(No subject)

[Guest guest]

> Hi all; I was originally scheduled for resurfacing of my right hip

with Dr.

> Grecula in Galveston, TX. on July 15. Currently I am waiting for

FDA

> enlightenment, my plan B inspired by Saeed and co. is Europe. But I

am little

> confused about the whole situation in US. There seem to be two

almost

> identical devices - Cormet 2000 and Conserve plus. C+ is on hold

while the

> other is tolerated (approved?) by FDA. Does anybody know the

difference

> in-between them and possible implication in the battle for

insurance

> approval. Thanks. Tom dV.

Here's hoping all goes well for you with Dr. Grecula as I am

scheduled with him on Sept 16th (my birthday by the way). I talked to

them last week and they told that they did not expect the FDA delay

to affect my surgery date. I still have not heard from my insurance

(UHC) but am hopeful that they will approve the procedure. If not

plan B is also Belgium. Anyway best of luck!!!

[Guest guest]

The devices are not exactly the same. The main difference is that the

Conserve+ has a sintered CoCr backing for ingrowth while the Cormet 2k has a

titanium backing. Something else to consider is that if the femoral part

ever fails the Corin acetabular part can be mated with a Corin stem and

similarly for the . I am not aware of any matching stem for the BHR.

There may be other differences, but so far they aren't telling. I've sent a

questionnaire to all the companies regarding specific details, so far only

Corin has returned theirs. It is posted at

http://groups.yahoo.com/group/surfacehippy/files/Implants/corinqst.pdf

In the near future I plan to fill out the others based on public

information, maybe that will spur the others to be more responsive.

The C+ has completed their clinical trial and received approval for

" continuing access " but such access is granted in lots of a couple hundred

at a time and they apparently wanted more follow-up data before granting the

company's latest request for more devices. Theoretically, that approval

will come in a week or so. The Corin has FDA approval to conduct a clinical

trial of the Cormet 2k.

Congrats to those who have gone overseas to gain independence from the

tyranny of the FDA.

-

> (no subject)

>

>

> Hi all; I was originally scheduled for resurfacing of my right

> hip with Dr.

> Grecula in Galveston, TX. on July 15. Currently I am waiting for FDA

> enlightenment, my plan B inspired by Saeed and co. is Europe. But

> I am little

> confused about the whole situation in US. There seem to be two almost

> identical devices - Cormet 2000 and Conserve plus. C+ is on hold

> while the

> other is tolerated (approved?) by FDA. Does anybody know the difference

> in-between them and possible implication in the battle for insurance

> approval. Thanks. Tom dV.

>

>

>

[Guest guest]

Al:

My understanding is the surgeon can determine bone density from your

xray. Some doctors do charge for looking at the xrays. Select your doctor

candidates and call or email them. You should get a prompt reply. Resurface

surgeons seem to understand the psycology of the hip patient. Fire away at

them with questions. The ones which do not respond properly aren't the

doctor for you. There are eoungh good ones out there for your to be choosey.

Apply energy in your search for knowlege and good luck.

[Guest guest]

Al

My primary care physician, a regular family medicine doctor, took my initial

x-rays and made as many copies as I wanted to send to the resurfacing

surgeons. They cost me about 10 bucks per set (2 angles on the hip) and I

sent them by priority mail to the surgeons. Dr. s got his the following

day and called me that evening, about 8 pm. ( I don't think the man ever

sleeps). He was able to ascertain that I would be a good subject for the

procedure and that my bone stock was fine based on the x-rays and questions

about my background and general fitness levels. He was very upfront about

the resurfacing being a relatively new procedure here in the US and that

although it made a lot of sense the longevity of it was yet to be determined.

There was no sales job, just facts. Like many of the other folks on this

site my local OSs would not even talk to me about resurfing. but were very

eager to do a THR. Hope this info is helpful, it is a very confusing issue

when you are trying to work through it and make the right decision--best of

luck--Shef

[Guest guest]

Shef,

Thank you for all that information and advice. I will follow your

recommendations and let you know how things work out.

Really appreciate your prompt reply.

Al.

[Guest guest]

,

Thank you for getting me started in the right direction. I have selected

three resurfacing specialists and will try to get in touch with them. I have

also contacted the OS that has my X-rays to see if I can get 3 sets of them

made up.

Will let you know how things work out. Thanks again for all your help!

Al.

[Guest guest]

Hi,

In my case the surgeon wanted a bone density scan done which I had to pay

for and a MRI which I only had to contribute towards.

