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In a message dated 8/30/00 1:22:05 PM Eastern Daylight Time,

briffle@... writes:

<<

I am going through some of the worse pain yet. I have had this pain

only one other time before. It's on the left side and extends to the

back. It hurts to breathe, lie down, and sit up. No type of pain

meds make it better. I've been taking Darvon, it does relax me

though. GOOD LUCK WITH SURGERY!

MARIE

>>

Marie, you are saying this is not your normal pain right? This pain is a

pain that is so bad that as you said you cannot breath properly. If you move

the pain is so bad that you feel like screaming is that right? I have had

that pain six different times. Being in the car going to the hospital was

the most terrible ride of my life. If my husband hit a tiny bump in the road

I would scream out. I couldn't control my screaming. When I arrived at the

ER I had my amalase and lipaze taken and they were normal. When I had a CT

scan it showed that my left lung had fibrous tissue in it. I have no proof

but it felt as though something broke loose from my pancreas and went all

thru my chest and back on the left side. I often wondered if it was a cyst

that burst. When I was 27 I had cyst on my ovaries and one of the cyst burst

it spread through out my belly. That pain was the same as the pain I have

gotten on my left side. I believe that very few chronic pancreatitis

sufferers have gotten this pain. If what I described to you is what you are

feeling then please know that I have sympathy for you. That pain is so bad.

It would take days to feel better. If it is what I have experienced it

should feel a little better every day that passes. I am always scared that I

will get that horrible, horrible pain again. Let me know how you are doing.

Shirley

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Hi, I too am having the same excruciating pain in my left rib cage & back.

No one can find out what it is. I am very down. Let me hear from any of you

who have this, please. God bless you all.

Pkskate@...

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In a message dated 8/30/00 10:06:58 PM Eastern Daylight Time, Pkskate@...

writes:

<< Hi, I too am having the same excruciating pain in my left rib cage & back.

No one can find out what it is >>

For me this is atypical Panc. pain. Hurts almost too much to breath. For me

narcotic drugs are the only effective answer, and they don't even work very

good.

Sorry for your condition, and I can only hope you can feel a little better

soon

Poncho

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In a message dated 8/30/00 10:06:53 PM Eastern Daylight Time, Pkskate@...

writes:

<< ----------------------------------------------------_->

Hi, I too am having the same excruciating pain in my left rib cage & back.

No one can find out what it is. I am very down. Let me hear from any of

you

who have this, please. God bless you all.

>>

Hi, I know exactly what you are going thru. I had that same pain 5 or 6

different times. I like to forget that pain and how many times I have had

it. It is worse than a panc. attack. One cannot breath properly. If you

take a breath it has to be very shallow. No deep breathing, no jarring, no

quick movements. Every movement has to be done very carefully. It is so

scary. No one in the medical field knows what we are talking about. I

believe it is doing damage to our lungs. Especially the left lung. As I

said before my left lung is now fibrous and I truly believe that is the

result of what happens to the pancreas that causes all that extreme pain.

Those of you that have never experienced this pain count yourselves very

lucky. I hope that you feel better very soon. Just take it day by day.

Shirley

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