Question

[Guest guest]

I know the names, what we do is put on displays for people, Rob is a pikeman, so he goes around with a 16ft pole and attempts to skewer parlimentarians, I swan around in a big dress! We get to camp in some fabulouse places sometimes, castle grounds etc. Sadly, now that I'm on the oxygen I'm going to have to curtail what I do, as the oxygen tubing isn't considered authentic for the period. I also can't get too close to the camp fires anymore, and a big part of the evening is sitting around the camp fire having a drink. I plan to pop along to the local ones for a while to see my friends, and will be going on the socials where you don't have to dress up. I'm also going to take on some behind the scenes roles so that I'm still active within my regiment.> > >> > > how do u manage to keep your tubing from getting tangled up?> > >> > > and what are everybodys hobbies? mine is reading and crocheting> > >> >>

[Guest guest]

Can I take it that you are 'Royalists' in 17th C terms? I have a great interest in the Cornish involvement in the Civil War & specifically the Isles of Scilly, which was the last place in England to fall to Cromwellian troops.

Godolphin & Killigrew are both Cornish surnames..the Godolphin family were always in the thick of things politically. Killigrews were more important in an times when 'Royally approved' Pirates were needed to plunder the Spanish ships.

Yes I can imagine you'd need to take great care around the camp-fire! Great idea to become involved with the back-stage work.

There IS no 17th Century Anglo- Aussie history!

in Oz

> > > >> > > > how do u manage to keep your tubing from getting tangled up?> > > >> > > > and what are everybodys hobbies? mine is reading and crocheting> > > >> > >> >>

[Guest guest]

Just take the stairs very slowly (you can walk one step I bet, so if

its one step a minute and takes 20 minutes then thats fine) and please

under threat of starving them at least make the kids carry the baskets

up and down. I'd take a book or radio or something and stay down there

for as long as it tood to do what I needed, so just one trip.

As to your sign, it works, but I might suggest:

Smoke Free Home

My Life Depends on It

Respect that or don't enter

or....ok, I know you can't do this:

Smoke Free House

My Life Depends on It

All Cigarettes will be Immediately Extinguished by Glass of Water

and First time one lit, just take glass to it and extinguish it...if

you were accurate water shooter would be better....lol

Actually, we're all suppose to have signs that say oxygen in use, no

smoking allowed.

>

> i have a question....do any of you climb stairs? if so how do you

> handle climbing up them? i have a flight of stairs going to the

> basement....that's where my washer and dryer are...and i'm tired of

> waiting for my kids to wash me some clothes....any suggestions?

>

> and i'm thinking of making a sign and putting on my front door at eye

> level.......SMOKE FREE HOUSE

> SMOKE ONLY OUTSIDE

> IF YOU CAN'T DO THAT

> DON'T COME IN!

>

> what does everone think of that sign?

>

[Guest guest]

i do have a sign about not smoking oxygen in use. but my entire extended family smokes.....but on monday night at my nephews they all went outside to smoke....it wasn't for me! new baby in the house....see where i rank! > >> > i have a question....do any of you climb stairs? if so how do you > > handle climbing up them? i have a flight of stairs going to the > > basement....that's where my washer and dryer are...and i'm tired of > > waiting for my kids to wash me some clothes....any suggestions? > > > > and i'm thinking of making a sign and putting on my front door at eye > > level.......SMOKE FREE HOUSE> > SMOKE ONLY OUTSIDE> > IF YOU CAN'T DO THAT> > DON'T COME IN!> > > > what does everone think of that sign?> >>

[Guest guest]

