RE: Non-Profit RA Research Needs Your Help

[Guest guest]

This is pretty interesting. I just registered for the study.

Hugs, Jacy

~I don't approve of political jokes; I've seen too many get elected.

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

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-----Original Message-----From: [mailto:mintychocochip@...]Sent: Friday, October 01, 2004 14:11Rheumatoid Arthritis Subject: Non-Profit RA Research Needs Your HelpDear readers of this group:I hope you will find this information interesting and useful, and thatyou will consider participating in research at The National Databankfor Rheumatic Diseases. This is not an offer for a product or aservice, but just a volunteer opportunity to help doctors and patientsunderstand and treat the disease. I apologize if this message is not appropriate here.If you have any questions, please contact me directly at aaron.wolfeat arthritis-research.org. Thanks,- WolfeArthritis Research Needs Your HelpIf you have rheumatoid arthritis, osteoarthritis, fibromyalgia oranother rheumatic disease--anything that you would see arheumatologist or joint specialist about--you can help improve thetreatment and outcomes of these conditions.What is the NDB?The National Databank for Rheumatic Diseases (NDB) is a non-profitresearch databank for the study of arthritis and rheumatic conditions. The NDB collects data directly from persons who have these problems.The primary goal of NDB research is to advance knowledge about thecauses, costs, treatments, and results of treatments related torheumatic conditions. Another important goal of the NDB project is tostimulate research and study by health professionals by making NDBdata available for medical research. Every six months more than 10,000 people contribute to this importantresearch by volunteering approximately an hour of their time to answerquestions about their condition and how it affects their lives. Thisis done by computer online or with paper questionnaires sent in themail. All information provided remains completely confidential.How to enroll in NDB research:Visit us on the Web at http://www.arthritis-research.org/patients.htm Answers to common questions about NDB research:Why should I participate? People volunteer to participate in research for a variety of reasons.The primary reason people give for NDB participation is that they wantto contribute to medical research that may help others with theirdisease. With a debilitating disease like arthritis or other rheumaticconditions it can sometimes be difficult to volunteer in a traditionalsetting. NDB research allows you to volunteer in an important way. How often will I get a questionnaire? Every 6 months. Questionnaires take approximately 30 to 60 minutes tocomplete. Returning your questionnaire within two weeks makes youeligible for a $1,000 prize given to three people chosen at random.You will also receive a biannual newsletter and access to an onlinediscussion group.Does it cost anything to participate? No. We pay all of the postage and have a toll-free phone line forquestions.Who will see my questionnaire and information about me? Only the NDB research staff. Once your information is in our researchDatabank your name is removed for research purposes. Researchers usingthe Databank for medical research cannot identify you. We have beencollecting arthritis data for more than 25 years, and during thattime, no outside person has ever had access to anyone's name. No oneever will. What kind of questions will you ask? We ask about: Pain. Functional and work ability. Disability. Jointsthat are affected. Symptoms. Treatments with medications and surgery.Side effects. How you manage with your illness. What happens to the information I provide? The information is entered into a computer databank for use by medicalresearchers. Researchers describe their findings in medical journalsand presentations at national and international meetings. That way,all doctors who treat arthritis are able to receive the benefit fromthe research, helping them to provide better medical care to peoplewith arthritis and similar medical conditions. Which rheumatologists work with this project? More than 800 rheumatologists from across the U.S. have helped. Dr.Fred Wolfe is the Project Director. For more information:Please visit out web site, www.arthritis-research.org, emailaaron.wolfe@..., or call 1-800-323-5871.

[Guest guest]

Thank you for joining the study!

Wolfe

> This is pretty interesting. I just registered for the study.

>

> Hugs, Jacy ~I don't approve of political

jokes; I've

> seen too many get elected.

>

>

> jacymail@c...

> IM: jacygal - ICQ: 96949087

> www.geocities.com/mtn_rose

>

>

>

>

>

>

>

> Signature powered by Plaxo Want a signature like this?

