Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 << Re: 3 sec. of pain and Sulfasalazin (was: Twitches and ...) Hi Theresa, The best thing I have found when my hands get to hurting so much that nothing seems to releive it is a parafin dip. I finally found an electric parafin warmer for the specific purpose of dipping hands or feet. The warmth seems to penetrate right to the pain and gives me a lot of relief. in Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2000 Report Share Posted November 28, 2000 In a message dated 11/26/00 7:46:22 PM Eastern Standard Time, clonan@... writes: << The best thing I have found when my hands get to hurting so much that nothing seems to releive it is a parafin dip. >> For anyone who is interested - I just saw a parafin dip advertised on Home Shopping Network for $59.95 Most people who have one say they've paid up to $200 for them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 I found your post Cat and want to say thank you . Now if I could only find the post Peggy was talking about. Message: 17 Date: Tue, 1 May 2001 14:49:09 -0500 From: " Cat " <saturner@...> Subject: Re: COLOGNE ???? Hi : I hope I can be of some help to you. First, what kind of alcohol are you using for your cologne base? If the alcohol is strong enough, you won't have a problem with the fragrance oils beading up, separating or clouding your mixture. I recommend grain alcohol (Everclear, Golden Grain), or if you plan on selling your product, use 39C denatured alcohol. Vodka is risky...I found that in most instances (especially when water is added), it is too weak to completely emulsify the fragrance oils, and you have the problems mentioned previously. Dissolve the fragrance oils in the alcohol, then add a small amount of distilled water (no more than 50%, to avoid the risk of clouding; for instance, if you have 8 oz. alcohol, then add up to 4 oz. distilled water) to the alcohol/oil mixture, not the other way around, or the oils will separate. Stop if the mixture starts to cloud, and let it settle. Add a small amount of alcohol if the cloudiness doesn't dissipate. For a more lasting fragrance, add a small amount (about 1 tsp. per 4 oz. alcohol) of glycerine (found in drug stores). For " designer " fragrance oils, look in the Toiletries library (the address is at the bottom of this email), under " Supplies " , then " Fragrances " . I recommend the following: For Perfumes: Use 1 part fragrance oil to 4 parts alcohol or other perfume base For Eau de Toilette Use 1 part f.o. to 6 parts alcohol or other base For Cologne: Use 1 part f.o. to 8 parts alcohol or other base For splashes or Eau Fraiche: Use 1 part f.o. to 10-20 parts alcohol or other base > I want to try my hand at making some Cologne but have some things that I need to ask. I understand the Cologne is made of alcohol and frequents . > I want to know where I can find designer fragrant to make my cologne . What I also want to know is wouldn't FOs bead up in alcohol ? Thank you in advance for your help . http://community.webtv.net/stephanie179/sFa mily STEPHANIE'S FAMILY - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - CFAITH - Your Online Faith Family - http://www.cfaith.com - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Glad to help...is there a particular scent you want to make? Cat > I found your post Cat and want to say thank you . Now if I could only find the post Peggy was talking about. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 This is not something I want Ellie doing either. The school I drive for gets the students out delivering flyers. I have mixed feelings about that. If I was the parent of one of the kids in that school, I might feel it's good. But since I'm not, I am really glad I don't have to make that decision. I will decide for Ellie, not the other children. All the children that attend that school have special needs. I am glad I got her into the local school fully included. All her work is modified, but it is along the " academic " line, learning numbers, letters, printing, listening to stories, working on the computer etc. I was visiting one day last week, and while Ellie was painting at the easel, her aide was draining the juice boxes before putting them into the recycling. She mentioned that Ellie likes to help her do that, but today she wants to show off her painting for mom. So I have been wondering if I should complain about that. But I know from working with cw special needs on the school bus that some of them have a real NEED to be useful, whether they are or not, and it is very beneficial for them to be given a job to do. Some don't have that need, so the parents and teachers have to be sensitive to the individual need of each child. Let's hope we don't become too prejudiced to say " that job is below my child's dignity, " and give them the wrong attitude. There are some good programs available here in Calgary for young adults with special needs that can teach them the life skills and job skills and independance skills they need. If I have problems with a school wanting to take Ellie away from her real studies to learn life skills, then I'll remind them that I plan on looking into those programs after she is out of high school. Meanwhile, I work on everday life things with her as best I can. Gwen, mom to Ellie 5 > Date: Tue, 20 Nov 2001 17:35:01 -0600 > From: " " <koster@...