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Hi everyone

I just received this letter. Thought I should just forward it to the group.

I also asked them if they would like to join the group.

Perhaps some of you could reply to them. Please make sure you use thier

address when you reply.

Hope everyone is doing ok.

Roy

Subj: RELAPSING POLYCHONDRITIS

Date: 1/13/2000 9:19:28 AM Pacific Standard Time

From: einstiegen@... (einstiegen)

To: RLR1999@...

Hello !!

I am writing to you in hope you can give me some information

on RELAPSING POLYCHONDRITIS .I just now today discovered

the page abut that decease.My husband has had it since 1996 but was

not diagnosed until Jan.1997. It was confirmed by the Mayo Clinic in

April of 1997. I did notice a rapid hearing lose in the last 6 months.I

would

like to know if someone else has the problem and how can we stop the

hearing lose. He has been in remission for quit sometimes now. I do not

know of anyone else with this problem here in the Tulsa area.I do not know

where to turn to, to learn more about it. I would appreciate any information

and help you could give me .Please write to me at this address.

einstiegen@... I thank you very much .

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  • 3 weeks later...

heidi

welcome to the grooup. we lived in germany for four year from

1976-1980. we had a wonderful tour of duty (my hsband was in the air

force) we were stationd at ramstein air force base in langerkoph and my

husbane actually worked on a mountain site in tripstad. we traveled a

much as we could while we were there-to switzerland, austria, france

spain, luxemborg, holland etc. actually went camping on the zeider zee

in hollad in the winter 9(we like to reeze to death too hah). my

favoirte lace was garmisch-partenkirchen. such a beutiful area.

perhaps someday i wll return for a visit.

while my husband was in the air force we also lived in greece fo hree

years. it wassuch a wonderful experience o live in europe.my youngest

daughter (now 22 ) was actually born in germant in landsthul.

welcome to the group. perhaps we can d some reminiscing

love denise

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