Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Thinking of you....haven't seen you posting....all alright? Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Well, thanks for saying damnit. We need that too....darn I posted before I saw hers and she'll know I was concerned. Oh, she already knows how I feel about her. It has been a tough few days. So, Sher....lighten up with us just a minute and lets hear your dream places to go if we haven't already. > > Leanne... thanks for asking. I've been lurking more than posting. My sadness level is saturated and over-flowing. I know everyone else feels the same way of course. However Mama-Sher is emotionally wrung out. > Card in the mail to Joyce...my prayers continue for her and Gwynnie and Peggy and Irene and Bruce, I hope you're doing ok on the " P " . I pray for us all. I could type in every name, please don't feel slighted if I don't mention you personally. > " They also serve who only stand and wait " ...and pray. > I'm around. The best I can contribute now is, " Damnit, DAMNIT " > Love ya all. > Mama-Sher, 69; IPF, 3-06, OR. > Don't fret about tomorrow, God is already there! > Sher > > > Thinking of you....haven't seen you posting....all alright? > > Leanne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Bruce... when I was off computer for a couple of days there were so many emails that I could only briefly look through them and delete. I didn't see one re: the "P" you have been on. Any problems? I bet not, other than the chocolate cravings. My dream places are any place there is a beach. I'll see Tina there I'll bet. I love lush green pastures , trees and mountains in the background . Less than 2 hours to either one from where we live. Lucky us. Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Sher> > > Thinking of you....haven't seen you posting....all alright?> > Leanne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 You can find cards for international from the U.S. as low as 1.5 cents per minute. In fact, I bought 1600 minutes to Canada for $20. There are some cards to call the U.S. from Australia in the 1 to 2 cents range. However, there are upcharges for the 800 number. So, the least expensive I saw initially for an 800 call was about 8 to 10 cents per minute. I hadn't dialed much international on my cell phone and found out my price was 49 cents per minute. Now I have an international plan for times I don't use my phone card at 9 cents per minute. Best of all I did this on January 30 and they changed all my January calls so needless to say I paid for my $4 international plan for many many months in my January savings alone. But your 3 cents per minute is good and probably very simple to use which is nice. I only use a cell phone so my long distance is free. So, next time you want to talk, I'll call you and it won't cost either of us. > > > > > > > > Welcome Dawn, > > > > Gosh you have been through the > > > > wringer...you'll find lots to share with this Forum & there are > > others > > > > that have complex medical problems like you. Always comforting > to > > know > > > > that at least you're not entirely alone. > > > > Everyone here is interested & > > > > supportive....hang in there girl...write as often as you feel > the > > > > need...it really DOES help! > > > > Regards, > > > > in Oz (Australia) > > > > IPF: Fibrotic NSIP/UIP??? > > > > Reynauds' > > > > May 2007 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Bruce.... I wasn't clear...I mean the 3 cents is for within the U.S.A. I've never called international so I don't have those numbers. I don't even know if I have free l/d on my cell phone. Duh. Guess I sure could call and find out. I just use the phone card.......free is a better cost than even 3 cents! I only have 100 minutes on my cell. I seldom use it...it's for emergency mostly or a quick contact w/someone. Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Sher You can find cards for international from the U.S. as low as 1.5 cents per minute. In fact, I bought 1600 minutes to Canada for $20. There are some cards to call the U.S. from Australia in the 1 to 2 cents range. However, there are upcharges for the 800 number. So, the least expensive I saw initially for an 800 call was about 8 to 10 cents per minute.I hadn't dialed much international on my cell phone and found out my price was 49 cents per minute. Now I have an international plan for times I don't use my phone card at 9 cents per minute. Best of all I did this on January 30 and they changed all my January calls so needless to say I paid for my $4 international plan for many many months in my January savings alone. But your 3 cents per minute is good and probably very simple to use which is nice. I only use a cell phone so my long distance is free. So, next time you want to talk, I'll call you and it won't cost either of us.