Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Actually, it's just something I have for an overnight test and return it today. It remained at that overnight too. Do I need one permenantly? > > > > > > > > Hi Ann, > > > > I'm happy to welcome you hear but as everyone says, I'm sorry > you > > > have reason to seek this group out. You don't say specifically > how > > > your doctor made this diagnosis was it based on a chest x-ray, a > ct > > > scan, a pulmonary function test? I would think it is doubtful > that > > > your doctor could be mistaking surgical scarring in the breast > > tissue > > > for fibrosis (lung scarring) in the lower portion of both lungs. > > > However anything is possible so I would ask that question of your > > > doctor asap. > > > > Did he tell you anything else other than IPF? Has he mentioned > > any > > > further testing or a referral to a specialist? If you're > someplace > > > where you have access to a teaching hospital, I'd suggest > starting > > > there. > > > > Good luck and please keep in touch with us. We've all been down > > > this road and there is no greater support than this board! > > > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06 > > > > > > > > " For as long as I shall live, I will testify to Love. " > > > > > > > > > > > > > > > > > > > > > > > > New Member question > > > > > > > > Hi everyone. I am new to the group and my name is Ann. I am > > > still > > > > in a state of shock from the diagnosis last Wednesday and > perhaps > > a > > > > little in denial. Yet, I would like to draw on your significant > > > > knowledge of Idiopathic Pulmonary Fibrosis to try to get an > > answer > > > to a > > > > question I have. > > > > > > > > I do not have some of the symptoms that I have read on the > > > internet, > > > > but the doctor said I had some scarring at the bottom of each > > lung. > > > He > > > > asked if I'd had pneumonia other than when I was a child and I > > said > > > not > > > > to my knowledge. Since I came home I remembered that I had > breast > > > > surgery some years ago (10-12) and I am wondering if the > scarring > > > from > > > > that would be showing up on the images. I know this is > something > > > that > > > > you may not be qualified to answer, but since the scars from > that > > > > surgery are very close to what I perceive as the lower portion > of > > > my > > > > lungs, it seemed possible to me. I haven't gone for my second > > > opinion > > > > yet, but of course I will do that too. Your responses will be > > > greatly > > > > appreciated. Thanks. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Well, you know now that at rest and sleep you're ok, so the issue is what about after activity. The easiest measurement is to walk for six minutes and see, but you can also check just by doing normal things. Do you need one permanently? Well, in my opinion you will need a finger pulse oximeter once you are found to need oxygen, if you are. It's the only way I know to monitor and know what is happening under varying conditions. Understand some doctors disagree. I think for COPD they may have a point, but not for PF. I would say the majority of us have a finger pulse oximeter. > > > > > > > > > > Hi Ann, > > > > > I'm happy to welcome you hear but as everyone says, I'm sorry > > you > > > > have reason to seek this group out. You don't say specifically > > how > > > > your doctor made this diagnosis was it based on a chest x- ray, > a > > ct > > > > scan, a pulmonary function test? I would think it is doubtful > > that > > > > your doctor could be mistaking surgical scarring in the breast > > > tissue > > > > for fibrosis (lung scarring) in the lower portion of both > lungs. > > > > However anything is possible so I would ask that question of > your > > > > doctor asap. > > > > > Did he tell you anything else other than IPF? Has he > mentioned > > > any > > > > further testing or a referral to a specialist? If you're > > someplace > > > > where you have access to a teaching hospital, I'd suggest > > starting > > > > there. > > > > > Good luck and please keep in touch with us. We've all been > down > > > > this road and there is no greater support than this board! > > > > > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06 > > > > > > > > > > " For as long as I shall live, I will testify to Love. " > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > New Member question > > > > > > > > > > Hi everyone. I am new to the group and my name is Ann. I > am > > > > still > > > > > in a state of shock from the diagnosis last Wednesday and > > perhaps > > > a > > > > > little in denial. Yet, I would like to draw on your > significant > > > > > knowledge of Idiopathic Pulmonary Fibrosis to try to get an > > > answer > > > > to a > > > > > question I have. > > > > > > > > > > I do not have some of the symptoms that I have read on the > > > > internet, > > > > > but the doctor said I had some scarring at the bottom of each > > > lung. > > > > He > > > > > asked if I'd had pneumonia other than when I was a child and > I > > > said > > > > not > > > > > to my knowledge. Since I came home I remembered that I had > > breast > > > > > surgery some years ago (10-12) and I am wondering if the > > scarring > > > > from > > > > > that would be showing up on the images. I know this is > > something > > > > that > > > > > you may not be qualified to answer, but since the scars from > > that > > > > > surgery are very close to what I perceive as the lower > portion > > of > > > > my > > > > > lungs, it seemed possible to me. I haven't gone for my second > > > > opinion > > > > > yet, but of course I will do that too. Your responses will be > > > > greatly > > > > > appreciated. Thanks. