Re: /Water

[Guest guest]

,

and here is a toast to you, you always make me smile.

Kathie WA NSIP 96

> > > > > >

> > > > > > Hello. My name is Dawn, I'm 34, and was just diagnosed

with

> > PF on

> > > > > > Thursday...however have been experiencing strong symptoms

and

> > > > > begging

> > > > > > the Dr's. to take me seriously for the past 5 months. I

live

> > in an

> > > > > > extremely small town in N.B., Canada, so to get scheduled

for

> > > tests

> > > > > > and procedures, it seems like you have to wait an

eternity!

> > > > > *sigh* I

> > > > > > have a very complicated medical history and so I at least

know

> > > that

> > > > > my

> > > > > > PF is NOT the IPF variety, as I know mine is related to my

> > > > > autoimmune

> > > > > > disease. In 2001, when I was 28, I was diagnosed with the

> > > > > autoimmune

> > > > > > disease, Polymyositis and I also tested positive for the

anti

> > JO-1

> > > > > > antibody. Apparently this antibody means that you have a

very

> > high

> > > > > > chance at getting an ILD. I was also diagnosed with

Sjogrens

> > > > > Syndrome

> > > > > > and Raynauds Phenomenon during this time. Immediately

prior to

> > > > > > getting diagnosed with the above, I had 2 blood clots in

my

> > left

> > > leg

> > > > > > and 3 blood clots in my lungs, therefore, I am now taking

> > Warfarin

> > >

> > > > > for

> > > > > > life. I've also had Asthma since childhood. That's my

medical

> > > > > history

> > > > > > in a nutshell. Over the past 5 months, I haven't been

able to

> > > > > breathe

> > > > > > doing the simplest of tasks, such as bathing (that's the

> > worst!),

> > > > > > getting dressed or changed, and sometimes even brushing my

> > teeth

> > > or

> > > > > > washing my face. I have this intense burning in my chest

when

> > I

> > > > > > inhale and it just about kills me to yawn, because of that

> > burning

> > > > > > sensation (all my Dr.'s would do is lecture me about GERD

> > when I

> > > > > > talked to them about this but I knew it had nothing to do

with

> > > GERD

> > > > > > since my GERD is very well controlled. It was finally a CT

> > Scan

> > > > > that

> > > > > > I had done 2 weeks ago that apparently confirmed my PF

> > diagnosis

> > > and

> > > > > > apparently I am at the " early stage " . I have seen my

> > Pulmonologist

> > > > > > once previous to having my CT Scan done and I will see him

> > again

> > > > > but I

> > > > > > am waiting to have a 2nd set of Pulmonary Function test

> > performed

> > > > > > (along with blood gases), as well as an Echocardiogram

done.

> > When

> > > > > my

> > > > > > GP told me my diagnosis on Thursday, she basically told

me the

> > > news

> > > > > as

> > > > > > if she were diagnosing me with the common cold. It was

very

> > matter

> > >

> > > > > of

> > > > > > fact (and dare I say chipper?) and she sent me out the

door.

> > Of

> > > > > > course I didn't know what it was she was talking about so

I

> > was

> > > > > > absolutely fine then and there but once I got home and did

> > some

> > > > > > research and let the news register, I got REALLY upset at

the

> > way

> > > > > she

> > > > > > told me. We've had an awesome relationship over the past

15

> > years

> > > > > and

> > > > > > I just can't believe that she wouldn't have more sympathy

> > than

> > > > > that!!?

> > > > > > To be perfectly honest, I'm feeling quite hopeless. Is

this

> > as bad

> > >

> > > > > as

> > > > > > I think it is?? I know you all are in the same boat as I

am

> > and

> > > > > > probably have had to deal with all the ugliness this

disease

> > > brings

> > > > > > for far too long and I'm so sorry I had to find you this

> > way!!

> > > > > > However, I desperately need your support right now and all

> > the

> > > > > advice

> > > > > > that you have to offer. Thankyou!

> > > > > >

> > > > > > Dawn, 34, married, mother of 2 girls, ages 11 & 9

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Aaw geeze ,'fanks Kathie....you aint' bad yourself!!!!!