> > Subject: A question for the group > > Hello > I have a question for any of you who would care to comment. I have a jr. high age daughter (NDA) and was at the campus today working with a PTO project. This jr. high is non-inclusion. There was a class there cleaning the cafeteria and front doors and windows of the office. They referred to themselves as a resource class, but most are in the special education > classroom exclusively. There was one boy in the group that I know is not in special education, but all the others present were. We asked them what they were doing and they said they get paid to clean the " lunchroom and stuff " . One boy said he had collected his check today and it was $18.25 - don't know > how long he worked for that. There were two DS kids in the group and this was about 2 p.m. I asked an aide from a different campus if she knew about it and she said yes that they think it helps to give them something to do. My question to you is - Is this what you want your kids doing in school? Another question - is reading, writing and arithmetic not enough to give > them something to do? > > Mom to 2 year old Nina, DS with still a few more years to go to jr. high, but already getting worried. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 This is not something I want Ellie doing either. The school I drive for gets the students out delivering flyers. I have mixed feelings about that. If I was the parent of one of the kids in that school, I might feel it's good. But since I'm not, I am really glad I don't have to make that decision. I will decide for Ellie, not the other children. All the children that attend that school have special needs. I am glad I got her into the local school fully included. All her work is modified, but it is along the " academic " line, learning numbers, letters, printing, listening to stories, working on the computer etc. I was visiting one day last week, and while Ellie was painting at the easel, her aide was draining the juice boxes before putting them into the recycling. She mentioned that Ellie likes to help her do that, but today she wants to show off her painting for mom. So I have been wondering if I should complain about that. But I know from working with cw special needs on the school bus that some of them have a real NEED to be useful, whether they are or not, and it is very beneficial for them to be given a job to do. Some don't have that need, so the parents and teachers have to be sensitive to the individual need of each child. Let's hope we don't become too prejudiced to say " that job is below my child's dignity, " and give them the wrong attitude. There are some good programs available here in Calgary for young adults with special needs that can teach them the life skills and job skills and independance skills they need. If I have problems with a school wanting to take Ellie away from her real studies to learn life skills, then I'll remind them that I plan on looking into those programs after she is out of high school. Meanwhile, I work on everday life things with her as best I can. Gwen, mom to Ellie 5 > Date: Tue, 20 Nov 2001 17:35:01 -0600 > From: " " <koster@...> > Subject: A question for the group > > Hello > I have a question for any of you who would care to comment. I have a jr. high age daughter (NDA) and was at the campus today working with a PTO project. This jr. high is non-inclusion. There was a class there cleaning the cafeteria and front doors and windows of the office. They referred to themselves as a resource class, but most are in the special education > classroom exclusively. There was one boy in the group that I know is not in special education, but all the others present were. We asked them what they were doing and they said they get paid to clean the " lunchroom and stuff " . One boy said he had collected his check today and it was $18.25 - don't know > how long he worked for that. There were two DS kids in the group and this was about 2 p.m. I asked an aide from a different campus if she knew about it and she said yes that they think it helps to give them something to do. My question to you is - Is this what you want your kids doing in school? Another question - is reading, writing and arithmetic not enough to give > them something to do? > > Mom to 2 year old Nina, DS with still a few more years to go to jr. high, but already getting worried. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 > one day last week, and while Ellie was painting at the easel, her aide was > draining the juice boxes before putting them into the recycling. She > mentioned that Ellie likes to help her do that, but today she wants to show > off her painting for mom. So I have been wondering if I should complain Isn't helping a part of every classroom? I know kids think it is a big priviledge to erase the boards, or take the attendance up to the office, etc. I'll bet other kids in the class help out too. R. Mom to (7, ds) and Grace (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 > one day last week, and while Ellie was painting at the easel, her aide was > draining the juice boxes before putting them into the recycling. She > mentioned that Ellie likes to help her do that, but today she wants to show > off her painting for mom. So I have been wondering if I should complain Isn't helping a part of every classroom? I know kids think it is a big priviledge to erase the boards, or take the attendance up to the office, etc. I'll bet other kids in the class help out too. R. Mom to (7, ds) and Grace (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2002 Report Share Posted January 29, 2002 Hi all.... My name is a, I have a daughter with a dual dx of autism/MR along with that goes...adjustment disorder w/disorder in conduct, sensory dysfunction, mild tourettes and probably several other things I cant seem to remember at the moment. http://members.tripod.com/wish4wings/ I wanted to touch on both the violent behaviors as well as periods as I have experience with both. My daughter Cyndi is a beautiful 13 year old that is very high functioning has been basically verbal all her life. While I agree that children on the whole should have the opportunity to be involved within the NT classroom, I also understand the ever present need for protection..and sometimes even from themselves. After several requests for help, several meetings to discuss stratagies this being up to and including making changes on IEP's and behavior plans I still felt as tho my child was not only a danger to herself but to others as well. I could see she was frustrated, I could hear the desperation in what she wouldnt say and just as I was about to make more changes in her schooling my daughter lost control. Cyndi had put her fist through a plate glass window after attacking another student and a teacher's aide. This ended in my placing her on a psych unit for a 14 day eval. I begged all professionals to agree with me that she should not return to school however was met with strong opposition and yet the only thing that was being said was " She needs the socialization " . Cyndi was later, approx.2 months, put on a crisis stabilization unit. She was doing okay however on the night of her 6th day she suffered a laceration and broken bone and was denied medical treatment for 13 1/2 hours. They finally notified me and I went immediately to remove her. I was supposed to take her back however told them to get bent(although not as politely)and after our trip to hosp. she came home. Cyndi began school again with different teachers (seems the previous teacher had been denounced by her peers and resigned) Cyndi was doing okay yelling some but not being overtly aggressive. After a day of frustration on all sides I believe, an aide lost her control and grabbed Cyndi by the hair yanked her head back and screamed in her face. Needless to say, after the police came and the aide removed, Cyndi was withdrawn from school. After 2 years of intense homeschooling (my kids hate mommy school lol) She is now on honor roll, mainstreamed in 2 classes and overall doing very well. I would hate to think of the outcome had I not made the decision to stop everything else and focus on her in a home schooling situation. She was worth my losing a job and putting my life on hold.. I look at her now and I know shes going to be okay! As for periods...girls with autism or asd's can be and are teachable with regard to periods, pads etc... sometimes the explanation we give is not enough for them as they need a more black and white version. Cyndi didnt get the whole idea until we began discussing how the body works what some of its jobs are and yes how yukko some of these can be. She learned uterine bleeding and was informed as to the why's and how's of