I think that the bone density is needed if there are questions about the

quality of the femur head/neck. In my case it hasn't been viable as such for

35 years. In some there is the question of Osteoporosis or damage done via

past history etc. The MRI will give them some idea of what the muscles are

doing/have done if you are looking at potential serious problems with lack

of use. Apparently muscles die from lack of use and after a given time are

totally gone. My MRI showed a vast difference between both hips but

thankfully the reality of my hip was a heap better than the MRI indicated.

For those waiting may I also suggest you do anything you possibly can to

exercise those muscles passively. I have found I can move a lot of mine by

just flexing individual muscles. Takes a heap of concentration at the start

but over time - like 2 months - some of mine are reappearing and hopefully

my efforts will bear fruit after the 7 Aug - surgery date.

Re charges - My potential surgeon invited me to send him an email and told

me a heap of things about my condition, looked at the various tests and then

charged about half the rate of the local surgeons when I finally visited

him - and spend an hour with me. I think a lot of these people are far more

human than the normal doctors one has to contend with and yes many have the

same history as you re who will discuss this operation or indeed any other

the particular sugeon doesn't do and doesn't want to learn to do. There are

some dreadful stories out there but would hazzard a guess that surgeons who

look at new procedures are more likely to progressive in other areas of

human life like dealing with patients and understanding their problems.

Edith

> I have been following most of your progress on this web site over the last

> few month and I am impressed with all the excellent information that is

> passed around. However, with newcomers like myself, there are many

questions

> that go unanswered. Mention is made about X-rays and bone density. Are the

> X-rays taken by the OS good enough for evaluation for an BHR? How does one

> get another set of X-rays to perhaps send to more than one surgeon for

> evaluation? How does one get his or her bone density? Is there a maximum

age

> limit? My orthopedic surgeon wouldn't even discuss that procedure (BHR)

with

> me. Also, if the X-rays are sent to doctors for evaluation, will there be

a

> charge for this? And if so, would certain (or any) health plans pay for

this?

> If anyone out there has answers to the above I know it would help me and

many

> others on this site to get started on laying the groundwork needed. Many

> thanks in advance for your help!

> Al.

[Guest guest]

In a message dated 7/12/2002 7:22:03 PM Central Daylight Time,

alfiestu@... writes:

> <A HREF= " mailto:alfiestu@... " >alfiestu@...</A>

Al:

Mt hospital charged $3.00 per set of x ray copies.

[Guest guest]

Thanks, ! Give Peg my love and tell her I've been really sending good

thoughts these past several days, since I thought her surgery was Sept. 7th

- so now I'll send them on the 11th - that's tonight around 1 am Texas time,

I think.

in Austin

>From: peggathy@...

>Reply-To: surfacehippy

>To: SURFACEHIPPYYAHOOGROUPS (DOT) COM

>Subject: (no subject)

>Date: Mon, 9 Sep 2002 08:32:02 EDT

>

>Hello, this is , first born of Peggathy writing to let you all know

>that

>my mom is in Belgium now doing some sight seeing eating lots of chocolate

>and

>drinking beer-- and is scheduled for surgery on the 11th of Sept. She has

>met numerous people around town that have had the surgery and are very

>happy

>with it too. I will be keeping you updated.

>

>

>

>

>

[Guest guest]

This

is a great read, Marla

Subject: (no subject)

Something interesting

for you to read.

His name was Fleming, and he was a poor ish farmer.

One day, while trying to make a living for his family, he

heard a cry for

help coming from a nearby bog. He dropped his tools and ran to the bog.

There, mired to his waist in black muck, was a terrified

boy, screaming

and struggling to free himself.

Farmer Fleming saved the lad from what could have been a

slow and

terrifying death.

The next day, a fancy carriage pulled up to the Scotsman's

sparse

surroundings. An elegantly dressed nobleman stepped out and introduced himself

as the

father of the boy Farmer Fleming had saved. " I want to repay you, "

said the

nobleman. " You saved my son's life.

" No, I can't accept payment for what I did, " the

ish farmer replied,

waving off the offer.

At that moment, the farmer's own son came to the door of the

family

hovel. " Is that your son? "

the nobleman asked.

" Yes, " the farmer replied proudly.

" I'll make you a deal. Let me provide him with the

level of education my

own son will enjoy. If the lad is anything like his father, he'll no doubt

grow to be a man we both will be proud of. "

And that he did.

Farmer Fleming's son attended the very best schools and in

time, he

graduated from St. 's Hospital Medical School in London, and went on to become

known throughout the world as the noted Sir Fleming, the discoverer

of Penicillin.