GIO> > > > > > >> > > > > > > Hello. My name is Dawn, I'm 34, and was just diagnosed > with> > > PF on> > > > > > > Thursday...however have been experiencing strong symptoms > and> > > > > > begging> > > > > > > the Dr's. to take me seriously for the past 5 months. I > live> > > in an> > > > > > > extremely small town in N.B., Canada, so to get scheduled > for> > > > tests> > > > > > > and procedures, it seems like you have to wait an > eternity!> > > > > > *sigh* I> > > > > > > have a very complicated medical history and so I at least > know> > > > that> > > > > > my> > > > > > > PF is NOT the IPF variety, as I know mine is related to my> > > > > > autoimmune> > > > > > > disease. In 2001, when I was 28, I was diagnosed with the> > > > > > autoimmune> > > > > > > disease, Polymyositis and I also tested positive for the > anti> > > JO-1> > > > > > > antibody. Apparently this antibody means that you have a > very> > > high> > > > > > > chance at getting an ILD. I was also diagnosed with > Sjogrens> > > > > > Syndrome> > > > > > > and Raynauds Phenomenon during this time. Immediately > prior to> > > > > > > getting diagnosed with the above, I had 2 blood clots in > my> > > left> > > > leg> > > > > > > and 3 blood clots in my lungs, therefore, I am now taking> > > Warfarin> > > >> > > > > > for> > > > > > > life. I've also had Asthma since childhood. That's my > medical> > > > > > history> > > > > > > in a nutshell. Over the past 5 months, I haven't been > able to> > > > > > breathe> > > > > > > doing the simplest of tasks, such as bathing (that's the> > > worst!),> > > > > > > getting dressed or changed, and sometimes even brushing my> > > teeth> > > > or> > > > > > > washing my face. I have this intense burning in my chest > when> > > I> > > > > > > inhale and it just about kills me to yawn, because of that> > > burning> > > > > > > sensation (all my Dr.'s would do is lecture me about GERD> > > when I> > > > > > > talked to them about this but I knew it had nothing to do > with> > > > GERD> > > > > > > since my GERD is very well controlled. It was finally a CT> > > Scan> > > > > > that> > > > > > > I had done 2 weeks ago that apparently confirmed my PF> > > diagnosis> > > > and> > > > > > > apparently I am at the "early stage". I have seen my> > > Pulmonologist> > > > > > > once previous to having my CT Scan done and I will see him> > > again> > > > > > but I> > > > > > > am waiting to have a 2nd set of Pulmonary Function test> > > performed> > > > > > > (along with blood gases), as well as an Echocardiogram > done.> > > When> > > > > > my> > > > > > > GP told me my diagnosis on Thursday, she basically told > me the> > > > news> > > > > > as> > > > > > > if she were diagnosing me with the common cold. It was > very> > > matter> > > >> > > > > > of> > > > > > > fact (and dare I say chipper?) and she sent me out the > door.> > > Of> > > > > > > course I didn't know what it was she was talking about so > I> > > was> > > > > > > absolutely fine then and there but once I got home and did> > > some> > > > > > > research and let the news register, I got REALLY upset at > the> > > way> > > > > > she> > > > > > > told me. We've had an awesome relationship over the past > 15> > > years> > > > > > and> > > > > > > I just can't believe that she wouldn't have more sympathy> > > than> > > > > > that!!?> > > > > > > To be perfectly honest, I'm feeling quite hopeless. Is > this> > > as bad> > > >> > > > > > as> > > > > > > I think it is?? I know you all are in the same boat as I > am> > > and> > > > > > > probably have had to deal with all the ugliness this > disease> > > > brings> > > > > > > for far too long and I'm so sorry I had to find you this> > > way!!> > > > > > > However, I desperately need your support right now and all> > > the> > > > > > advice> > > > > > > that you have to offer. Thankyou!> > > > > > >> > > > > > > Dawn, 34, married, mother of 2 girls, ages 11 & 9> > > > > > >> > > > > >> > > > >> > > >> > >> >>