it all prior to her actually starting. All this made it easier for her to accept. I thank my friends with girls, some with autism some not but all agreed to one important thing.. You have to let them know more you cant just say 'period yada yada pad yada yada' you have to be specific. Read...read...read! I wish you all luck in all you do! Thanks for letting me put in my two cents <) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 my new email address is belleofla@... > >Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv >------------------------------------------------------------------------ > >There are 15 messages in this issue. > >Topics in this digest: > > 1. Fw: Thanks for " Uninformed Consent " Series in The Seattle Times > From: " Arnold Gore " <arnoldgore@...> > 2. Fw: Thanks for " Uninformed Consent " Series > From: " Arnold Gore " <arnoldgore@...> > 3. Re: U.S. Cancer research - a Horrible, Terrible FRAUD ! > From: " Lea " <aleathak@...> > 4. Re: Edema > From: <GiftedlyOutspoken@...> > 5. Re: Edema > From: " kallie miller " <4optimallife@...> > 6. Re: friend > From: Kcsback456@... > 7. Re: U.S. Cancer research - a Horrible, Terrible FRAUD ! > From: " Fransy " <fransy@...> > 8. Multiple Myeloma + Arsenic > From: moonbeam@... > 9. Re: Fw: Thanks for " Uninformed Consent " Series in The Seattle Times > From: <GiftedlyOutspoken@...> > 10. OFF TOPIC: Parkinsons' Patient & EECP > From: Gerald Oros <postman23_2000@...> > 11. OFF TOPIC: Parkinsons' Patient & EECP > From: Gerald Oros <postman23_2000@...> > 12. Re: OFF TOPIC: Parkinsons' Patient & EECP > From: Adonolam@... > 13. Fw: Urge Congress to Limit Antibiotic Abuse-Protect Human Health > From: " Arnold Gore " <arnoldgore@...> > 14. Re: Fw: Thanks for " Uninformed Consent " Series in TheSeattle Times > From: " Arnold Gore " <arnoldgore@...> > 15. Re: OFF TOPIC: Parkinsons' Patient & EECP > From: " Arnold Gore " <arnoldgore@...> > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Thu, 21 Mar 2002 16:22:05 -0800 > From: " Arnold Gore " <arnoldgore@...> >Subject: Fw: Thanks for " Uninformed Consent " Series in The Seattle Times > >OOPS! here is the Email I originally sent the Seattle Times > Thanks for " Uninformed Consent " Series > > >Thanks for having the courage to take on the powerful Cancer Industry that lives on favorable Public Relations to hide their immense conflicts of interest and ubdermining the therapies of outsiders such as Dr.Burzynski, that are proven in FDA approved clinical trials to be MORE effective statistically than the approved mainstream therapies. Please Continue to support Duff in his investigations of double dealing and slanting research results. They even surpress competitors favorable results from reaching a wider patient base. > Arnold Gore > Consumers Health Freedom Coalition > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 >>How will the diagnosis of apraxia change how your son is treated? I know for me, there are many reasons I have persued the diagnosis. The only thing that i believe will change in his therapy is that we will probably try to rely less on teaching sign and more on just the speech. Ian gets 3 sessions a week, 60 min. of therapy right now. That frequency is just right. >>How is his receptive language? A little too good sometimes! Actually, his last eval. placed his receptive skills with only a 5% delay. He does remarkably well with cognitive skills, and is a bright little boy. It is so frustrating to him that he can't tell us what he's thinking. He gets soooo upset sometimes. >>Does he have ways of communicating what he wants - ASL, gestures, etc.? For the most part, he communicates w/ gestures though he does have a vocab. of about 20-30 signs. he will verbalize wants and needs, but not with words, just sounds (some form very beginnings of words, others are just what appear to be random sounds). >>Do you believe he's autistic? I have never had reason to with Ian. >>Does he play imaginatively? Make toys interact? Very well actually. He likes to play with cars and trucks, and will create a whole village setting and " drive " around. He will also play w/ little people, and will sometimes have them talk. (the other day in therapy, big bird and ernie had an entire conversation-don't ask me what he said, but he sat there and had them both " talk " . >>What do you know about Sensory Integration Disorder? My PERSONAL expereince is limited, though as I mentioned, I work for a Dev. therapist who has work with children w/ SID. I have not seen anything that would raise a flag for me, he will play in just about any substance, loves to be touched, and seems to handle things pretty well. the only issue that has been raised is that Ian shows