Upcoming sinus surgery & misc.

[Guest guest]

Hi friends!

First off, I want to apologize for not responding to those of you who

were so kind to write me about 's upcoming sinus surgery and

adenoidectomy. I've been incredibly busy trying to tie up all the loose ends

(major headache, especially considering our ins. co. is dismantling and

moving out of the Northeast!) And as if that's not difficult enough, I

believe my daughter (7 1/2 w/o CF) has some subconscious anxiety about

(4 1/2 w/CF), particularly this procedure, and has been having major

trouble sleeping (despite OTC sleeping pills with her Drs. approval.) I've

been trying to get her to see a child psychologist that uses play therapy,

but because of our current insurance issues...it's been pretty impossible!

is actually looking foward to his surgery because he knows that it

will take care of his headaches, even though it requires a one night hospital

stay and he figured he'll have an IV. We even told him that he may not throw

up as much and he might even want to eat a little more (he's basically

totally tube fed.) He was very pleased about both! However, I am kind of

stressing at the moment. Our schedule post-op sounds ridiculous, at least

for the first few months. We already have a tough time squeezing in 4 tube

feeds, 1-2 vest & nebs daily, in addition to preschool 3 mornings each week.

And post-op we will have to make room for an additional 2 daily nebs of Tobi

and 3 nasal irrigations (and there is a slim chance he'll come home on IVs.)

When, where, or how do I find the time to squeeze these in? Obviously, we

will somehow...but it is just getting so hard to keep my kids " normal, "

whatever that is! I can barely schedule all of 's " stuff " around

driving to and from school, her 1 weekly musical theater class, and

's preschool and 4 Tae Kwon Do classes each week (which I don't want to

change because it is wonderful exercise!) Additionally, 's CF Dr. is

not meeting my needs and we are strongly considering a switch, and have been

for a while. Some how, we will find a way...I guess I'm just venting. I'm

trying not to even think about September when he is supposed to start

kindergarten.....!?

Fondly,

Liz { & 's mom}