Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 In a message dated 10/24/00 11:15:42 PM Eastern Daylight Time, CJWatts88@... writes: << Hi Shirley, Well, I went for my ultrasound this morning and the technician said the only way she could do the ultrasound was to push hard. She said it was because of the gas buildup in my stomach. I'm still trying to figure out what that has to do with being able to do an ultrasound of the pancreas. I've had many ultrasounds but they've never had to push the way these technicians do. Anyway, I wouldn't let her since the last one four weeks ago put me in severe pain for two weeks. She took a few pictures without pushing hard but I'm sure the size won't be accurate. I'll just have to wait until I get the results in a few days. I'm going to suggest another CT scan if my insurance will agree. How is your arm? I do hope it is getting better. I still think you need an antibiotic especially since you are scheduled for surgery. An antibiotic couldn't hurt and it just might help. Let me know how you are doing. You're in my thoughts and prayers and I know your surgery will be a success! You deserve to be able to eat and to be without pain. Hugs & Prayers Carole >> Hi Carole, What if when you have the next ultrasound you take an enema or a laxative before you go for the test. Do you think that would help relieve some of the gas. Maybe the gas is due to the pancreas though. If so maybe if you just had clear liquid s the day and night before. I am grasping at straws here. I want you to have an ultrasound that is a good and clear one without someone pushing so hard on your stomach. I hope it works out for you Carole. My arm is still sore and swollen. I have done every thing the doctor told me to do. I have practically boiled my arm with hot towels. I am still on the coumadin which I don't feel good about since I am scheduled for surgery Dec 8. Thurs. I am going to see my doctor about my arm. I hope to get some answers then. Tomorrow I have decided that I am not going to put any hot towels on my arm at all. I am just going to try to ignore it and see what happens. My husband thinks that I am cooking my arm and if I stop with the hot towels I will heal on my own. I don' t know. I have thought about an antibiotic like you said but if I had an infection wouldn't I have a temp? Thanks for encouraging me about the surgery Carole. Please keep me in your thoughts and prayers. I feel so much relief just knowing that people are praying for me. Just remember Dec 8. I am praying for you also. I pray that you will get well from this terrible disease. Take care, love,Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 In a message dated 10/25/00 12:00:56 PM Eastern Daylight Time, CJWatts88@... writes: << Good Morning Shirley, I'm so sorry your arm isn't any better. Your husband may have a point...since the compresses haven't worked, your burning your arm could be making it worse. Are you sure you aren't running a fever? When I'm on my pain med which has the same ingredient as Tylenol in it, it would be hard to know what my temperature really is. You may have a fever and not be aware of it if some of your medication lowers temperature while helping your pain. Just a thought....hope the doctor helps you on Thursday. I know you are scared about your surgery but remember I may not be there with you in a physical sense but I will be there emotionally supporting you in every way I possibly can. You are and always will be in my thoughts and prayers. Hugs & Prayers Carole >> Hi Carole, I don't think I have a temp. I always can tell when I do have a temp. Tomorrow when I go to my doctor I am going to tell her that this arm has been bothering my for five weeks and nothing is helping it. I want more test and something has to be done to find out what is wrong with it. I don't want anything to stand in the way of my surgery. Even though I dread it. I want it but I don't want it. Can you understand that or am I crazy? lol I stopped putting hot compresses on my arm because it was not helping. I think it was making it worse. My doctor will not like that one bit. Once I stopped taking medication she prescribed for me and she has a real temper fit. She screamed and yelled at me. She was really angry. I thought to myself is this the way she talks to her husband or children when she gets angry? She had me crying but I stood up to her. I guess if she made me cry I didn't stand up to her very well. Oh well I don't care anymore. I just want to feel better and be able to eat. Thanks Carole for thinking of me and I really do appreciate your prayers. Please remember Dec. 8. Love, Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Hi Shirley, Yes, I do understand and no, you are not crazy...just human like the rest of us. Put in your place, we would all have those same feelings. Good luck with your doctor's appointment Thursday and don't allow her make you cry again. Make her listen to you!!! God bless you, Shirley and hope you get the help you need with your arm. Hugs & Prayers Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 In a message dated 10/25/00 4:18:00 PM Eastern Daylight Time, CJWatts88@... writes: << Hi Shirley, Yes, I do understand and no, you are not crazy...just human like the rest of us. Put in your place, we would all have those same feelings. Good luck with your doctor's appointment Thursday and don't allow her make you cry again. Make her listen to you!!! God bless you, Shirley and hope you get the help you need with your arm. Hugs & Prayers Carole >> Thanks so much Carole. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2000 Report Share Posted October 26, 2000 this is a great funraiser and only takes a couple minutes! Verne , Cookie Baker and SCA3 Spazz (no subject) > It only takes a few seconds! > > > Hi Everybody, > > If you go to http://health.yahoo.com and click on the PINK RIBBON > (on the left side of the screen) , Yahoo will donate $1.00 to the > G. Komen Breast Cancer Foundation. It's effective through 15 November. > > Spread the word. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 In a message dated 10/31/2000 1:51:12 PM Eastern Standard Time, CJWatts88@... writes: << I'd be very interested in all members' views on this subject Vs Pancreatitis and if any of you have this awful habit. Wishing you all a pain-free day! >> Hi Carole, I am guilty as charged!!!!! I am a smoker too. I quit after I was in the hospital in a coma with my last attack, but it got harder before it got easier. When I first came home, I was so weak and just plain different for a while, it didn't really bother me as much. Then when I got better, met my now hubby, he smoked like a chimney and I just couldn't do it. I had stopped for 10 months and I am very dissapointed in myself for starting again. I also feel as though I have let everyone down that prayed for me to make it out of the coma. They all cared and worried so much and here I am destroying myself. Anyway, I know that it has a bad effect on my condition because it effects my triglycerides which is what caused my pancreatitis in the first place. I am not totally sure why, all I can think is that it deprives our bodies of needed oxygen. Just thought I would let you know that you are not alone. I am hopeful that I can quit again someday.........you just have to want to!!! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 In a message dated 10/31/00 9:58:51 PM Eastern Standard Time, Havir writes: << << Two doctors and an HMO manager died and lined up at >the pearly gates for admission to heaven. St. >asked them to identify themselves. > >One doctor stepped forward and said, " I was a >pediatric >spine surgeon and helped kids overcome their >deformities. " St. said, " You may enter. " > >The second doctor said, " I was a psychiatrist. I >helped people rehabilitate themselves. " St. >invited him into heaven, too. > >The third applicant stepped forward and said, " I was >an HMO manager. I helped people get cost-effective >health care. " St. said, " You can come in also. " > >But as the HMO manager walked by, St. added, > " You may only stay for three days. After that you can go >to hell! " > >> >> In a message dated 10/31/00 4:12:01 PM Pacific Standard Time, FD Rog 37 writes: << Two doctors and an HMO manager died and lined up at >the pearly gates for admission to heaven. St. >asked them to identify themselves. > >One doctor stepped forward and said, " I was a >pediatric >spine surgeon and helped kids overcome their >deformities. " St. said, " You may enter. " > >The second doctor said, " I was a psychiatrist. I >helped people rehabilitate themselves. " St. >invited him into heaven, too. > >The third applicant stepped forward and said, " I was >an HMO manager. I helped people get cost-effective >health care. " St. said, " You can come in also. " > >But as the HMO manager walked by, St. added, > " You may only stay for three days. After that you can go >to hell! " > >> >From: and Sherrell Reid <jareid37@... >Subject: A funny >> > >Two doctors and an HMO manager died and lined up at >the pearly gates for admission to heaven. St. >asked them to identify themselves. > >One doctor stepped forward and said, " I was a >pediatric >spine surgeon and helped kids overcome their >deformities. " St. said, " You may enter. " > >The second doctor said, " I was a psychiatrist. I >helped people rehabilitate themselves. " St. >invited him into heaven, too. > >The third applicant stepped forward and said, " I was >an HMO manager. I helped people get cost-effective >health care. " St. said, " You can come in also. " > >But as the HMO manager walked by, St. added, > " You may only stay for three days. After that you can go >to hell! " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 my husband gerald herbold was diagnosed with pk in 1994 and msa in 1997 at mayo==the pk diagnosis was in newton and confirmed in iowa city===we continued to go to mayo for a time but the trip was too hard on my husband so we discontinued our trips---the drs are fine but the nurses and other help