Re: Prozac Prednisone

[Guest guest]

Joy...

The prednisone topic is always interesting. In a recent poll of this

group, 35% said they were on it and saw a benefit, 10% said they were

on it and had seen no benefit, 29% had gotten off it or were in the

process, 18% had chosen not to use it, and 5% had never had it

offered to them. So its a wide disparity and makes the decision very

personal.

Now, there is also a difference in its effectiveness based on the

pathology of your specific form of PF which short of a VATS/Biopsy

many of us don't know. IPF is often used here and elsewhere

interchangeably with PF. However, from pathology there is a specific

difference between UIP/IPF and other forms of ILD's or PF's. The

believe then by most persons I've read and talked to is that this

specific form is least likely to benefit from prednisone and the

others are much more likely to benefit. There is no question some

persons with some forms are helped by prednisone. There is no

question that some have significant side effects from prednisone.

Now, even with UIP/IPF my doctors have still suggested prednisone. Do

they think it might really help or just do that because they have

nothing else to give and feel like they must do something? I don't

know.

So, I know I've cleared nothing up, but let you know that there just

isn't a concensus. Only an individual can determine whether to try

prednisone and, if they do try, whether to continue or stop at some

point. The extremes are some here who feel its given them many extra

years and even stopped the progression and at the other extreme those

who consider it the worst thing ever known to mankind.

Me, personally, I don't see trying it unless post-transplant. If I

did, I would see my mental health counselor at least twice a week

until seeing what happened. But, I've suffered more extreme mental

health issues than most here so that is a huge factor for me.

>

> It is great to hear others " in the same mind " . I have already

decided to not go off of Prozac.

> I was on 30 mg, but it was upped to 60mg a couple months ago and

I'm doing better. I've been thinking about my last appt with Dr.

Raghu - I feel I am being given Pred and Im just because that's what

they do. I want to know if there are people on this site who have

benefited long-term success from using these drugs. My original doc

said that nothing will cure PF..they just give us these drugs because

that is all they know to do.

>

> My Sleep Disorder test is for Feb 13th.

>

> My cold hangs on...now my throat is sore and my voice sounds

funny! I've noticed that my memor is suffering! For the life of me

I could not remember what my house looked like! After some time of

struggle with memory, I remembered!

>

> Best wishes to all today..

> Joy/Seattle

> Inters PF

> PAH

> HP

>

>

> Joy

> www.thehandcraftedjewelrymall.com/joykiefner/

>