Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 Dear Kerry, I'm so sorry you lost your Mum so suddenly. To have to come to terms with your loss as well as deal with your own health issues must be quite overwhelming. You have been such an active person, now to feel so exhausted & depleted would be a dreadful shock to your sense of self. Like so many on this Board you have incredible reserves of personal strength to draw on & you are talking like you are tapping these. We all care about the progress of every single member here & hope you find some respite & good outcomes. Wishing all the very best AND thanking you most sincerely for keeping us posted about Joyce, in Oz IPF: Fibrotic NSIP/UIP???? Reynauds' May 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Kerry, With everything you have on your own plate you find the energy and time to keep us updated on Queen Joyce. Thank you. Please take care of yourself. I know what it feels like to have others do what you are used to doing. Let them help...they feel sort of helpless about us and this disease. So doing something like driving your child to school makes your husband feel like he is doing something to "fix" you. Men need to fix things,,,they usually don't do well with the talking about emotionally charged issues. ( our Bruce is an exception) Keep strong...do what exercise you can..maintain your positive attitude and remember we're here. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Kerry wrote: I called again looking for an update and announcing myself as Joyce's friend Kerry looking for an update. To my surprise it was Joyce herself answering. I would've said hold my calls. Though she claims to still be a little doped up after the heart caths she sounded completely lucid to me and she's doing well. She said that the cath showed a level of 64 (I don't know the measurements this is in folks, just what she told me) and that the level it should be is 24. So, yes she has PH, big time. They also found 2 blockages (and I think she said one was 70%), but they did not put in any new stents at this time. Rather than do the Revatio or Tracleer, she said they are going to give her a different med that is administered thru a port (I had never heard the name of it, nor had she so I have no clue how to spell it... she said it's called "Flo - something", how's that for a specific detailed report? No criticism allowed folks). She is going to be in the hospital for 5-7 days so they can see how she tolerates this new medicine. They are going to try to get this PH under control before addressing other things like the stents for blockages and any new meds like the Rituxan. She said once again how much she really likes and is impressed by this new doctor. I am so glad for that. I told her since she had such a big day today and all her family around the last 2 days that I would leave her be. I will go visit over the next couple days and be so glad to do it because w/ her busy and crowded household lately visiting has just not been as easy. I told her I had posted earlier and would post again now w/ the latest. Good day from the Queen and her humble messenger girl, Kerry IPF '01 S. IN No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.17/1253 - Release Date: 1/31/2008 9:09 AM Quote Link to comment Share on other sites More sharing options...
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