I'm back with some more question...

February 4, 2008

Okay, I admit that I can only 'take' so much info at a time and then

I have to take a break. I have some questions though that I'd like

to ask the group. I may only be able to read a few answers at a time

so I appreciate the responses.

(1)I read that there is a direct correlation between an early

diagnosis and life expectancy. The doctor said they caught mine very

early, but if we have to go through the 3 week wait to get the second

diagnosis, then if I do the biopsy there will be more drag time and

if I go to Duke for another opinion (which I would like to do) even

more drag time. If it is time critical, am I wasting valuable time?

(2)This one is probably addressed more to the women. Do you use some

sort of mask when you spray your hair, etc. Can you still wear

perfume if it doesn't bother you? There is always the Pam spray, the

Baker's joy, etc... am I being silly or is there something you do?

(3)I asked this yesterday, but somehow my post disappeared or I

couldn't find it. Do you continue to go out and about? I am so

afraid of getting a virus, do you do anything different? Do you

continue to travel? Even abroad? What if a family member gets a

virus, how do you handle it?

(4)Is there another country that is more advanced with this disease?

I read somewhere that there is NO medicine that is FDA approved for

use with PF. Is there is other countries? Does the medicine really

prolong life as it has what sounds like body destroying side

effects? Also, I am very distrought that the medical community would

use age discrimination in both procuring organs and in dispensing

them. Basically they are sayingi my life isn't valuable to them and

that really angers me. Are other countries more enlightened?

Thanks,

Ann,IPF 01-08,65 NC

(4)

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