Another update on Joyce

[Guest guest]

I called again looking for an update and announcing myself as

Joyce's friend Kerry looking for an update. To my surprise it was

Joyce herself answering. I would've said hold my calls. Though she

claims to still be a little doped up after the heart caths she

sounded completely lucid to me and she's doing well. She said that

the cath showed a level of 64 (I don't know the measurements this is

in folks, just what she told me) and that the level it should be is

24. So, yes she has PH, big time. They also found 2 blockages (and

I think she said one was 70%), but they did not put in any new

stents at this time. Rather than do the Revatio or Tracleer, she

said they are going to give her a different med that is administered

thru a port (I had never heard the name of it, nor had she so I have

no clue how to spell it... she said it's called " Flo - something " ,

how's that for a specific detailed report? No criticism allowed

folks). She is going to be in the hospital for 5-7 days so they can

see how she tolerates this new medicine. They are going to try to

get this PH under control before addressing other things like the

stents for blockages and any new meds like the Rituxan. She said

once again how much she really likes and is impressed by this new

doctor. I am so glad for that. I told her since she had such a big

day today and all her family around the last 2 days that I would

leave her be. I will go visit over the next couple days and be so

glad to do it because w/ her busy and crowded household lately

visiting has just not been as easy. I told her I had posted earlier

and would post again now w/ the latest.

Good day from the Queen and her humble messenger girl,

Kerry

IPF '01

S. IN