are not as nice as we expected--really ---my husband fainted in the waiting room after the sweat test and no fluids except a little bit of pop and some crackers I got hurridly---the seculeduling was bad I thought but I suppose I am glad we went---our neuro thought it was shy drager but was not uncomfortable with the mayo diagnosis---I wouldn t do it again nor would my husband=== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Greetings! You mention " our neuro thought it was shy drager but was not uncomfortable with the mayo diagnosis [of MSA] " . They are one in the same thing. MSA refers to a group of three disorders -- Shy-Drager Syndrome (SDS), Sporadic OPCA and SND. Researchers discovered that they are caused by the same underlying problem, but present differently based on the part of the brain that is initially impacted. The good news for you and your husband is this is a good place to come for more information. There's lots of patients, care givers and loved ones here. All try their best to share their own experience to help one another. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Greetings! You mention " our neuro thought it was shy drager but was not uncomfortable with the mayo diagnosis [of MSA] " . They are one in the same thing. MSA refers to a group of three disorders -- Shy-Drager Syndrome (SDS), Sporadic OPCA and SND. Researchers discovered that they are caused by the same underlying problem, but present differently based on the part of the brain that is initially impacted. The good news for you and your husband is this is a good place to come for more information. There's lots of patients, care givers and loved ones here. All try their best to share their own experience to help one another. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Actually Shy-drager and MSA are one in the same if I understand the newest terminology. Marilyn in TN ---------- >From: HyFyC72@... >To: shydrageregroups >Subject: Re: (no subject) >Date: Tue, Nov 7, 2000, 8:39 PM > >my husband gerald herbold was diagnosed with pk in 1994 and msa in 1997 at >mayo==the pk diagnosis was in newton and confirmed in iowa city===we >continued to go to mayo for a time but the trip was too hard on my husband so >we discontinued our trips---the drs are fine but the nurses and other help >are not as nice as we expected--really ---my husband fainted in the waiting >room after the sweat test and no fluids except a little bit of pop and some >crackers I got hurridly---the seculeduling was bad I thought but I suppose I >am glad we went---our neuro thought it was shy drager but was not >uncomfortable with the mayo diagnosis---I wouldn t do it again nor would my >husband=== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Hi, You need to put this in your TO field shydrager-unsubscribeegroups You are sending it right now to shydrageregroups (no subject) > shydrager-unsuscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2000 Report Share Posted November 22, 2000 I'd like to unsubscribe. Thank-you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 please take me off the list. I have tried and I keep getting more. Thank-you terana3@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Hello, It says at the bottom of the email you send out . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Yes Brenice i did know but i am 3 hours drive north more than i want to drive alone Blanche Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Blanch, I see you are from Indiana, I wonder if you know there is a PSP support group in Indianapolis? Bernice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2000 Report Share Posted December 28, 2000 Bernice Bowers wrote: > Blanch, I see you are from Indiana, I wonder if you know there is a PSP > support group in Indianapolis? > Bernice > > Blanche I am also in Indiana. I live in andria, 50 miles No. of > Indy. Are you close to me? God Bless Carolyn cg Ed dec 5-00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2000 Report Share Posted December 31, 2000 >From: CHANPC@... >To: Loriike@... >Subject: (no subject) >Date: Sun, 31 Dec 2000 16:33:41 EST > > >A salesman goes up to a house and knocks on the front door. > >It's opened by a little ten year-old boy who has a lighted cigar in one = >hand, a glass of whiskey in the other and a Penthouse magazine tucked = >under his arm. > >Salesman: " Hello son. Is your mom or dad home? " > >Little boy: " What the hell do you think? " _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 > >To: debgardner@..., newcreationsdb@..., jlgard@..., >tstj2000@..., vsmith@... >Subject: Fwd: Fw: (no subject) >Date: Mon, 08 Jan 2001 09:03:07 -0500 > > > > >> >>To: " Joan Gardner " >>Subject: Fw: (no subject) >>Date: Mon, 8 Jan 2001 07:53:01 -0500 >> >> >> (no subject) >> >> >>Three old sisters--92, 94,and 96 years old, >>respectively--all lived together. >> >>One day the oldest drew a bath. She put one foot >>in the water, paused, then called downstairs to her >>sisters " Am I getting in the tub or out of the