Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 I went through this very thing with my daughter as she was basically mute until she was over 3 years old. Once she was diagnosed with Apraxia, I would say to anyone and everyone who tried to get her to talk, that she has Apraxia which is a speech delay. Whether or not they understood what that was did not matter, it was a huge comfort to me to be able to explain in that brief moment why I was doing all her talking! Don't worry about what strangers think or say, remember this is your precious child who is a gift no matter what their weaknesses are! , mom to 3 great kids! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2003 Report Share Posted February 8, 2003 , Thanks for the welcome, its great to see such a supportive group here. I met about 6 weeks after her last surgery. She was on a pretty strict diet then. All I heard was " I want a cheese pizza with jalapeno's on the side " for about 3 weeks. I did keep teasing her about that, and when she could finally have some, you would have thought she was eating chocolate or something. This was back in November. Right now she doesn't seem to have problems eating much of anything. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2003 Report Share Posted February 8, 2003 , Thanks for the welcome I pray for " Long term success " every day! After reading some of the stories on the board and from what has told me of her previous " incidents " I pray that she doesn't have to go through that again, at least not for a very long time. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 I seconded it, our doctor are in really good hand! He not just doing operation, but running our CI center, along with oral school. Ummm, my first anniversary is coming up, so I better call my audie for an appointment. -gs > Thanks for saying your current doctor is excellent. I was worried he'd > done the deed and was wondering where my array might really be. > Hal -- Greg Swager N24C 03/03/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Clothes is prob. the biggest issue. If he is wearing something, and see's another shirt that he likes, I will tell him no that he looks fine. He will lift up the bottom of his shirt, put it up to his lips..spit on the shirt and tell me it's " Yukky " and put it in the hamper. The first time he did that (last month) I about fell over. 'smart kid' i'm thinking, I should have did that when I was younger. So the next day, he tried the same thing, but I " spit " on the shirt he wanted to change in to. He was so disgusted he just went along, wearing his current shirt. I was like " YES, I WON " ..then I'm thinking to myself...okay...How old am I? And I am proud of the decision I just made? lol Now I know why he has problems..the apple doesn't fall too far from the tree....(grin) (Oh,btw...he will try and control what I wear too..he's like my very own fashion consultant..now If I could only get him to do hair....) Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 LOL, CB does the same thing...In every special day picture I am wearing the same stupid flowered top. He really hated wearing anything that wasnt "cool" . He likes soild color T- shirts, they can have pics of power rangers, sports or some animals ( sharks, geckos) and shorts. NO TAGS !!!!! LOL, I admire the ingenuity of spitting on the the "bad "clothes. So clever your guy ! CB's Granny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Thanks guys for the support. I'll keep you posted when something develops. Sharon said: > When I sent you that link I didn't check to see if the videos of a young girl going through the minimally invasive fusion are still there. If they are, they are really worth viewing. Be prepared for a strong emotional reaction, though. Even with the newer techniques, it's still very major surgery. I'll have to look again, I didn't see the video, but it would be interesting to see... > I myself have flatback from my 1971 fusion, T5 - L4, and have not had surgery for it. My pain is still manageable, with Elavil, Celebrex, massage, swimming, bike-riding, and careful weight-training. Everyone is different, though, and you'll want to get expert advice on what kind of exercise is best for you. I joined Bally's, and I had started but wound up stopping over one stupid excuse after another. But I'm going to go back and start again soon. Plus I have to talk to my GP, I think one of my meds (Atenolol) is contributing to the weight gain... Suzanne said: > My daughter's scoliosis was caught when she was about 10. It's so very > mild though at just 14 degrees. She is almost 15 and we are praying > that she will be discharged from her scoliosis doctor next year. That's great news! I'll keep my fingers crossed for you (and me!) > Since I wrote to you last, I lost some weight and I feel so much > better. I am trying now to keep the weight off and exercise > everyday. Congratulations! I know how hard that can be, but I also know how much of a difference it can make. Keep up the great work! ~ le (from Long Island) Quote Link to comment Share on other sites More sharing options...
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