Yana Updates September 6 - September 14, 2010

[Guest guest]

Clearly everyone is back

on deck after their summer holidays and catching up with their e-mails because

I have had a flood of updates and some new experiences posted. I’ve

caught up as well as I have been able – I haven’t processed entries

received since Saturday last week but should be able to get those done in the

next few days. If you sent in your entry before then and I have not acknowledged

it, please mail me at terryherbert42@...

LOST MEMBERS:

I am sad to report the deaths of a Member:

http://www.yananow.net/Mentors/J.htm

RICHARD JOHNSEN diagnosed with a low PSA of 4.0 but a GS tumour

in 2007, passed last month, pre-deceased by his wife who passed in

April from Pancreatic Cancer

NEW POSTS:

http://www.yananow.net/Mentors/TrevorT.htm

TREVOR TOOHILL newly diagnosed and undecided

http://www.yananow.net/Mentors/MB.htm

M BONZ diagnosed in July with a GS 9 at age 47 and chose RALP (Robotic

Assisted Laparoscopic Surgery)

http://www.yananow.net/Mentors/MikeK3.htm

MIKE K diagnosed in July 2008 and chose RALP which failed followed by IMRT

(Intensity- Modulated Radiation Therapy) leaving him with ED and severe

Climacturia – no wonder he is depressed

http://www.yananow.net/Mentors/W.htm

BRYANT WINTERHOLER surgery would have been his choice but health reasons got

him into EBRT (External Beam Radiation Treatment) with neo-adjuvant ADT (Androgen

Deprivation Therapy)

http://www.yananow.net/Mentors/W2.htm

ROBERT WRIGHT diagnosed in June and booked in for RALP (Robotic Assisted

Laparoscopic Prostatectomy) but now not so sure

http://www.yananow.net/Mentors/WillH.htm

WILL H joins us as a Platinum member – diagnosed and treated in 1994

for a GS 9 tumour he has an interesting take on this disease

http://www.yananow.net/Mentors/S6.htm

JOHN STEVENSON has chosen Active Surveillance but his oncologist feels he

should have treatment

http://www.yananow.net/Mentors/BobN.htm

BOB NEMO was on Watchful Waiting for two and a half years but is now

trying to choose between the radiation variants

UPDATES FROM MEMBERS

http://www.yananow.net/Mentors/LenA.htm

LEN AIREY Silver member happy with the outcome of his RP (Radical

Prostatectomy) five years ago. I always think this story of Len’s is a

prime example of the value of the anecdotal material on the Yana

site (and other sites), which is denigrated by the ‘scientists’ who

say only published studies have any value. It tells how his surgeon discovered

a better method of dealing with his stricture after contacting the US surgeon of another Yana

member who had a similar problem

http://www.yananow.net/Mentors/M.htm

PAUL MCARTHUR Silver member with a bit of a problem with a difference –

he believed the predictions that he would die within five years after his RP

(Radical Prostatectomy) and he hasn’t

http://www.yananow.net/Mentors/SteveP.htm

STEVE PITTELMAN two years after Brachytherapy he has no side effects but may

be experiencing a PSA ‘bounce’

http://www.yananow.net/Mentors/TedL.htm

TED LARRISON although he has urgency and ED issues his PSA is undetectable two

years after RALP (Robotic Assisted Laparoscopic Prostatectomy) and he’s

enjoying life

http://www.yananow.net/Mentors/BH.htm

B H two years after RALP (Robotic Assisted Laparoscopic Surgery) some urinary

issues no ED problems, no PSA

http://www.yananow.net/Mentors/MikeB.htm

MIKE BASS 20 months after RALP (Robotic Assisted Laparoscopic Prostatectomy)

only problem is mild Peyronie’s Disease

http://www.yananow.net/Mentors/BillR.htm

BILL RAU long time ‘cyberpal’and Yana

supporter Gold Three Star member diagnosed in 1997 counts his blessings

thirteen years after his HDR (High

Dose Radiation Brachytherapy)

http://www.yananow.net/Mentors/RonM2.htm

RON M twelve months after RP (Radical Prostatectomy) has some leakage and ED

problems

http://www.yananow.net/Mentors/MelP.htm

MEL PANTHERSFAN still happy with his choice of PBT (Proton Beam Therapy) in Florida

http://www.yananow.net/Mentors/TomC.htm

TOM C chose Brachytherapy and has hit his nadir of 0.17 ng/ml after two and

a half years

http://www.yananow.net/Mentors/BobW4.htm

BOB W PSA still heading down after Brachytherapy

http://www.yananow.net/Mentors/RegB.htm

REG B has had a satisfactory drop in PSA – down to 6.0 from diagnosis

level of 1,400.0 – from combined ADT (Androgen Deprivation

Therapy)/Chemotherapy

http://www.yananow.net/Mentors/DaveC.htm

DAVE CURTIS an enlightening report on his a penile implant for ED following RALP

(Robotic Assisted Laparoscopic Prostatectomy)

http://www.yananow.net/Mentors/H.htm

TIMOTHY HOTUJEC Silver member was on a Lupron holiday after failed RP

(Radical Prostatectomy)but a PSA rise to 0.50 will get him back on

http://www.yananow.net/Mentors/ChrisB2.htm

CHRIS B chose RALP (Robotic Assisted Laparoscopic Prostatectomy) in July and

has no ED or continence issues

http://www.yananow.net/Mentors/C.htm

ERIC CORDINGLEY has chosen Active Surveillance after further tests indicated

his diagnosis was not an aggressive form of the disease

http://www.yananow.net/Mentors/V.htm

RICHARD VANCE a saturation biopsy identified one positive core of GS 6

disease leading to a choice of PBT (Proton Beam Therapy) for which his

insurers will not pay so he has put his house on the market

http://www.yananow.net/Mentors/TomZ.htm

TOM Z has decided that RALP (Robotic Assisted Laparoscopic Surgery) is for

him but is worried about side effects

http://www.yananow.net/Mentors/AlanE.htm

ALAN EVANS PSA dropping nicely after his Brachytherapy and Testosterone rising

after his adjuvant ADT (Androgen Deprivation Therapy).