Tammy, DO YOU HAVE THAT SIGN UP YET ??? This is your house we're talking about, eh? I certainly don't want to stir up trouble for you, or tell you what to do. You are not the only person on the board here that has issues with people smoking in their house. The answers and responses from others have been well thought out and appropriate. However, that said, I'm the guy that comes along when all those wonderful suggestions have failed to produce change. There comes a time, after reasoning ("I have a lung disease") and pleading ("please, the smoke is not good for me") that it's time to bring out the big stick !! Now, this stick may be symbolic, or it may be literal. I personally prefer the latter, but then I'm a grumpy ole' bugger. We have the right to make some reasonable demands. We should not have to plead for the very air that we need to breath. End of rant !! Stairs.....oh yes. We bought this 2 story house about 9 years ago. We live upstairs. Daughter's room, bath/shower/jacuzzi, and the laundry are all downstairs. We've loved this house....but for the past year or so it has been less than ideal. When I get out of the shower and walk down a short hallway to the bottom of the stairs I have to pause, suck on the O2 hose for a minute before climbing very slowly. In other words I don't have an answer for you. One thing that has helped a bit is planning my trips downstairs. Go take a shower, take the trash down with me, let the dog out, and put in a load of laundry. OR, hollar "Hey Babe, would you please get me the............." Asking for help was difficult at first but you'd be amazed at how easy it has become.......with practice. Good luck with both issues jim IPF 05 alaska Tammy S wrote: i have a question....do any of you climb stairs? if so how do you handle climbing up them? i have a flight of stairs going to the basement....that's where my washer and dryer are...and i'm tired of waiting for my kids to wash me some clothes....any suggestions? and i'm thinking of making a sign and putting on my front door at eye level.......SMOKE FREE HOUSESMOKE

ONLY OUTSIDEIF YOU CAN'T DO THATDON'T COME IN!what does everone think of that sign?

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Tammy,

You can get NO SMOKING signs from the American Lung Association at http://www.compliancesigns.com/nosmoking.shtml

You can also get them free from your oxygen provider.

Smoking in one part of the house is like peeing in one end of the pool!

I don't do stairs.

My prayers are going up for you and your family. I pray that thier love for you is greater than the addiction.

Hugs, Joyce D.

Pulmonary Fibrosis/Lupus 1997 Bronchiectasis 2004 Indiana >> i have a question....do any of you climb stairs? if so how do you > handle climbing up them? i have a flight of stairs going to the > basement....that's where my washer and dryer are...and i'm tired of > waiting for my kids to wash me some clothes....any suggestions? > > and i'm thinking of making a sign and putting on my front door at eye > level.......SMOKE FREE HOUSE> SMOKE ONLY OUTSIDE> IF YOU CAN'T DO THAT> DON'T COME IN!> > what does everone think of that sign?>

[Guest guest]

Tammy,

I don't have to climb stairs were I live. When I go visit my sister, there's a lot of stairs to climb most of the times it's easy to do so, other times it's so hard to do and by the time I reach the last step, I'm so out of breath. I just tell her as a joke, I'll just stay and sleep on the first floor lol!

As far the smoking goes I'm glad that you have stopped it! Since I was a child, everyone who came to visit me, relatives or my friends etc...they knew I had Asthma if they had to smoke they had to go outside because smoking wasn't allowed/forbidden/zero tolerance in the house. They understood and accept it the fact they had to go outside.

I'm not saying everyone was supportive of the idea they had to go outside, in those times you realize who are your real friends, relatives who will stand by you in hard times etc...

My brother-in-law, he goes outside to smoke, doesn't smoke in the house.

I think the sign is a wonderful idea!

Irene

Raynaud's Disease 09/07

PF 03/07 Canada

---- Original Message ----

To: Breathe-Support

Sent: Wed, 26 Dec 2007 6:42 pm

Subject: Re: question

Tammy,

You can get NO SMOKING signs from the American Lung Association at http://www.compliancesigns.com/nosmoking.shtml

You can also get them free from your oxygen provider.

Smoking in one part of the house is like peeing in one end of the pool!

I don't do stairs.

My prayers are going up for you and your family. I pray that thier love for you is greater than the addiction.

Hugs, Joyce D.

Pulmonary Fibrosis/Lupus 1997 Bronchiectasis 2004 Indiana

>

> i have a question....do any of you climb stairs? if so how do you

> handle climbing up them? i have a flight of stairs going to the

> basement....that's where my washer and dryer are...and i'm tired of

> waiting for my kids to wash me some clothes....any suggestions?

