Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Joy, Dr Raghu is recognized as one of the preeminent researchers/clinicians with regards to interstitial lung disease in the world. Let me assure you if he has prescribed a course of treatment that includes Prednisone/ Prednisolone it is because he believes you will individually benefit from it. I, on the other hand, have a manifestation of this monster that rarely responds to treatment of any sort. Your original Dr is also correct - there is no cure. The scarring process cannot (at this time) be reversed but its progress can be arrested in some cases by utilizing corticosteroids sometimes in tandem with immunosuppressants. Peace UIP/LCH 5.06 CA > > It is great to hear others " in the same mind " . I have already decided to not go off of Prozac. > I was on 30 mg, but it was upped to 60mg a couple months ago and I'm doing better. I've been thinking about my last appt with Dr. Raghu - I feel I am being given Pred and Im just because that's what they do. I want to know if there are people on this site who have benefited long-term success from using these drugs. My original doc said that nothing will cure PF..they just give us these drugs because that is all they know to do. > > My Sleep Disorder test is for Feb 13th. > > My cold hangs on...now my throat is sore and my voice sounds funny! I've noticed that my memor is suffering! For the life of me I could not remember what my house looked like! After some time of struggle with memory, I remembered! > > Best wishes to all today.. > Joy/Seattle > Inters PF > PAH > HP > > > Joy > www.thehandcraftedjewelrymall.com/joykiefner/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 , I've been seeing Dr. Raghu for about 8 years now and you are spot on about him. Kathie > > > > It is great to hear others " in the same mind " . I have already > decided to not go off of Prozac. > > I was on 30 mg, but it was upped to 60mg a couple months ago and > I'm doing better. I've been thinking about my last appt with Dr. > Raghu - I feel I am being given Pred and Im just because that's what > they do. I want to know if there are people on this site who have > benefited long-term success from using these drugs. My original doc > said that nothing will cure PF..they just give us these drugs because > that is all they know to do. > > > > My Sleep Disorder test is for Feb 13th. > > > > My cold hangs on...now my throat is sore and my voice sounds > funny! I've noticed that my memor is suffering! For the life of me I > could not remember what my house looked like! After some time of > struggle with memory, I remembered! > > > > Best wishes to all today.. > > Joy/Seattle > > Inters PF > > PAH > > HP > > > > > > Joy > > www.thehandcraftedjewelrymall.com/joykiefner/ > > > Quote Link to comment Share on other sites More sharing options...
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