Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 I think from what you described there really shouldn,t be anymore advice to add.It seems like your doing everything right Hi there, First of all, I want to thank everyone who has helped me with advice about my husband's diagnosis. It's been a whirlwind and I also work full time so I've been on the go nonstop. My husband had laparoscopic surgery this past Saturday and yesterday (Monday) he was released to come home. He's in great spirits but finds the catheter a big pain. Any advice? The first night he didn't secure the tubing and it came apart and the result was not pretty. I think as his wounds heal he'll find it a lot better as right now I do all the emptying of the bags etc. as he finds it hard to bend down. He gets it removed a week from Thursday. We're waiting for the pathology report but so far, so good. The surgeon said his lymph nodes weren't swollen which is a good sign. His PSA was 4.5, gleason 6, T1C and 3 out of 6 cores showed cancer - 5%, 15% and 20%. We're praying for good results. Any advice on how to live with a catheter?Thanks, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Everything that's been said so far is good advice. Anecdotally, I can add that my RP was June 11, 2008, and because I have a very conservative Uro, the catheter was supposed to be in for four weeks after surgery. I reached the end of my patience with it just before the July 4th weekend, and they took it out a couple for days early for me. The leakage and lack of bladder control when they pulled the catheter was very disconcerting, to say the least. It took several days for me to regain some semblance of control. In mid-July, I went on a business trip. My wife helped with the driving. I couldn't make it to all of the rest stops, but had enough control to " hold it " until we got to a place to pull over and I could get out of the car and " find a tree " . I got through my business meetings fine. Never had to leave the room, although I made sure to use the head at every break. By the time I was to go back to work in late August (I'm a College Professor), I was doing fine. I continued to wear pads until October " just in case " (and because I was chicken) but I never needed them. For well over a year now, I've been sleeping through the night just fine. No need to get up, and no accidents. No one can predict what will happen. My results are unique to me. I hope that your results will be good. Be patient, and make sure to do the Kegel exercises. Coy , MI Catheter advice! > Hi there, > > First of all, I want to thank everyone who has helped me with advice about > my husband's diagnosis. It's been a whirlwind and I also work full time so > I've been on the go nonstop. > > My husband had laparoscopic surgery this past Saturday and yesterday > (Monday) he was released to come home. He's in great spirits but finds the > catheter a big pain. Any advice? The first night he didn't secure the > tubing and it came apart and the result was not pretty. I think as his > wounds heal he'll find it a lot better as right now I do all the emptying > of the bags etc. as he finds it hard to bend down. He gets it removed a > week from Thursday. > > We're waiting for the pathology report but so far, so good. The surgeon > said his lymph nodes weren't swollen which is a good sign. His PSA was > 4.5, gleason 6, T1C and 3 out of 6 cores showed cancer - 5%, 15% and 20%. > We're praying for good results. > > Any advice on how to live with a catheter? > > Thanks, > Sue > > > > ------------------------------------ > > There are just two rules for this group > 1 No Spam > 2 Be kind to others > > Please recognise that Prostate Cancerhas different guises and needs > different levels of treatment and in some cases no treatment at all. Some > men even with all options offered chose radical options that you would not > choose. We only ask that people be informed before choice is made, we > cannot and should not tell other members what to do, other than look at > other options. > > Try to delete old material that is no longer applying when clicking reply > Try to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 I'm afraid I have to agree with . I also had bladder spasms -- found that opium + belladonna suppositories were the only effective drug, and only _partly_ effective. You might want to keep the exit point lubricated with KY Jelly or something similar. If you don't have bladder spasms, be happy about that. Work out a good point to tape the tube to his (your?) body. The trick is finding a spot such that, when he walks, his penis isn't dragged around by his leg. I remember taping to a spot way up my leg, almost at the groin. Shave first!!! Just keep looking toward the future, when the damned thing will be removed (which is easy and painless) . . . > > > > Subject: Catheter advice! > To: ProstateCancerSupport > Date: Tuesday, January 19, 2010, 5:01 AM > > > Â > > > > Hi there, > > First of all, I want to thank everyone who has helped me with advice about my husband's diagnosis. It's been a whirlwind and I also work full time so I've been on the go nonstop. > > My husband had laparoscopic surgery this past Saturday and yesterday (Monday) he was released to come home. He's in great spirits but finds the catheter a big pain. Any advice? The first night he didn't secure the tubing and it came apart and the result was not pretty. I think as his wounds heal he'll find it a lot better as right now I do all the emptying of the bags etc. as he finds it hard to bend down. He gets it removed a week from Thursday. > > We're waiting for the pathology report but so far, so good. The surgeon said his lymph nodes weren't swollen which is a good sign. His PSA was 4.5, gleason 6, T1C and 3 out of 6 cores showed cancer - 5%, 15% and 20%. We're praying for good results. > > Any advice on how to live with a catheter? > > Thanks, > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 > I'm afraid I have to agree with . I also had bladder spasms -- found > that opium + belladonna suppositories were the only effective drug, and > only _partly_ effective. > > You might want to keep the exit point lubricated with KY Jelly or > something similar. If you don't have bladder spasms, be happy about that. I've just got to supply my anecdote, much as I fear that such stories might mislead my brothers. Just bear in mind that what helps/hurts me might do just the opposite to you. I underwent cryotherapy conducted by a uro who simply was unqualified and unskilled. The cryo failed to be, as promised, " curative " of my extensive Gleason 9 cancer. Surprise! But that's not my point. The uro, for reasons never explained, elected to install a supra-pubic catheter. Yup, right through my belly into the bladder. I carried that thing and its bag around for four weeks. When it was removed, I leaked through the lower abdomen. The jerk of a uro never bothered to brief me. I leave the rest to your imagination. So I recommend that folks with trans-urethral catheters consider the alternative. Regards, Steve J Quote Link to comment Share on other sites More sharing options...
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