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Glad you're a bit better. See, to me the worst thing was them letting you go home too soon and your aftercare. I fear so as to what if you'd waited until your appointment. For you it wasn't the surgery but the sloppiness in taking care of the patient that turned it all bad. That makes me even angrier knowing it just didn't have to be that way. It I could sit here and tell you pneumonia was a worry and to get to a doctor, why couldn't they have? See, my surgery went fine but some of the things that happened in the hospital were so sloppy and inexcusable. I also developed pneumonia but not as bad as you and hopefully am over it. I see my pulmonologist (I recently switched) on Friday. > > > > Hi Ann, > > I'm happy to welcome you hear but as everyone says, I'm sorry you > have reason to seek this group out. You don't say specifically how > your doctor made this diagnosis was it based on a chest x-ray, a ct > scan, a pulmonary function test? I would think it is doubtful that > your doctor could be mistaking surgical scarring in the breast tissue > for fibrosis (lung scarring) in the lower portion of both lungs. > However anything is possible so I would ask that question of your > doctor asap. > > Did he tell you anything else other than IPF? Has he mentioned any > further testing or a referral to a specialist? If you're someplace > where you have access to a teaching hospital, I'd suggest starting > there. > > Good luck and please keep in touch with us. We've all been down > this road and there is no greater support than this board! > > > > Beth in NC age 48 Fibrotic NSIP 06/06 > > > > " For as long as I shall live, I will testify to Love. " > > > > > > > > > > > > New Member question > > > > Hi everyone. I am new to the group and my name is Ann. I am > still > > in a state of shock from the diagnosis last Wednesday and perhaps a > > little in denial. Yet, I would like to draw on your significant > > knowledge of Idiopathic Pulmonary Fibrosis to try to get an answer > to a > > question I have. > > > > I do not have some of the symptoms that I have read on the > internet, > > but the doctor said I had some scarring at the bottom of each lung. > He > > asked if I'd had pneumonia other than when I was a child and I said > not > > to my knowledge. Since I came home I remembered that I had breast > > surgery some years ago (10-12) and I am wondering if the scarring > from > > that would be showing up on the images. I know this is something > that > > you may not be qualified to answer, but since the scars from that > > surgery are very close to what I perceive as the lower portion of > my > > lungs, it seemed possible to me. I haven't gone for my second > opinion > > yet, but of course I will do that too. Your responses will be > greatly > > appreciated. Thanks. > > > > > > > > > Caro > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > Mississippi > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 OMG thats great.....the spirometer part that is. Wasn't it such a feeling of accomplishment when you saw it hit 1200? Just keep at it regularly and with your meds you'll be there. Look at the improvement already. One thing I like about the spirometer is that its an objective measurement. I knew definitely I needed something when mine was down. I'm better at reading guages than feeling how I feel sometimes so spirometer and oximeter tell me. And thats the way it happens...you hit one high, a couple close. One thing that helps is if you're doing ten to do sets of three or so with big exhales between the sets and regrouping and inhaling for all you're worth. > > > > > > Hi Ann, > > > I'm happy to welcome you hear but as everyone says, I'm sorry you > > have reason to seek this group out. You don't say specifically how > > your doctor made this diagnosis was it based on a chest x-ray, a ct > > scan, a pulmonary function test? I would think it is doubtful that > > your doctor could be mistaking surgical scarring in the breast > tissue > > for fibrosis (lung scarring) in the lower portion of both lungs. > > However anything is possible so I would ask that question of your > > doctor asap. > > > Did he tell you anything else other than IPF? Has he mentioned > any > > further testing or a referral to a specialist? If you're someplace > > where you have access to a teaching hospital, I'd suggest starting > > there. > > > Good luck and please keep in touch with us. We've all been down > > this road and there is no greater support than this board! > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06 > > > > > > " For as long as I shall live, I will testify to Love. " > > > > > > > > > > > > > > > > > > New Member question > > > > > > Hi everyone. I am new to the group and my name is Ann. I am > > still > > > in a state of shock from the diagnosis last Wednesday and perhaps > a > > > little in denial. Yet, I would like to draw on your significant > > > knowledge of Idiopathic Pulmonary Fibrosis to try to get an > answer > > to a > > > question I have. > > > > > > I do not have some of the symptoms