Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Most of us have significant differences from rest to activity. We adjust out flow to take care of it. While youre returns quickly you say, I've been told to try to avoid letting it drop to start with and 76 to 80 is way too far as long as you have room to increase flow and perhaps avoid it. Even at my low levels, my needs vary by as much a four liters from resting to treadmill (using the extremes). Also, I do generally require more on pulse or intermittent than I do on continuous flow. I'm assuming by intermittent you mean pulse? I find that very unusual when at home or resting. Normally its used for mobility to conserve. Now, it may have to do with deliveries where you are. I hope you're on continuous for sleep as your breathing patterns change significantly. I have never heard of pulse being used for sleep. > > > > > > Hi all, > > > > > > First off, I haven't read any posts since last night, but was > > > wondering has anyone heard from Joyce or Irene yet? I hope they > > are > > > both doing well today. > > > > > > I went this morning and had my chest x-ray. No pleurisy as they > > > thought, just pneumonia in both lungs, worse on the right. He > said > > I > > > was barely pulling any air through. ER doc said it was so bad he > > > could have diagnosed it without a chest x-ray! Sent home on > > > prednisone and Levaquin, followup with pulmo next week. The thing > > > that got me was they hand me this sheet of paper with my orders > on > > it > > > and under Clinical Indication for chest x-ray it says " SOB on > > > inspiration, 11 days status post right lung biopsy, END STAGE > LUNG > > > DISEASE. " > > > > > > Nobody told ME it was end stage!! How come I didn't know it had > > > gotten that bad? I was thinking I was doing fairly well, as I > have > > > not even been placed on home O2 yet!! I was thinking I had a > > little > > > time left, now I don't know. > > > > > > And the darndest thing of all is that I STILL have not seen > MICKEY > > > MOUSE in person yet!!! > > > > > > Caro > > > > > > > > > > > > > > > > > Caro > > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > > Mississippi > > > > --------------------------------- > > Looking for last minute shopping deals? Find them fast with Yahoo! > Search. > > > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Sleep is easy to examine. Shouldn't be a problem getting doctor to prescribe and supplier to bring an overnight recorder. Everyone's oxygen drops during sleep. I can't imagine you needing what you do when awake and not needing at least 3 liters when asleep. In fact, I'll bet right now that you're under 90 at least 25% of the time asleep. The sleep problems are another issue, but even with no problems as you relax asleep your breathing slows down. So your oxygen drops with or without sleep problems. Now, as to awake. You need to look at different systems before the need is urgent. The fact you're maxed out on your units isn't good. I always want to be a step ahead. There is no reason for you to be oxygen deprived at this stage when so many options are still available. I would start discussing alternatives with your supplier and I'm sure the choices will be influenced heavily by where you're located. > > > > > > > > Hi all, > > > > > > > > First off, I haven't read any posts since last night, but was > > > > wondering has anyone heard from Joyce or Irene yet? I hope they > > > are > > > > both doing well today. > > > > > > > > I went this morning and had my chest x-ray. No pleurisy as they > > > > thought, just pneumonia in both lungs, worse on the right. He > > said > > > I > > > > was barely pulling any air through. ER doc said it was so bad > he > > > > could have diagnosed it without a chest x-ray! Sent home on > > > > prednisone and Levaquin, followup with pulmo next week. The > thing > > > > that got me was they hand me this sheet of paper with my orders > > on > > > it > > > > and under Clinical Indication for chest x-ray it says " SOB on > > > > inspiration, 11 days status post right lung biopsy, END STAGE > > LUNG > > > > DISEASE. " > > > > > > > > Nobody told ME it was end stage!! How come I didn't know it had > > > > gotten that bad? I was thinking I was doing fairly well, as I > > have > > > > not even been placed on home O2 yet!! I was thinking I had a > > > little > > > > time left, now I don't know. > > > > > > > > And the darndest thing of all is that I STILL have not seen > > MICKEY > > > > MOUSE in person yet!!! > > > > > > > > Caro > > > > > > > > > > > > > > > > > > > > > > > > > Caro > > > Asthma 1976,Osteoarthritis 2002, COPD 02/06, IPF 08/06, UIP 01/08 > > > Mississippi > > > > > > --------------------------------- > > > Looking for last minute shopping deals? Find them fast with > Yahoo! > > Search. > > > > > > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > Try it now. > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
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