an aversion to meat of any kind, unless it is breaded. He will usually not even attempt to pick it up, much less eat it. I have always attributed this to being a picky eater. The one thing that caught my attention is that he never even tried it the first time. >>What does your regular ped think? This is the interesting part. She did not even have concerns with Ian's speech delay until after he was 2. SHe realized that there was a problem (even after 6 mos of therapy). She is very supportive, but admits she has little knowledge of this. She has encouraged all of the appointments and has even offered to help if insurance gives us any problem w/ paying for evals. I know for myself that the decision to persue the diagnosis of apraxia was not an easy one. On one hand, I felt it would help me know " why " and would let me know that yes, there is a problem, or no, he's just a slow talker. On the other hand, I really feel that if this is the problem, and since he has displayed so many characteristics, I had to explore it. If I didn't, and we did not see progress in the long run, I would have definite problems with myself and knowing I should have done more. If the diagnosis is ruled out, I will not be upset in the least, providing the dr does take the time to examine him. I guess I just have to know. That, and with the diagnosis, we can get assistance with paying for therapy after he turns 3 (I have plans to home school Ian, rather than place him in the public school system. His socialization needs are more than met w/ playgroups, church, and family-he has young cousins). On another note...we have finally gotten the schedule set for Ian's evaluations. He will see a Speech Pathologist the 22nd to get the 2nd opinion from the speech perspective. On Aug 6th, he sees a pediatric neurologist, to pursue the neurological aspects of Apraxia (this is required for DSCC.) Boy, I've gone on too long! Thanks for listening. Sherry, mom to Ian, 28 mos, Poss Verbal Apraxia Message: 7 Date: Thu, 11 Jul 2002 12:30:33 -0000 From: " marina3029 " <philipmary@...> Subject: To Sherry & Sara... I have heard all the same things - that apraxia is a catch all, that it's a stolen term from stroke patients, that it can't be diagnosed earlier than 3, etc.. I personally am unsure how I feel about it, all I know is that you have to have SOME sort of diagnosis for the insurance to pay, and as long as the therapy is working (and apraxia usually requires frequent 1:1 ST) I don't care what the INITIAL diagnosis is. I'm wary of anyone who sees my child for 30-45 minutes and determines that he's " got " this or that. That said, my son Zach is almost 4 (next wed) and was diagnosed at about 2.9. He's been going to therapy since he was 2.5. He was completely non-verbal (da for everything and NO attempt to mimic) up until 2.5 and then he just started trying. The first words were definitely approximations - Moo for cow, Bo for bread - but hey, they were consistent and I understood! He now speaks in complete complex sentences. He asks questions (something I think is a huge gap in non- verbal kids - they miss that " But WHY?? " phase), uses pronouns and tense correctly. Is he intelligible?? Not really - we usually understand, but a stranger would only get about 65% of what he said. His receptive language has always been strong. He watched and understood (still does) an AMAZING amount of what's going on around him. So - here are my questions for you: How will the diagnosis of apraxia change how your son is treated? How is his receptive language? Does he have ways of communicating what he wants - ASL, gestures, etc.? Do you believe he's autistic? Does he play imaginatively? Make toys interact? What do you know about Sensory Integration Disorder? SID can affect speech, can cause TERRIBLE tantrums (as can the frustration of being non-verbal), can lead to spinning and jumping etc.. It can also lead to withdrawing (like curling up under a chair) in particularly distressing situations. My son also used to line up rows of fire engines (used to freak me out) until I figured out he was making a train... I don't know if any of this helps - I'm all for a second opinion - even if you've got to drive to make it really unbiased (don't know how big your town is). What does your regular ped think? Good luck - Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 Dear I seem to have disconnected myself from Senate since finally managing to get to verify my new e-mail address! What do I need to do (or would it be easier to unsubscribe and then resubscribe)? Best wishes Gill Newell Digest Number 802 Quote Link to comment Share on other sites More sharing options...
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