Years afterward, the same nobleman's son who was saved from

the bog was

stricken with pneumonia. What saved his life this time? Penicillin.

The name of the nobleman? Lord Randolph Churchill.

His son's name? Sir Winston Churchill.

Someone once said:

What goes around comes around.

Work like you don't need the money.

Love like you've never been hurt.

Dance like nobody's watching.

Sing like nobody's listening.

Live like it's Heaven on Earth.

It's National Friendship Week. Send this to everyone you

consider a

FRIEND.

Pass this on, and brighten someone's day.

AN IRISH FRIENDSHIP WISH: You had better send this back!!

Good Luck! I

hope it works...

May there always be work for your hands to do;

May your purse always hold a coin or two;

May the sun always shine on your windowpane;

May a rainbow be certain to follow each rain;

May the hand of a friend always be near you;

May God fill your heart with gladness to cheer you.

OK, this is what you have to do... Send this to all of your

friends!

But - you HAVE to send this within 1 hour from when you open

it!

Now.....Make A wish!! I hope you made your wish!

There's nothing in life that can't be fixed or

forgiven. Anon

[Guest guest]

Please Help me Unsubscribe...Thank you

[Guest guest]

Hey Stace, Here's Dr Stern's info:

Barney J. Stern, M.D.Professor, /@IF>NeurologyExecutive Vice-Chairman, Dept. of Neurology

Email:

bstern@...

Phone:

Contact:

Address

Dept. of NeurologyThe Emory ClinicRoom A43091365 Clifton AvenueAtlanta, GA 30322

You can email him and he will get back to you...

Big Hugs,

-- (no subject)

can you send all of barney sterns info one more time...i lost it......how unlike me to lose something!.... ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

LOL!!~!!!

RENEE

[Guest guest]

LOL!!~!!!

RENEE

[Guest guest]

In a message dated 9/23/2003 12:28:37 PM Central Standard Time,

debkroll@... writes:

Wow Wolfie Way to Girl Getting skinnier on us.I think it wonderful

when everyone turns their heads and looks as we loses this fat.Keep

the lbs coming off and enjoy the thin side of Life.a friend debkroll

of

Iowa.

Thanks Deb, I can always count on you to give me a pat on the back. Your a

good friend. God Bless ya!

Wolfie

Lap Rny...August 27,2003

Dr. Lee A. Schmitt

Birmingham, Alabama

Keep 'Em Laughing!

[Guest guest]

Wow Wolfie Way to Girl Getting skinnier on us.I think it wonderful

when everyone turns their heads and looks as we loses this fat.Keep

the lbs coming off and enjoy the thin side of Life.a friend debkroll

of

Iowa.

> Well everyone, just wanted to update a little bit, if I have read

my scales

> right, and Lord knows I have made a mistake on occasion, I have

now lost 27

> pounds. I am back into some of my favorite overalls,

> yippeeeeeeeeeeeeeeeeee!!!!!!! And the looks are starting, lol. Ya

know the kind where the guys walk up to

> ya at a counter and just keep staring and smiling that poop eatin

grin, lol. I

> love it. At first though I thought I might have had something

smeared across

> my face it had been so long since a man gave me that look and

still wasnt sure

> until the friends of mine working in the store said he was

checking me out.

> Eat your heart out I'm thinking, lol. All I know is I am feeling

wonderful. I

> feel lighter. I sleep better. My sugar is in the normal ranges.

Every once in a

> while it plunges though and I have to hit the juice or something

sweet but it

> comes back up to a better number. Just wanted to let you all know

how things

> are going here.

> I am able to pretty much eat what I want. When I hit the

plateaus I was

> worried. I had one of our support group members where I go to the

meetings

> tell me to up my calories and my protein and the scale started

moving. By the

> way, Thanks Wes, Your an angel!!!!

> Skinny Wishes to everyone. Love to all!

>

> Wolfie

> Lap Rny...August 27,2003

> Dr. Lee A. Schmitt

> Birmingham, Alabama

> Keep 'Em Laughing!

>

>

>

[Guest guest]

I think it's great too Wolfie. You're one of the shining stars of WLS.

Keep up the good work!

T.

[Guest guest]

In a message dated 9/23/2003 4:43:20 PM Central Standard Time, Leeds@...

writes:

I think it's great too Wolfie. You're one of the shining stars of WLS.

Keep up the good work!

T.

Well thank you so much for the kind words. Your a super gal yourself!

