Fw: CF Care in Germany/ update

[Guest guest]

Hey Torsten,

Well we are spying on these people so I thought maybe you could help them

out, you don't have to mention where you got their address .

About Ang, well we saw the ENT yesterday and got all set up for the surgery,

we got preadmitted and the labs done. She will be staying overnight and

possibly longer depending on how her lungs and sinuses look. The hospital

got that new machine for doing sinus surgery, its called the InstaTrek or

InstaTrack (not sure exactly), but we aren't sure if they will have it up

and running by Friday. But it's possible will be the first patient

to have it used on. We'll see. Oh and the ENT's comment was, " She has a

lot of junk in her nose " (DUH! why does she need surgery? LOL) and anyway

he wanted to put her on Levaquin, so I checked with the CF nurse while we

were there wandering around getting the labs and stuff and she asked the doc

and they said ok go ahead and give it to her, it shouldn't affect the

culture too much. Oh and BTW, the doc we thought was going to do the bronch

can't do it, so we are getting another doc for that, which is OK except we

never even met the guy ever! oh well.... guess we can't complain, and we do

really want to do it this week so I don't want to reschedule.

Also Good News! they have moved the inpatient kids off that floor with the

gross carpet!!! YAY!!!!! We will be in the real Childrens Hospital

section!!!

Well tomorrow I'm taking Ang to a Bare-Naked Ladies concert, she is so

jazzed, she loves them, so we should have a good time, we are bringing along

her best little girlfriend so she's happy about that too. (I had gotten

three tickets thinking Nick would want to go but he said he didn't really so

I said Ang could bring Candace).

So all's going according to plan (almost) and I'll keep you informed if

possible, if anyone is on conncoll I think I'm having Ang subscribe to them

with her hotmail account so we might be able to write from the club!

love to all,

CF Care in Germany

>We follow two children with CF whose family has an opportunity to move to

>Heidelberg, Germany for two years. They are asking how CF care is

>delivered there. They will have health insurance through the father's

>employer (private industry, not military). Any information, advice,

>referrals would be greatly appreciated!

>

>Mark

>

>Mark A. Brown, M.D.

>Associate Professor of Clinical Pediatrics

>Director, Pulmonary Trianing Program

>University of Arizona College of Medicine

>1501 North Avenue

>Tucson, Arizona, 85724-5073

>

> (Fax)

>

>

>