RE: Hard-to-Find Candidates Thwart Prostate Cancer Researcher According to Diefenbach, Ph.D. -- MARLTON, N.J., Nov. 12, 2010 /PRNewswire/ --

[Guest guest]

Well, actually, Kathy, he remarks that most men are unaware that they have several options for treatment; not necessarily that they are unaware of his study, though I’m sure that is the case as well. I wonder if he considered approaching the AUA to put the word out to their membership regarding his study; though I wouldn’t be surprised that many urologists see any such study as questioning their professionalism in providing treatment options to their patients, so don’t even bother telling their patients of the study. What is surprising is that with four cancer centers involved, he should have many newly diagnosed patients referred his way. What he should be checking is if the urologists – the usual physicians who first determine that their patient has prostate cancer – at these facilities are all onboard with the requirement to notify their newly diagnosed patients of this study. Maybe they do but the patients, as usual, are in a fog and just follow “what the doctor (urologist) orders.” Chuck " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack/Prostate Cancer Advocate/Mentor Wichita, Kansas Chapter, Us TOOBiography: http://www.ustoowichita.org/leaders.cfm?content=bio & id=1 Email: maack1@... Chapter Website " Observations " : http://www.ustoowichita.org/observations.cfm From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Kathy MeadeSent: Saturday, November 13, 2010 1:18 PMTo: NASPCC ; VAPCACOALITION ; Vpcc Board; Prostate Problems Mailing LIst; Prostate cancer supportSubject: Hard-to-Find Candidates Thwart Prostate Cancer Researcher According to Diefenbach, Ph.D. -- MARLTON, N.J., Nov. 12, 2010 /PRNewswire/ -- http://www.prnewswire.com/news-releases/hard-to-find-candidates-thwart-prostate-cancer-researcher-according-to-michael-diefenbach-phd-107606673.html Please let men who have been diagnosed but before treatment know about this opportunity. Interesting that he blames a lack of awareness for his dilemma. Kathy

[Guest guest]

Like Chuck, I was initially surprised that

it would be difficult to find suitable candidates for this study. Surely all

the researcher had to do was to get urologists on board for referrals. BUT….then

I thought of the battle that Dr Strum and Donna Pogliano had in trying to get

their two informative guides out via doctors ( the guides are here

WHAT EVERY MAN SHOULD KNOW ABOUT PROSTATE CANCER http://www.yananow.net/USAMan.htm and

here WHAT EVERY DOCTOR WHO TREATS MALE PATIENTS

SHOULD KNOW http://www.yananow.net/DonnasDoctor.html

for anyone interested). No interest form anyone!!

Looking at the article that Kathy posted I

was intrigued by this <snip> Patients who call toll-free, , will receive one

of two information packets, depending on which part of the study they enroll

in. Some will receive a free, multimedia program and printed material. Others

will receive comprehensive printed materials. <snip> and wondered if the

study that Dr Diefenbach was setting up might be similar to the one reported in

the Journal of General Internal Medicine in 1996.

In that study, of men who were about to be

screened or tested using the PSA test, one group was shown a video that

contained full disclosure of risks and benefits of treatment if they were

diagnosed with PCa. The other was shown a video, designed by a pharmaceutical

company, which made no mention of any controversy and only casually mentioned

potential serious complications. It was reported that 63.2% viewing the full disclosure

video would choose watchful waiting versus 26.4% of control patients.

One of the conclusions was " The

routine situation is that patients are unaware of the uncertainty of scientific

data supporting testing and treatment. The video intervention rests on the

premise that patients have the right to know about the quality of data on which

screening recommendations are based, so they can help decide how they want to

handle the uncertainty. "

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Kathy

Meade

Sent: Sunday, 14 November 2010 6:18

AM

To: NASPCC ;

VAPCACOALITION ; Vpcc Board; Prostate

Problems Mailing LIst; Prostate cancer support

Subject:

Hard-to-Find Candidates Thwart Prostate Cancer Researcher According to

Diefenbach, Ph.D. -- MARLTON,

N.J., Nov. 12, 2010 /PRNewswire/

--

http://www.prnewswire.com/news-releases/hard-to-find-candidates-thwart-prostate-cancer-researcher-according-to-michael-diefenbach-phd-107606673.html

Please let men who have been diagnosed but before treatment know about

this opportunity. Interesting that he blames a lack of awareness for his

dilemma.

Kathy

[Guest guest]

Terry Herbert wrote:

> Like Chuck, I was initially surprised that it would be

> difficult to find suitable candidates for this study. Surely

> all the researcher had to do was to get urologists on board for

> referrals. BUT ...

I don't know this from first hand experience but, in the U.S., I

suspect that most doctors are besieged by people who are trying

to get them to read something, think something, prescribe

something, or buy something.

For example, I bet that U.S. doctors in large practices are

called upon by an average of several drug company salesmen every

single day. I have often gone to a doctor's office to find some

well dressed, good looking, young man or woman in a suit sitting

in the waiting room with a briefcase and an earnest look on his

or her face. When I ask, they always turn out to be drug company

sales reps.

Then there are the stock brokers, financial advisers, realtors,

computer system vendors, etc. that see doctors as a lucrative

market and camp in their offices or stuff their mailboxes.

I suspect that a lot of doctors have turned up the power on their

noise filters and just ignore the bulk of the letters that arrive

in their mail and email boxes. I do the same for a lot of the

mail, and most of the email, that I receive. I toss it without

reading it, usually without even opening it.

It's not surprising that sometimes there's a baby in that

bathwater that went down the drain.

I don't entirely blame the docs.

Alan