>

> and i'm thinking of making a sign and putting on my front door at eye

> level.......SMOKE FREE HOUSE

> SMOKE ONLY OUTSIDE

> IF YOU CAN'T DO THAT

> DON'T COME IN!

>

> what does everone think of that sign?

>

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Oh, I do love analogies.....leave it to Joyce

As long as we're on the smoking in the house, lets try another

analogy (not as good as peeing in the pool, but best one I can come

up quickly while oxygen deprived).

Him smoking in the house where you live is like you putting just a

drop of arsenic once a day in his food. Now, don't go do it, this

isn't a suggestion, but just for the purpose of analogy.

> >

> > i have a question....do any of you climb stairs? if so how do you

> > handle climbing up them? i have a flight of stairs going to the

> > basement....that's where my washer and dryer are...and i'm tired

of

> > waiting for my kids to wash me some clothes....any suggestions?

> >

> > and i'm thinking of making a sign and putting on my front door at

eye

> > level.......SMOKE FREE HOUSE

> > SMOKE ONLY OUTSIDE

> > IF YOU CAN'T DO THAT

> > DON'T COME IN!

> >

> > what does everone think of that sign?

> >

>

[Guest guest]

Hi Tammy,

I have stairs, but it is Rob's job to take heavy stuff like washing, up and down them. I have also turned it into a game for Lili, but I can do that since she's just five. (the game was that for every item of washing she brought downstairs, she got a smartie, a sweet the size of an M & M) It's quite simple, if your family want you to do the washing, then getting the washing in the right place is the very least they can do. I do still favour the map to the washing machine and set of instructions for your kids, (they are old enough aren't they?)

I also see nothing wrong in being a complete drama queen to get your point across. I'd be VERY dramatic about smoking in the house, something like throwing myself to the floor while dramatically wheezing when it happens. I would also consider signs that implied that smoking causes premature death. His! By being garrotted with an O2 pipe in the living room!

Your family have to learn to understand that in order to look after them, they need to help you to look after yourself. And you need to understand this too. It sounds like they have had the luxury of you doing everything for them, and now you need to put your foot down they don't quite get it. You need to consider them like a new pet dog. It'll take time, but they can be re-trained.

How are you doing on the no smoking yourself?

Love Ze xx>> i have a question....do any of you climb stairs? if so how do you > handle climbing up them? i have a flight of stairs going to the > basement....that's where my washer and dryer are...and i'm tired of > waiting for my kids to wash me some clothes....any suggestions? > > and i'm thinking of making a sign and putting on my front door at eye > level.......SMOKE FREE HOUSE> SMOKE ONLY OUTSIDE> IF YOU CAN'T DO THAT> DON'T COME IN!> > what does everone think of that sign?>

[Guest guest]

Zena/Tammy:

Amazing sometimes the habits we find we've fallen into over the

years. Some of them were always lousy, we just realize with this

disease they are now impossible. So many here enjoyed easier, simpler

and far more enjoyable and meaningful Christmas's by doing far less

work. Its the same thing on home responsibilities. Even at my early

stages, I've recognized things that are just a bit too much, so I do

have a woman and her assistants I can call in for something I

shouldn't be doing. For instance, one of the agonies of moving has

always been after the move, dead tired, cleaning the old apartment

and getting it back to move in condition. Well, I used them for both

my clean up and 's when she moved. That was just one large duty

for both of us that would have pushed us beyond our available energy.

So many things that the only reason we can give for how we've done

them all these years is " I've always done it that way. " Well, I found

in some of my cases that was just saying I'd always been stupid....lol

Most of us try to do too much, healthy or not. However, this disease

forces us to change that.

> >

> > i have a question....do any of you climb stairs? if so how do you

> > handle climbing up them? i have a flight of stairs going to the

> > basement....that's where my washer and dryer are...and i'm tired

of

> > waiting for my kids to wash me some clothes....any suggestions?

