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Danna,

Wow that is amazing. I have never heard of that. I feel so bad for him.

Is this something due to RSS or just hereditary from his dad? I have heard

other parents speak of dental issues and it is in the literature for RSS. I

was wondering if they were speaking of decay or crookedness or something

else.

Thanks.

Judy

catheter

> > >

> > >

> > > >

> > > >

> > > > Danna,

> > > > My had the same kind of catheter as yours. What a pain it

was.

> > You

> > > > would think they would come up with something smaller for children.

We

> > > have

> > > > a picture of him " strapped up " walking around. I hate looking at the

> > > > pictures of him around surgeries. He is so pale and sick looking. At

> the

> > > > moment we are still checking on 's stream (not easy with a boy

> > almost

> > > > 10yrs.). I guess it never stops. So far so good with us. Our story

was

> > in

> > > > two newsletters ago. It was a nightmare.

> > > > I'm certainly keeping you in my thoughts and prayers as you head

> into

> > > > this area again.

> > > >

> > > > Pat- Mom to - 9 1/2yrs. RSS, had hypospadias, periactin, GH,

> > > > slight assymytry

> > > > Laine- 6yrs., no RSS

> > > >

> > > >

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