Wolfie

Lap Rny...August 27,2003

Dr. Lee A. Schmitt

Birmingham, Alabama

Keep 'Em Laughing!

[Guest guest]

I am on Imuran. I take 1.5 pills a day.

I do not think there is as many side affects with it as there is with the Prednisone.

I am also on Methotrexate.

So far I have not been diagnosed with Neurosarcoidosis but he is treating me like I do have it.

Sharon

(no subject)

I am currently taking 100 mg. of prednisone from just being discharged from the hospital with my 7th bout with neurosarcoidosis. Because I've been on prednisone for the last 2 years they are trying to decrease my mg. Every time I get to the 20mg-15mg threshold it throws me back into the hospital again. The doctors have introduced a new medication called Azathioprine (Imuran) to see if together with taking this medication my prednisone dosage could be decreased. Has anyone been on this medication? Also I have had periodic bouts with the hiccups sometimes for weeks at a time, nonstop, 24/7. The doctors are unable to tell me why this is happening. But since I have neurosarcoidosis and I think hiccups are where the phrenic nerve (located in the back of the brain, I think) aggrevates the diaphram is what causes hiccups. Has anyone else had problems with chronic hiccups. Thanks. I hope all is well with everyone and you all are constantly in my prayers. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

I take Imuran 50mg 3x/day, without any side effects that I've noticed. I'm down to 10mg Pred daily. Can't help you with hiccups; I know that it's difficult to cope with. I'll ask my neighbor; a couple of years ago he had hiccups for several weeks, finally went to the E.R. in desperation. They admitted him & did a bunch of cardiac testing & kept him for 2 days until a cardiologist came to see him, on Christmas Day. The doctor said, "What are you doing here?" Mac said, "Beats me," and the doctor discharged him. Still had the hiccups; they didn't do anything about that! He tried bunches of remedies that people suggested & finally found something that stopped them, but I don't remember what it was. If I find out, I'll let you know. Rose in Indiana

(no subject)

I am currently taking 100 mg. of prednisone from just being discharged from the hospital with my 7th bout with neurosarcoidosis. Because I've been on prednisone for the last 2 years they are trying to decrease my mg. Every time I get to the 20mg-15mg threshold it throws me back into the hospital again. The doctors have introduced a new medication called Azathioprine (Imuran) to see if together with taking this medication my prednisone dosage could be decreased. Has anyone been on this medication? Also I have had periodic bouts with the hiccups sometimes for weeks at a time, nonstop, 24/7. The doctors are unable to tell me why this is happening. But since I have neurosarcoidosis and I think hiccups are where the phrenic nerve (located in the back of the brain, I think) aggrevates the diaphram is what causes hiccups. Has anyone else had problems with chronic hiccups. Thanks. I hope all is well with everyone and you all are constantly in my prayers. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

This is for MinvardS you sound just like me when I was on

80mgs of preds the preds did help but like you I had chronic

hiccups the only thing that help me was Thorazine ask your

doc about it......Quint

[Guest guest]

Hey look, I got fan mail. LOL. I thought I'd share it with you all cos it's so cute!

How is everyone?

Love Aisha.

-- (no subject)

My name is Aisha too . What do you do for a living . I am only 11 years old . I hope your not mad since I'm e-mailing you while you must be so busy . Please reply to me , before december . Sicerly, Aisha Rehman

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Hey Aisha,

I have just been told that I have neurosarcoidosis, I am 35 years old female married with 3 children and strangley enough my 5 year old daughter's name is Aishia. I have been to your web site to see what goes on and I must say that I am very impressed. I will take one day at a time and see how my life pans out from here. Because I am so new to this I think it might take a while for it all to sink in. I will talk to you soon.

God Bless

Carol

(no subject)

My name is Aisha too . What do you do for a living . I am only 11 years old . I hope your not mad since I'm e-mailing you while you must be so busy . Please reply to me , before december . Sicerly, Aisha Rehman

____________________________________________________ IncrediMail - Email has finally evolved - Click Here ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

AWWWWWWWWWWWW, How cute.... next you'll be signing books and autographs....

Dang....A real fan.. I'm impressed.....

Hugs,

[Guest guest]

Dear Carol,

Welcome to the list!

It is so very daunting when you get told you have an illness that is

unpronounceable! Just know we are here for you anytime you need us. No vent

is too long, no question too silly except the unasked.

Yay to naming your daughter Aishia! Us Aisha's are going to take over the

world!

Again, welcome!

Love isha.