>

>

> -----Original Message-----

> From: [mailto:mintychocochip@y...]

> Sent: Friday, October 01, 2004 14:11

> Rheumatoid Arthritis

> Subject: Non-Profit RA Research Needs Your Help

>

>

>

> Dear readers of this group:

>

> I hope you will find this information interesting and useful, and that

> you will consider participating in research at The National Databank

> for Rheumatic Diseases. This is not an offer for a product or a

> service, but just a volunteer opportunity to help doctors and patients

> understand and treat the disease.

>

> I apologize if this message is not appropriate here.

>

> If you have any questions, please contact me directly at aaron.wolfe

> at arthritis-research.org.

>

> Thanks,

>

> - Wolfe

>

> Arthritis Research Needs Your Help

> If you have rheumatoid arthritis, osteoarthritis, fibromyalgia or

> another rheumatic disease--anything that you would see a

> rheumatologist or joint specialist about--you can help improve the

> treatment and outcomes of these conditions.

>

>

> What is the NDB?

> The National Databank for Rheumatic Diseases (NDB) is a non-profit

> research databank for the study of arthritis and rheumatic conditions.

>

> The NDB collects data directly from persons who have these problems.

> The primary goal of NDB research is to advance knowledge about the

> causes, costs, treatments, and results of treatments related to

> rheumatic conditions. Another important goal of the NDB project is to

> stimulate research and study by health professionals by making NDB

> data available for medical research.

>

> Every six months more than 10,000 people contribute to this important

> research by volunteering approximately an hour of their time to answer

> questions about their condition and how it affects their lives. This

> is done by computer online or with paper questionnaires sent in the

> mail. All information provided remains completely confidential.

>

> How to enroll in NDB research:

> Visit us on the Web at http://www.arthritis-research.org/patients.htm

>

[Guest guest]

It looks like a good project. It is well done so far.

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From:

Rheumatoid Arthritis

Sent: Thursday, October 07, 2004 07:38

Subject: Re: Non-Profit RA Research Needs Your Help

Thank you for joining the study! Wolfe> This is pretty interesting. I just registered for the study.> > Hugs, Jacy ~I don't approve of politicaljokes; I've> seen too many get elected.> > > jacymail@c...> IM: jacygal - ICQ: 96949087> www.geocities.com/mtn_rose> > > > > > > > Signature powered by Plaxo Want a signature like this?> > > -----Original Message-----> From: [mailto:mintychocochip@y...]> Sent: Friday, October 01, 2004 14:11> Rheumatoid Arthritis > Subject: Non-Profit RA Research Needs Your Help> > > > Dear readers of this group:> > I hope you will find this information interesting and useful, and that> you will consider participating in research at The National Databank> for Rheumatic Diseases. This is not an offer for a product or a> service, but just a volunteer opportunity to help doctors and patients> understand and treat the disease.> > I apologize if this message is not appropriate here.> > If you have any questions, please contact me directly at aaron.wolfe> at arthritis-research.org.> > Thanks,> > - Wolfe> > Arthritis Research Needs Your Help> If you have rheumatoid arthritis, osteoarthritis, fibromyalgia or> another rheumatic disease--anything that you would see a> rheumatologist or joint specialist about--you can help improve the> treatment and outcomes of these conditions.> > > What is the NDB?> The National Databank for Rheumatic Diseases (NDB) is a non-profit> research databank for the study of arthritis and rheumatic conditions.> > The NDB collects data directly from persons who have these problems.> The primary goal of NDB research is to advance knowledge about the> causes, costs, treatments, and results of treatments related to> rheumatic conditions. Another important goal of the NDB project is to> stimulate research and study by health professionals by making NDB> data available for medical research.> > Every six months more than 10,000 people contribute to this important> research by volunteering approximately an hour of their time to answer> questions about their condition and how it affects their lives. This> is done by computer online or with paper questionnaires sent in the> mail. All information provided remains completely confidential.> > How to enroll in NDB research:> Visit us on the Web at http://www.arthritis-research.org/patients.htm>