> >

> > and i'm thinking of making a sign and putting on my front door at

eye

> > level.......SMOKE FREE HOUSE

> > SMOKE ONLY OUTSIDE

> > IF YOU CAN'T DO THAT

> > DON'T COME IN!

> >

> > what does everone think of that sign?

> >

>

[Guest guest]

Regardless of anything, you're stuck being a part of this group.....why

we wouldn't even let you leave now if you were found to be well.

As to who to believe, you're going to have to push them to answer more

questions, like what does " with a little bit of fibrosis " mean.

However, on the whole it sounds like good news. But I'd want to go back

to osu and have them clear up the mystery. And, if it means getting a

third opinion, then do so.

>

> on friday i went to osu as some of u know....and i was told today

over

> the phone that i don't have uipf....i have emphysema...with alittle

bit

> of fibrosis.....that's why my dr here at home said i have uipf....so

> who do i believe? my dr? or the ones down at osu? and if i go by the

> ones at osu....can i still be part of this group???

>

[Guest guest]

Regardless of anything, you're stuck being a part of this group.....why

we wouldn't even let you leave now if you were found to be well.

As to who to believe, you're going to have to push them to answer more

questions, like what does " with a little bit of fibrosis " mean.

However, on the whole it sounds like good news. But I'd want to go back

to osu and have them clear up the mystery. And, if it means getting a

third opinion, then do so.

>

> on friday i went to osu as some of u know....and i was told today

over

> the phone that i don't have uipf....i have emphysema...with alittle

bit

> of fibrosis.....that's why my dr here at home said i have uipf....so

> who do i believe? my dr? or the ones down at osu? and if i go by the

> ones at osu....can i still be part of this group???

>

[Guest guest]

Hi I am 62 and have an enlarged prostate for sure. Had a urinary test done and

my prostate is really big the tester said. I will be sitting up a prostate

biopsy but I don't feel it is cancer. If it is just an over size which medicine

( flowmax) that I have been taking isn't helping then surgery is needed to

reduce the size. My question is I am going to ask my doc is there a one time

surgery for both the reduce and prostate biopsy. Then if it is cancer go from

there for treatment. Oh my PSA is high too.

[Guest guest]

The only ultrasound I had was to determine whether the cancer had spread outside the prostate (thankfully, it hadn't). My biopsy was the old fashioned 12 sample, with one of the 12 turning up malignant, so I guess I'm not the one to address your question about ultrasound biopsies, but obviously your PSA is on the far side of the 4.0 that uros consider to be the cause for concern.

I did Lupron plus 44 radiation treatments and my PSA, thankfully, is .1. I strongly considered brachytherapy but decided on IGRT instead.

Question> > > > Hi I am 62 and have an enlarged prostate for sure. Had a urinary test done and my prostate is really big the tester said. I will be sitting up a prostate biopsy but I don't feel it is cancer. If it is just an over size which medicine ( flowmax) that I have been taking isn't helping then surgery is needed to reduce the size. My question is I am going to ask my doc is there a one time surgery for both the reduce and prostate biopsy. Then if it is cancer go from there for treatment. Oh my PSA is high too.>

[Guest guest]

.

Our urologist has a NURSE..who is excellent. MALE..and goes thru ANY DETAIL..you want to ask. He meets with you WITHOUT THE DR..so can be very informative..with any issues you have. Will not recommend a treatment..but will tell you what HE WOULD DO if in the same situation. THAT IS INVALUABLE..! And then he works with the oncologist also...so DOUBLE helpful! Could not be happier with the Dr's and nurses at the PRO HEATLTH HOSPITAL in Waukesha , Wisc...!

Jim....

To: ProstateCancerSupport Sent: Mon, May 17, 2010 10:15:38 AMSubject: Re: Question

Jim --That's better information than most doctors give their patients.>> ...I was given a sheet of optional treatments with the side effects of each..and each was explained in detail..and then TOGETHER..we eliminated the ones that were DEFINITELY OUT..and then went on their> recommendation of what would be best based on the Gleason score.  If questions..let me know.> Jim..Waukesha...psa 16...gleason 7.> > > >