tub? " >> >> >>The middle sister started up the stairs to help, >>then paused and called back downstairs >> " Was I going up or coming down? " >> >> >>The youngest sister, who was sitting at the >>kitchen table having tea, said, >> " I guess I'll have to help. I hope I never get >>that forgetful! " and knocked on wood. >>She got up then, and paused. " I'll come >>up as soon as I see who's >>at the door! " she called. >> >> > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2001 Report Share Posted January 11, 2001 Blanche, Does he have Medicare? If so they will pay for it - but it is rented. Actually our PT's did not suggest the tray for Charlottes arms but the padded arm rests for the arms. The tray was for eating. Charlotte's wheelchair will cost about $2200 by buying it through Medicare and I have to pay about $535 of that (for tray and other uncovered items). BUT, I could buy the chair outright for $867 from a website (would be about $75 in shipping charges). Does he presently use a wheelchair? Maybe you could add something to that wheelchair Charlotte is getting a chair that will brace her and help hold her up with a harness. The tray will only be for eating, as it is too hard for leaning on and would have to have a pad on it. I'll send a picutre when we get it. Take care, Bill and Charlotte ------------------------------------------------------- BHartz5738@... wrote: > To all > Ralph,s hands has gone into a fetus position and swollen. > and can not stand on his feet . He isjust like a dish rag when they get him > out of bed > confusse d and when he does talk you can not hear him most of the time. > Now the therpy came in and wants to order a new wheel chair with a tray on > to lay his arms on and smaller one to fit his body the cost 2,000. or more > but he is in a nursing home and medicare does not paid for it or any part > is it worth it? at this time Iwant him to be comfortable .but a daughter > does not think it will help. > Blanche wife of Ralph with sds > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2001 Report Share Posted January 11, 2001 Blanche, Does he have Medicare? If so they will pay for it - but it is rented. Actually our PT's did not suggest the tray for Charlottes arms but the padded arm rests for the arms. The tray was for eating. Charlotte's wheelchair will cost about $2200 by buying it through Medicare and I have to pay about $535 of that (for tray and other uncovered items). BUT, I could buy the chair outright for $867 from a website (would be about $75 in shipping charges). Does he presently use a wheelchair? Maybe you could add something to that wheelchair Charlotte is getting a chair that will brace her and help hold her up with a harness. The tray will only be for eating, as it is too hard for leaning on and would have to have a pad on it. I'll send a picutre when we get it. Take care, Bill and Charlotte ------------------------------------------------------- BHartz5738@... wrote: > To all > Ralph,s hands has gone into a fetus position and swollen. > and can not stand on his feet . He isjust like a dish rag when they get him > out of bed > confusse d and when he does talk you can not hear him most of the time. > Now the therpy came in and wants to order a new wheel chair with a tray on > to lay his arms on and smaller one to fit his body the cost 2,000. or more > but he is in a nursing home and medicare does not paid for it or any part > is it worth it? at this time Iwant him to be comfortable .but a daughter > does not think it will help. > Blanche wife of Ralph with sds > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2001 Report Share Posted January 11, 2001 Greetings Blanche! Just wondering out loud ... Would it be possible to rent the wheelchair to see if it would help? I would hope the therapist might know where to rent one. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 In a message dated 10/10/2001 10:34:15 PM Eastern Daylight Time, klywood@... writes: > ROFLMHO!!! Only *we* would be jubilant about such subjective aspersions... > hee hee hee > > Congratulations! LOL > Kris > I know :0) My " thin " friends just don't get it :0) *~Joy~* Lap RNY 2/26/01 Dr. N. Bertha, D.O. @ town Memorial Hospital town, NJ Down 170lbs as of 9/27/01 Seeing the weightloss in MY eyes for the FIRST TIME! Mommy to: 1-9-99 & Saralyn 12-15-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 ROFLMHO!!! Only *we* would be jubilant about such subjective aspersions... hee hee hee Congratulations! LOL Kris Mommy2IrishTwnz@... wrote: > 32.3 - 44.8 > severe overweight - high risk > > According to this my BMI of now 44.7 I'm just severely overweight... no > longer morbidly obese :0) YAYAYAYAY > > *~Joy~* > Lap RNY 2/26/01 > Dr. N. Bertha, D.O. > @ town Memorial Hospital > town, NJ > Down 170lbs as of 9/27/01 > Seeing the weightloss in MY eyes for the FIRST TIME! > Mommy to: > > 1-9-99 > & > Saralyn > 12-15-99 > > Quote Link to comment Share on other sites More sharing options...
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