> > > >> > > > Welcome Dawn,> > > > Gosh you have been through the> > > > wringer...you'll find lots to share with this Forum & there are> > others> > > > that have complex medical problems like you. Always comforting > to> > know> > > > that at least you're not entirely alone.> > > > Everyone here is interested & > > > > supportive....hang in there girl...write as often as you feel > the> > > > need...it really DOES help!> > > > Regards,> > > > in Oz (Australia)> > > > IPF: Fibrotic NSIP/UIP???> > > > Reynauds'> > > > May 2007> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Yes....still your phone card is a good deal....3 cents is much less than if you dialed without it. I realized it was US. Well, probably with only 100 minutes free long distance on your cell not worth it. I don't have a regular phone so use my cell quite a bit. In fact bill probably will show up online tomorrow. I may have been bad this month. But I have a good plan so extra minutes not too bad. > > > > > > > > > > Welcome Dawn, > > > > > Gosh you have been through the > > > > > wringer...you'll find lots to share with this Forum & there > are > > > others > > > > > that have complex medical problems like you. Always > comforting > > to > > > know > > > > > that at least you're not entirely alone. > > > > > Everyone here is interested & > > > > > supportive....hang in there girl...write as often as you > feel > > the > > > > > need...it really DOES help! > > > > > Regards, > > > > > in Oz (Australia) > > > > > IPF: Fibrotic NSIP/UIP??? > > > > > Reynauds' > > > > > May 2007 > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Let me substitute a word: instead of " didn't talk.....but " which was sort of sarcastic too, lets substitute " only talked " 2800 minutes. Still sarcastic as that is a whole lot of minutes. But everyone was worth it. I may talk 5000 this month. lol -- In Breathe-Support , " Sher Bauman " wrote: > > Bruce... I'm dense I guess. 2800 minutes and you didn't talk??? You'll need to 'splain that one to me. > Mama-Sher, 69; IPF, 3-06, OR. > Don't fret about tomorrow, God is already there! > Re: Sher > > > I didn't talk on my cell phone but 2800 minutes in January....lol > > > > > > > > > > > > > > > > Welcome Dawn, > > > > > > > Gosh you have been through the > > > > > > > wringer...you'll find lots to share with this Forum & > > there > > > are > > > > > others > > > > > > > that have complex medical problems like you. Always > > > comforting > > > > to > > > > > know > > > > > > > that at least you're not entirely alone. > > > > > > > Everyone here is interested & > > > > > > > supportive....hang in there girl...write as often as > you > > > feel > > > > the > > > > > > > need...it really DOES help! > > > > > > > Regards, > > > > > > > in Oz (Australia) > > > > > > > IPF: Fibrotic NSIP/UIP??? > > > > > > > Reynauds' > > > > > > > May 2007 > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Mama Sher Good luck tomorrow. I hope everything go as expected. IPF 2/07 IL --- Sher Bauman wrote: > Dawn... watch the board, as we all are , for > updates about Joyce. Peggy usually posts about her. > Peggy and Joyce have become very close through the > board here. Great friendships are formed here and > people get together and meet when they can. I've > personally met R. when she was in Oregon > visiting a daughter. We had a great visit. Talked > until I had to beg off...couldn't talk anymore. lol > Be sure and check out the photo albums...most of us > have albums there. Put one on for you too. > Yes, my multiple health issues have me a bit down > right now. Always something to deal with, another > Dr. to see. We here on the board 'get it'. I'm sure > my age plays a part too and some of the meds I take > affect me. > But I'm no different from most of us here. It's just > my turn to be down I guess. > Having cataract surgery in the morning and I'll bet > that will give me a 'brighter' outlook! > Nice you are already active on the board. > Also watch for 'chats' that take place. Leanne will > post when, how and what time. > > Mama-Sher, 69; IPF, 3-06, OR. > Don't fret about tomorrow, God is already there! > New member here > > > > > > Hello. My name is Dawn, I'm 34, and was just > diagnosed with PF on > > Thursday...however have been experiencing strong > symptoms and begging > > the Dr's. to take me seriously for the past 5 > months. I live in an > > extremely small town in N.B., Canada, so to get > scheduled for tests > > and procedures, it seems like you have to wait > an eternity! *sigh* I > > have a very complicated medical history and so I > at least know that my > > PF is NOT the IPF variety, as I know mine is > related to my autoimmune > > disease. In 2001, when I was 28, I was diagnosed > with the autoimmune > > disease, Polymyositis and I also tested positive > for the anti JO-1 > > antibody. Apparently this antibody means that > you have a very high > > chance at getting an ILD. I was also diagnosed > with Sjogrens Syndrome > > and Raynauds Phenomenon during this time. > Immediately prior to > > getting diagnosed with the above, I had 2 blood > clots in my left leg > > and 3 blood clots in my lungs, therefore, I am > now taking Warfarin for > > life. I've also had Asthma since childhood. > That's my medical history > > in a nutshell. Over the past 5 months, I haven't > been able to breathe > > doing the simplest of tasks, such as bathing > (that's the worst!), > > getting dressed or changed, and sometimes even > brushing my teeth or > > washing my face. I have this intense burning in > my chest when I > > inhale and it just about kills me to yawn, > because of that burning > > sensation (all my Dr.'s would do is lecture me > about GERD when I > > talked to them about this but I knew it had > nothing to do with GERD > > since my GERD is very well controlled. It was > finally a CT Scan that > > I had done 2 weeks ago that apparently confirmed > my PF diagnosis and > > apparently I am at the " early stage " . I have > seen my Pulmonologist > > once previous to having my CT Scan done and I > will see him again but I > > am waiting to have a 2nd set of Pulmonary > Function test performed > > (along with blood gases), as well as an > Echocardiogram done. When my > > GP told me my diagnosis on Thursday, she > basically told me the news as > > if she were diagnosing me with the common cold. > It was very matter of > > fact (and dare I say chipper?) and she sent me > out the door. Of > > course I didn't know what it was she was talking > about so I was > > absolutely fine then and there but once I got > home and did some > > research and let the news register, I got REALLY > upset at the way she > > told me. We've had an awesome relationship over > the past 15 years and > > I just can't believe that she wouldn't have more > sympathy than that!!? > > To be perfectly honest, I'm feeling quite > hopeless. Is this as bad as > > I think it is?? I know you all are in the same > boat as I am and > > probably have had to deal with all the ugliness > this disease brings > > for far too long and I'm so sorry I had to find > you this way!! > > However, I desperately need your support right > now and all the advice > > that you have to offer. Thankyou! > > > > Dawn, 34, married, mother of 2 girls, ages 11 & > 9 > > > > > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Mama-Sher: You are in my prayers every day - but today even more so. God Bless Tina IPF 04/07 PH 11/07 Ohio > > > > > > Dawn.... I haven't been posting for a small > > while and pop in to > > check on members who are " dealing " with heavy > > health issues. One of > > our members (Joyce) is currently in the hospital > > and very ill... > > > I have to take a wee break from the sadness of > > what we can face here > > on this board. > > > I was Dx (diagnosed) IPF 3-06 and have remained > > fairly stable. I'll > > be 70 this year and deal w/other chronic health > > problems like most of us. > > > You have been through a lot and you are quickly > > getting an education > > about our disease. You will learn more from this > > board. > > > We're all sorry to meet " this way " but it isn't > > long until we wonder > > how we could manage without each other! > > > I read your disappointment about your > > long-standing Dr. Is there a > > chance she was dealing with her own feelings? It > > has to be hard to > > tell a patient with which one has had " an awesome > > relationship " such > > staggering news. Don't throw the baby out with the > > bath water. Talk to > > her. I know you will be glad you did. You two have > > a history together > > but you will no doubt be seeing a pulmonologist > > regularly. > > > There are many other younger moms on the board, > > they will be posting > > you. > > > God bless. > > > Mama-Sher, 69; IPF, 3-06, OR. > > > Don't fret about tomorrow, God is already there! > > > New member here > > > > > > > > > Hello. My name is Dawn, I'm 34, and was just > > diagnosed with PF on > > > Thursday...however have been experiencing strong > > symptoms and begging > > > the Dr's. to take me seriously for the past 5 > > months. I live in an > > > extremely small town in N.B., Canada, so to get > > scheduled for