Prove PMID: 8931959 wrong - Re: 'Going strong' was..

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Terry,On the basis of my experience, you have at least another 14 years before you need to address ADT issues. I hope I have been able to offer you something positive in that at least. I wish you well - as I wish all men well who have suffered this infernal disease.I don't ever recall referring to your website as "ridiculous". Please copy the quote if you have it in your email archive and I will be duly contrite.Now, getting down to serious issues you say -- quote: > > You might like to mail appropriate members of the 900+ list of men who tell> their stories on my site to see if you can recruit them for your crusade.> The stories are indexed by age at

diagnosis, PSA, Gleason Score, date of> diagnosis and treatment chosen. Since your prime focus seems to be on> younger men you might like to start with the Age index which is here> http://www.yananow.net/Chart-Age.htm My only "crusade" is getting to the truth. As to your offer -- well, yes actually I would like to email all of them with your permission. I'll have a small 'form' ready they can fill in soon. I'll anonymise it, and we can go from there. Here is something you may be interested in. Its not my idea, following on from below can I add that in the UK alone 800 men under tha age of retirement die from prostate cancer. That statistic was based on WHO data for the same period, about 15 years ago. Has anything changed ? Are relatively more men under the age of retirement surviving the disease in 2010 compared to the mid 1990's ? If anyone can provide (objective) contemporary evidence of improved survival for younger men that would be a really positive thing to do.Sammy.Epidemiology of prostate cancer.Dijkman GA, Debruyne FM.Department of Urology, Ignatius Hospital, Breda, The Netherlands.Prostate cancer is currently one of the most common malignancies worldwide. Theincidence of prostate cancer has risen dramatically over the last decade, more sothan can be explained by increasing longevity. Mortality rates have also risen,though not as dramatically. There is a wide geographic variation in the incidenceof clinical prostate cancer, with higher rates in the United States than inChina. One risk factor which could explain this variation is the high fat intake associated with a Western diet. It is also apparent that prostate cancer is nowbeing detected at less advanced stages than in the past. Increased awareness ofthe disease and improved detection methods are thought to contribute to thisearlier detection.PMID: 8931959Sammy.>> Sammy,> > > > Some years ago after you had reamed me out for what you regarded as my> foolish, conservative attitude and my ridiculous website, I resolved not to> respond to any of your posts, Maybe I should have kept that resolve, but> since you have asked specific questions:> > 1. <snip> What were you diagnosed with ? <snip> Here's the shorthand> version: Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 7: No treatment> until Jun '07 PSA 42.0 - Bony Metastasis:Started ADT Aug '07: May '08 -> stopped ADT. May '10 PSA 8.20 : Recommenced ADT> > 2. <snip> "Still going strong" I am curious.<snip> If indeed you are curious> my full story is at http://www.yananow.net/Mentors/TerryH.htm > > You might like to mail appropriate members of the 900+ list of men who tell> their stories on my site to see if you can recruit them for your crusade.> The stories are indexed by age at diagnosis, PSA, Gleason Score, date of> diagnosis and treatment chosen. Since your prime focus seems to be on> younger men you might like to start with the Age index which is here> http://www.yananow.net/Chart-Age.htm > > > > All the best > > Prostate men need enlightening, not frightening> > Terry Herbert - diagnosed in 1996 and still going strong> > Read A Strange Place for unbiased information at> http://www.yananow.net/StrangePlace/index.html > > > > _____ > > From: ProstateCancerSupport > [mailto:ProstateCancerSupport ] On Behalf Of sammy_bates> Sent: Tuesday, 22 June 2010 10:36 AM> To: ProstateCancerSupport > Subject: Re: Peyronie's disease: Colchicine vs.> Colchicine plus vitamin E> > > > > > Terry,> > What were you diagnosed with ? "Still going strong" I am curious.> > For your information. I had metastatic disease in 1996 with lymph node and> seminal vesicle involvement right from the start. My PSA was > 50 ng/ml> which made me demand a biopsy and some kind of treatment. B. 1947: Dx at the> age of 49. The urologists thought I was some kind of pretender .. or too far> gone to be of any help. They indicated RT after many months of banging on> doors. I demanded RP and got it. It was the right decision. In the UK alone> about 800 men below the age of retirement die of advanced prostate cancer> every year. Possibly because they, or someone looking after them / advising> them, who should have known better, was a bit too complacent.> > You can afford to be conservative if you have minimal disease. If your have> significant and well advanced disease as I did, it was a wake-up call for> everyone, including me. After finding out the extent of my disease, and> learning of my prognosis "Two years .. Five if you are lucky" (quote from> kindly urologist) I was frightened. Because I was very frightened, I became> enlightened. This enlightenment, more like an epiphany really, changed the> way I saw the world. Without it I would have perished within the allotted> time.> > Anyhow, to cut (sic) a long story short, my surgeon had to cut out some of> my bowel to remove diseased tissue and that left me "incompetant" for a> while to say the least! I feel a lot more confident and indeed "competant"> now, after surviving 14 years against the odds. > > I feel I have a right to blow my trumpet. Tell the world (at least that> small portion of the world willing to listen) about my experience, and my> interpretation of the events leading to my survival. I am not looking to> educate or illuminate -- I am just looking for meaningful feedback. I figure> there are a few guys out there with a similar background to mine, with the> same fighting spirit, and the same no-nonsense outlook. > > This is a long distance call: If we can get together and exchange notes> maybe we can achieve what 70+ years of medical research has failed to do.> Namely, find an effective treatment for advanced prostate cancer that does> not involve castration, and all the nasty, unmanly things that go with this> awful treatment. A spin-off might be saving some of those 800 or so lives> (just in the UK) every year from needlessly going under to this disease.> > So, if you are out there guys, this is where to home in:-> > www.FitCare.org.uk/epidemic/> > .. we can link up from there.> > Sam.>