1.

allergic reation to CT contrast

From: Genie

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Messages

1a.

my papaw

Posted by: "rcm71499@..."

rcm71499@...

bassetgurl79

Sat Sep 25, 2010 9:02 am (PDT)

I don't know if I've posted here before or not but my papaw was in perfect health until he turned 68 or so and as he says everything wetn down hill from there. His appendix burst, then he went we noticed his alzheimers was getting worse and then he went to his regular doctor and found out his psa was in the 1000s...and had already spread into his bones. The diagnosis was a little over a year ago and he's done the basic chemo and has weekly iv's that are suppose to strengthen his bones. Well currently he only knows who mamaw is no one else in the famiily and his hip has started bothering him...to the point the dr put him on morphine ( he had been on other pain meds that the family didn't know about) and was using a walker but because of the alzheimers he thought was a wheelbarrow...now he's in a wheelchair and is having another bone scan on monday. I don't know why cause we all know what they are going to find. Even my dad told my mom that he would be surprised if papaw made it to Christmas. I don't know what I am going to do....I left work crying friday then I started thinking about the good things like some people suggested and that made me cry too lol...noone that I really cared about (my other grandmother) has died in 15 years and I dont' know if I can handle this...and my poor mamaw is stressed and is his main caregiver even though the four kids and older grandkids visit each night and bring food.....Sorry for the rant but I'm so sad, and depressed...

M in TN

=

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1b.

Re: my papaw

Posted by: " Metcalf"

bryan.metcalf@...

bryanmetcalf2001

Sat Sep 25, 2010 9:41 am (PDT)

These are always difficult posts to write but we offer lots of empathy for you and your family. There seems to be lots of things affecting pawpaw. The combined effect is that one illness makes another more difficult to deal with. If you were next door I'd pop round with a cup of tea and a scone, but as it is I'm in England and there are few miles of water in the way, please have a coffee and cookie knowing I'm thinking of you.

You know many of us fight for improved means of detection of prostate cancer, we want to get men to doctors sooner that when the PSA gets to 1000. Sadly the diesease is at a point where it is affecting him, and we become aware that the major sorrow being that he has significant secondary prostate cancer. Noone can say when he will pass to the place with no pain, we do know that he has a battle on and it could be sooner than later, but maybe he will fight on for a good while yet. These are times of mixed emotions, awaiting a loss, but wishing that his pain will end. One important fact seems to have been addressed, he is being given morphine adding to his comfort. His comfort is so importantat this stage.

It is so right to remember life when he was well, the funny things he said, the funny things you all did, those moments that live on in your minds, the genes that live on in you and yours. There seems to be a big caring gene there!

My best wishes

Has anyone dealt with serious allergic

reation to CT contrast

I need help to understand what we can do in our particular situation.

My husband is allergic to the contrast dye in the CT scan. As he's done

each CT scan he's getting more reaction to it. He's taking Prednisone the

night before and the morning of plus another drug to combat the reaction.

He does this only in a hospital setting because of the seriousness of his

reaction. The Prednisone is not doing the job and we are very concerned.

He is continuing to need monitoring after each CT scan as a doctor is called

in because of his reaction to the contrast.

His oncologist will not allow an MRI instead. We didn't know how serious

this could be until we consulted another oncologist who said he could

actually die from the contrast at his level of reaction.

We are at a loss. We are at a facility where our medicare pays for the

tests. His oncologist still will not allow any other method of testing.

Has anyone else dealt with this. I have to go back to our consultant and

find out why he said he 'could' do an MRI instead and advised against

another CT scan.

Is there something about an MRI that won't work? Why the insistance of the

CT scan.

Any thoughts on this that I might take to our oncologist. I've had

conversations with our doctor about this without any consideration of our

concerns. I can not push this doctor more than I have, which is actually to

explain how my husband feels and how the reactions are getting worse.

Is it money?

I do need information to bring to our doctor to see if we can budge the

situation. It is the only time I've seen my husband emotional. He's very

upbeat but knows this is detrimental to him in many ways...

thanks

grace

_____

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