tests > > > and procedures, it seems like you have to wait > > an eternity! *sigh* I > > > have a very complicated medical history and so I > > at least know that my > > > PF is NOT the IPF variety, as I know mine is > > related to my autoimmune > > > disease. In 2001, when I was 28, I was diagnosed > > with the autoimmune > > > disease, Polymyositis and I also tested positive > > for the anti JO-1 > > > antibody. Apparently this antibody means that > > you have a very high > > > chance at getting an ILD. I was also diagnosed > > with Sjogrens Syndrome > > > and Raynauds Phenomenon during this time. > > Immediately prior to > > > getting diagnosed with the above, I had 2 blood > > clots in my left leg > > > and 3 blood clots in my lungs, therefore, I am > > now taking Warfarin for > > > life. I've also had Asthma since childhood. > > That's my medical history > > > in a nutshell. Over the past 5 months, I haven't > > been able to breathe > > > doing the simplest of tasks, such as bathing > > (that's the worst!), > > > getting dressed or changed, and sometimes even > > brushing my teeth or > > > washing my face. I have this intense burning in > > my chest when I > > > inhale and it just about kills me to yawn, > > because of that burning > > > sensation (all my Dr.'s would do is lecture me > > about GERD when I > > > talked to them about this but I knew it had > > nothing to do with GERD > > > since my GERD is very well controlled. It was > > finally a CT Scan that > > > I had done 2 weeks ago that apparently confirmed > > my PF diagnosis and > > > apparently I am at the " early stage " . I have > > seen my Pulmonologist > > > once previous to having my CT Scan done and I > > will see him again but I > > > am waiting to have a 2nd set of Pulmonary > > Function test performed > > > (along with blood gases), as well as an > > Echocardiogram done. When my > > > GP told me my diagnosis on Thursday, she > > basically told me the news as > > > if she were diagnosing me with the common cold. > > It was very matter of > > > fact (and dare I say chipper?) and she sent me > > out the door. Of > > > course I didn't know what it was she was talking > > about so I was > > > absolutely fine then and there but once I got > > home and did some > > > research and let the news register, I got REALLY > > upset at the way she > > > told me. We've had an awesome relationship over > > the past 15 years and > > > I just can't believe that she wouldn't have more > > sympathy than that!!? > > > To be perfectly honest, I'm feeling quite > > hopeless. Is this as bad as > > > I think it is?? I know you all are in the same > > boat as I am and > > > probably have had to deal with all the ugliness > > this disease brings > > > for far too long and I'm so sorry I had to find > > you this way!! > > > However, I desperately need your support right > > now and all the advice > > > that you have to offer. Thankyou! > > > > > > Dawn, 34, married, mother of 2 girls, ages 11 & > > 9 > > > > > > > > > > > > > > > ______________________________________________________________________ ______________ > Looking for last minute shopping deals? > Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Glad surgery went well.....knew it would. > > > > > > > > > > > > > > > > Welcome Dawn, > > > > > > > > Gosh you have been through the > > > > > > > > wringer...you'll find lots to share with this Forum & > > > there > > > > are > > > > > > others > > > > > > > > that have complex medical problems like you. Always > > > > comforting > > > > > to > > > > > > know > > > > > > > > that at least you're not entirely alone. > > > > > > > > Everyone here is interested & > > > > > > > > supportive....hang in there girl...write as often as > > you > > > > feel > > > > > the > > > > > > > > need...it really DOES help! > > > > > > > > Regards, > > > > > > > > in Oz (Australia) > > > > > > > > IPF: Fibrotic NSIP/UIP??? > > > > > > > > Reynauds' > > > > > > > > May 2007 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Yeah, I am so glad it's over.......  ;D Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Oh, I got it. Free l/d and you used 2800 minutes! Lucky you.It's nice you stay in touch w/so many, or should I say, so long! BTW...surgery went well...only minor discomfort. Only took about 15 min. I'm so anxious to "see". Go back tomorrow A.M. Another BTW. Here is a number to call for "no-call" on cell phones....is everyone aware: This is a legit number, I've already called. www.donotcall.gov   FYICell phone numbers going public tomorrowREMINDER....all cell phone numbers are being released to telemarketing companies tomorrow and you will start to receive sale calls...YOU WILL BE CHARGED FOR THESE CALLSTo prevent this, call the following number from your cell phone:.It is the National DO NOT CALL list. It will only take a minute of your time It blocks your number for five (5) years. You must call from the cell phone number you want to have blocked. You cannot call from a different phone number.HELP OTHERS BY PASSING THIS ON TO ALL YOUR FRIENDS.It take about 20 seconds.  