http://www.yananow.net/Mentors/F.htm

DAVID F007 has had an undetectable three month PSA after RALP (Robotic

Assisted Laparoscopic Prostatectomy) – sexual function ‘pretty

good’

http://www.yananow.net/Mentors/M4.htm

DAVID MANSFIELD maintaining his position as the most terse entry on Yana – he has had HIFU (High Intensity Focused

Ultrasound)

http://www.yananow.net/Mentors/GovindS.htm

GOVIND SHARMA another succinct report – has completed PBT (Proton Beam

Therapy), presumably at Loma

http://www.yananow.net/Mentors/EdwradR2.htm

EDWARD RUMIK chose RALP (Robotic Assisted

Laparoscopic Prostatectomy) in July – so far so good

http://www.yananow.net/Mentors/AlD.htm

AL DILGER has finally decided on HDR

(High Dose Radiation Brachytherapy) at UCLA

http://www.yananow.net/Mentors/No.htm

CHARLES NO - no incontinence or ED problems two and a half years after RALP

(Robotic Assisted Laparoscopic Prostatectomy) but has a variable PSA

http://www.yananow.net/Mentors/HughA.htm

HUGH ARMITAGE continues to enjoy life after his PBT (Proton Beam Therapy) at

Loma in May 2009

http://www.yananow.net/Mentors/RonC3.htm

RON CARTER Silver member chose Brachytherapy six years ago but is now

developing ED and bowel incontinence problems

http://www.yananow.net/Mentors/AlbertP.htm

ALBERT PUGH diagnosed with a GS 9 tumour in 2006 he had RP (Radical

Prostatectomy), EBRT (External Beam Radiation Treatment) and ADT (Androgen

Deprivation Therapy) before becoming androgen independent when he started on a

chemotherapy regimen which has his PSA down low

http://www.yananow.net/Mentors/RickD2.htm

RICK DANCER enthusiastically endorses his Calypso® choice three months after

completion

http://www.yananow.net/Mentors/TerryC.htm

TERRY C our only member in Beijing

has rejected PBT (Proton Beam

Therapy) for the moment and has

taken the Active Surveillance route

http://www.yananow.net/Mentors/TomK.htm

TOM KEATING a second biopsy, after taking Avodart found no significant disease

so he is now on Active Surveillance

http://www.yananow.net/Mentors/H.htm

RICHARD HINTERMEYER Pam brings us up to date with ’s PSA slowly

rising during his ADT (Androgen Deprivation Therapy) holiday

http://www.yananow.net/Mentors/LynnM.htm

LYNN METTS four years after RP (Radical Prostatectomy) at age 47, with

occasional leakage and ED he sometimes wonders if surgery was his best choice

http://www.yananow.net/Mentors/R.htm

DAVID REYNOLDS moved off Active Surveillance after two years and a second

positive biopsy and chose EBRT (External Beam Radiation Therapy)

http://www.yananow.net/Mentors/B2.htm

JOHN BARRACKMAN has decided on the Calypso® EBRT (External Beam Radiation

Therapy) and starts on Sept 21

http://www.yananow.net/Mentors/S3.htm

MICHAEL SHANNON has had his salvage EBRT (External Beam Radiation Therapy) for

failed RP (Radical Prostatectomy) and his PSA is dropping

http://www.yananow.net/Mentors/TonyR.htm

TONY RYAN glad he chose Active Surveillance – his reasoning is

interesting

http://www.yananow.net/Mentors/S2.htm

JAMES SCHWARTZ continues his story of his ADT (Androgen Deprivation Therapy)

after failed RP (Radical Prostatectomy)

REVISED PAGES:

A couple of additions to the How to Survive

PCa page:

1. http://www.yananow.net/survivpc.htm#understand

UNDERSTANDING YOUR DIAGNOSIS with some advice on how to interpret medical

reports

2 http://www.yananow.net/survivpc.htm#lifestyle

CHANGES IN LIFESTYLE – some suggestions of changes that might be

beneficial and a link to a report on prostate cancer and diet

An addition to the site, a fairly large

pdf file linked of the Treatment Choices page – http://www.yananow.net/ReviewofOptions.pdf

IS THERE AN OPTIMAL MANAGEMENT FOR LOCALIZED PROSTATE CANCER?

The results of the MiniPoll http://www.yananow.net/MiniPoll3.htm

DID YOU GET WHAT YOU WANTED? are on the site.

And…….

Introducing http://www.yananow.net/aboutus.htm#georgeh

GEORGE HARDY who, having recovered from the awful effects of his ADT (Androgen

Deprivation Therapy) found he had sufficient energy to spare and volunteered to

help me with the management of reminders to the slackers who don’t

automatically update their stories. Thank you !

And for something a little lighter http://www.yananow.net/troopc.htm#convenience

CONVENIENCE new Cartoon on the TROOP C page

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going

strong

Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html