Re: Re: Digest Number 374-Shirley

[Guest guest]

In a message dated 8/10/00 8:31:43 PM Eastern Daylight Time,

dhollis062@... writes:

<< That was when I

went on TPN for 14 months. In Feb of 95 I went to MUSC and had my first

stent.By the second week it had shifted and caused more pain and nausea, so

they took it out. I repeated the stent in May of 99. Basically, we just have

to do what we can until the ducts occlude again and have to be reopened.

When I was in MUSC in May99, the doc told me that if I continued to have

trouble keeping the duct open, surgery was next.Don't know what kind...too

afraid to ask. As far as how much I eat, I can have about 1/3 of what normal

peolpe can eat. I try to graze all day and just snack. When I try to eat a

full meal, I feel very bloated and uncomfortable. I can get probably a cup

of food at a time,which is better than what you have to do. Well now that

I've babbled on...I usually end up having days where I fast or eat just

crackers or toast.It just depends on how the day is going.

You're right...it is a terrible way to live. I have even asked God to let me

die...but He won't. So I must be here for a reason and I trust He knows what

He's doing.

Diane

Truly,truly I say to you,unless one is born again,he cannot see the kingdom

of God(3:3) >>

Hi Diane, you are doing much better than I am with divisim. Stents don't

keep my duct open when they are removed. The first 7 days of a new stent I

can eat one-third of a meal. After the 7 days I shut down and am not able to

eat anymore. How well did you eat with the stent in? Did you have Dr.

Cotton at SC? Do you get bad pancreatitis very often and have to go to the

hospital? I would also love to know if any others in the group get sick on

lipids in tpn? You sound as though you can eat enough to nourish your body.

That is so wonderful. The doctor in Indy. said that they are thinking about

using steroids for the ducts in the future. I take it as a new experiment

thing to see what it will do for divisim people. I have so much scar tissue

in my duct and after a while the scar tissue closes the duct completely.

That's when I get pancreatitis for no reason. No eating or anything to cause

it but the scar tissue. There has to be a better way to treat our disease

than stents. A surgeon told me that I have been over treated with stents.

He doesn't believe in them. He says they cause so much damage which results

in cp. I am the youngest of six children and I was a change of life baby. I

spoke with a woman the other day and she was the youngest of seven children

and a change of life baby also who has divisim. Strange, I wonder being a

change of life baby has anything to do with divisim. Sometimes I think with

all the medical profession can do for hearts why can't they do something for

divisim. I know this is silly but I sometimes think if they could put a

little tube in our pancreas to connect the duct is divided that would

fix us up and why can't they. If divisim or cp were as common as heart

problems we would be well right now. If only! Thanks Debbie for information

and I hope I haven't bombarded you with too many questions. Shirley

[Guest guest]

In a message dated 08/10/2000 8:31:42 PM Eastern Daylight Time,

dhollis062@... writes:

<< You're right...it is a terrible way to live. I have even asked God to let

me

die...but He won't. So I must be here for a reason and I trust He knows what

He's doing. >>

Hi Diane!

You are so right! There is a reason for each of us to be here. I just

recently found that out for myself. When I came home from my hospital stay

last year, I couldn't walk from being in a coma for so long, I couldn't talk

from the trach I had, my ex-fiance had left me and took all of my savings,

and to top it all off my ill brother passed away while I was still in a coma.

I couldn't understand for the longest time why in the world God would let me

come back to a life like that. I was very angry for a long time and then

everything started coming together for me. I met an old flame of 18 years

after being home 2 months and we were married in March of this year. There

is my purpose! There is a " master plan " that he has for each and every one

of us I am convinced. I went to my eye doctor the other day and they had a

sign in their office which read: " To the world you might be one person, but

to one person you might be the world " I thought those were beautiful

words to live by.

Hugs to you,

(Indy)