I'll send this in this post to you Bruce and most will see it.Later Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Sher> > > I didn't talk on my cell phone but 2800 minutes in January....lol> > > > > > > > >> > > > > > > Welcome Dawn,> > > > > > > Gosh you have been through the> > > > > > > wringer...you'll find lots to share with this Forum &  > > there > > > are> > > > > others> > > > > > > that have complex medical problems like you. Always > > > comforting > > > > to> > > > > know> > > > > > > that at least you're not entirely alone.> > > > > > > Everyone here is interested & > > > > > > > supportive....hang in there girl...write as often as > you > > > feel > > > > the> > > > > > > need...it really DOES help!> > > > > > > Regards,> > > > > > > in Oz (Australia)> > > > > > > IPF: Fibrotic NSIP/UIP???> > > > > > > Reynauds'> > > > > > > May 2007> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hi Sher, Glad all went well today. My Dad had both eyes done last summer and his vision is soooo much better now. He's enjoying being able to see again, driving confidently etc. Love, Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: Sher> > > I didn't talk on my cell phone but 2800 minutes in January....lol> > > > > > > > >> > > > > > > Welcome Dawn,> > > > > > > Gosh you have been through the> > > > > > > wringer...you' ll find lots to share with this Forum & > > there > > > are> > > > > others> > > > > > > that have complex medical problems like you. Always > > > comforting > > > > to> > > > > know> > > > > > > that at least you're not entirely alone.> > > > > > > Everyone here is interested & > > > > > > > supportive.. ..hang in there girl...write as often as > you > > > feel > > > > the> > > > > > > need...it really DOES help!> > > > > > > Regards,> > > > > > > in Oz (Australia)> > > > > > > IPF: Fibrotic NSIP/UIP???> > > > > > > Reynauds'> > > > > > > May 2007> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Sher, I'm so glad things went well for you today. I was away over the weekend and by the time I read you were GOING to have it, it was all over! So I'm offering a prayer of thanks! Hope you are feeling emotionally better, too! Kathie WA NSIP '96 > > I'm going to post this again in case someone missed it on my post to Bruce. This is a legit number folks....I've already called. > > Thanks everyone for your good wishes. I'm sure the cataract surgery will produce wonderfully clear vision! Left eye will be done in about 4 weeks. > FYI > > Cell phone numbers going public tomorrow > > REMINDER....all cell phone numbers are being released to telemarketing companies tomorrow and you will start to receive sale calls. > > ..YOU WILL BE CHARGED FOR THESE CALLS > > To prevent this, call the following number from your cell phone: > > . > > It is the National DO NOT CALL list. It will only take a minute of your time It blocks your number for five (5) years. You must call from the cell phone number you want to have blocked. You cannot call from a different phone number. > > HELP OTHERS BY PASSING THIS ON TO ALL YOUR FRIENDS. > It take about 20 seconds. > > > -------------------------------------------------------------------- ------------ > > > = > > > > -------------------------------------------------------------------- ------------ > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2008 Report Share Posted February 5, 2008 That's a RELIEF to hear Mama-Sher.....keep it going in that direction! love, in Oz > > > > > > > >> > > > > > > > Welcome Dawn,> > > > > > > > Gosh you have been through the> > > > > > > > wringer...you'll find lots to share with this Forum & > > > there > > > > are> > > > > > others> > > > > > > > that have complex medical problems like you. Always > > > > comforting > > > > > to> > > > > > know> > > > > > > > that at least you're not entirely alone.> > > > > > > > Everyone here is interested & > > > > > > > > supportive....hang in there girl...write as often as > > you > > > > feel > > > > > the> > > > > > > > need...it really DOES help!> > > > > > > > Regards,> > > > > > > > in Oz (Australia)> > > > > > > > IPF: Fibrotic NSIP/UIP???> > > > > > > > Reynauds'> > > > > > > > May 2007> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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