that I have read on the > > internet, > > > but the doctor said I had some scarring at the bottom of each > lung. > > He > > > asked if I'd had pneumonia other than when I was a child and I > said > > not > > > to my knowledge. Since I came home I remembered that I had breast > > > surgery some years ago (10-12) and I am wondering if the scarring > > from > > > that would be showing up on the images. I know this is something > > that > > > you may not be qualified to answer, but since the scars from that > > > surgery are very close to what I perceive as the lower portion of > > my > > > lungs, it seemed possible to me. I haven't gone for my second > > opinion > > > yet, but of course I will do that too. Your responses will be > > greatly > > > appreciated. Thanks. > > > > > > > > > > > > > > > > > Caro > > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > > Mississippi > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > Try it now. > > > > > > > > > Caro > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > Mississippi > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 There is a huge difference between living in a bubble and being around kids with colds when you have pneumonia. Don't get confused emotionally from thinking through it logically, please. Now, you will be able to do most things you want to when you get over the pneumonia. But, you can't....cannot.....please don't.....be around sick people. I even separate and wait in the hall when I go to my primary physician. But, I still get out in public. Yes, it hurts to say no to your grandkids, but you must. My ex-wife (we're very close) is sick this weekend and yesterday needed something to eat. She lives a couple of miles away. But, she knows I can't come in. So, I pick up something at Chili's, I go and open her garage door, open the door inside and leave it on her dryer, close the door and leave. We talk on the phone but never see each other or touch in the exchange. I'm on oxygen 24/7 but I still get out and around. I intend to travel. However, the one absolute concession is to avoid colds and flu. Also, when you are in condition if you haven't you need a flu vaccine and pneumonia vaccine. So happy with your efforts on the spirometer. Look at the improvement in one day. You're on the way with that and the meds. A few days and you'll be so much better. Just don't risk it with germs. > > > > > > > > Hi Ann, > > > > I'm happy to welcome you hear but as everyone says, I'm sorry > you > > > have reason to seek this group out. You don't say specifically > how > > > your doctor made this diagnosis was it based on a chest x-ray, a > ct > > > scan, a pulmonary function test? I would think it is doubtful > that > > > your doctor could be mistaking surgical scarring in the breast > > tissue > > > for fibrosis (lung scarring) in the lower portion of both lungs. > > > However anything is possible so I would ask that question of your > > > doctor asap. > > > > Did he tell you anything else other than IPF? Has he mentioned > > any > > > further testing or a referral to a specialist? If you're > someplace > > > where you have access to a teaching hospital, I'd suggest > starting > > > there. > > > > Good luck and please keep in touch with us. We've all been down > > > this road and there is no greater support than this board! > > > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06 > > > > > > > > " For as long as I shall live, I will testify to Love. " > > > > > > > > > > > > > > > > > > > > > > > > New Member question > > > > > > > > Hi everyone. I am new to the group and my name is Ann. I am > > > still > > > > in a state of shock from the diagnosis last Wednesday and > perhaps > > a > > > > little in denial. Yet, I would like to draw on your significant > > > > knowledge of Idiopathic Pulmonary Fibrosis to try to get an > > answer > > > to a > > > > question I have. > > > > > > > > I do not have some of the symptoms that I have read on the > > > internet, > > > > but the doctor said I had some scarring at the bottom of each > > lung. > > > He > > > > asked if I'd had pneumonia other than when I was a child and I > > said > > > not > > > > to my knowledge. Since I came home I remembered that I had > breast > > > > surgery some years ago (10-12) and I am wondering if the > scarring > > > from > > > > that would be showing up on the images. I know this is > something > > > that > > > > you may not be qualified to answer, but since the scars from > that > > > > surgery are very close to what I perceive as the lower portion > of > > > my > > > > lungs, it seemed possible to me. I haven't gone for my second > > > opinion > > > > yet, but of course I will do that too. Your responses will be > > > greatly > > > > appreciated. Thanks. > > > > > > > > > > > > > > > > > > > > > > > > > Caro > > > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > > > Mississippi > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with Yahoo! > Mobile. > > Try it now. > > > > > > > > > > > > > > > > > Caro > > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > > Mississippi > > > > --------------------------------- > > Looking for last minute shopping deals? Find them fast with Yahoo! > Search. > > > > > > > > > Caro > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > Mississippi > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
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