UK: Macmillan e-newsletter for self-help and support groups

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Macmillan e-newsletter for self-help and support groups

Having problems viewing this email?View an online version here.

Newsletter for self-help and support groups

New self-help and support group leaflets available Improved grants for self-help and support groups

National conference of cancer self-help groups

Self-management activities for your group Good practice when starting a new group User involvement opportunities New inclusion user-involvement grants

April 2010

Welcome to the first Macmillan e-newsletter for self-help and support groups. It explains some of the resources, training and funding available to support your group.

It also highlights ways you can get involved with our work by using your cancer experience to help us improve cancer care and services.

If you know people who would benefit from reading the newsletter, please encourage them to join our mailing list.

Lastly, if you have any comments about this newsletter or suggestions for what you'd like to see included in the future, please contact me.

Happy reading!

Kim LevanUser Support CoordinatorMacmillan Cancer SupportEmail: klevan@...Tel: 020 7840 4902

New self-help and support groups leaflets available 1) A guide to how Macmillan can help your self-help and support groupIncludes everything you should know about grants, learning and development and other support we offer. Stick it on your wall or display it in your support centre and use it as a reference tool.

2) Putting you in touch with self-help and support groupsDesigned for anyone affected by cancer who is looking for someone to talk to, this leaflet explains the benefits of joining a support group and how to find one that suits each individual’s needs. Please help us spread the word about support groups by distributing the leaflet in public places such as GP surgeries, hospitals, libraries and community centres. This may also help to boost your membership.

Order your free copies by going to the be.macmillan website - or call 020 7840 4921.

Improved grants for self-help and support groups There are three grants available to groups this year:

Start up grants (up to £500 to set up a new group) Developing grants (up to £3000 to develop the activities of an existing group) – round two closing date: 2 July 2010 Training and conference grants (up to £3000 to host or attend a training course, networking event or conference)

To apply for any of these grants you must complete the new application form. The application form and all information relating to the grants programmes are available on the Macmillan website. Alternatively you can contact for a grant application pack on 020 7840 7841.

Please note we are no longer accepting applications sent on the old forms and you must complete the new form if you wish to be considered for funding.

National conference of cancer self-help groups

1-4 July 2010, Fallowfield Campus, Manchester

This event brings together cancer patients, their family members, carers and medical and health care professionals to encourage all those affected by cancer, to share their experience, knowledge and strength with each other in a safe, relaxed and positive environment. It aims to help each individual improve the quality of their personal cancer journey and bring together the people who run cancer support and self-help groups to help them extend and improve their skills and services.

To find out more about the conference and to book your place, please visit http://nationalcancer.org/ or contact Lesley on 01325 312314 or Sue Tyson on 07754 309145.

Self-management activities for your group

Would you like to run activities within your group that focus on self-management, e.g. healthy eating, relaxation, stress management and exercise? If so, you could receive training in the facilitation skills that would enable you to:

stimulate interest and enthusiasm

motivate the group

deal with group members' different learning needs

give feedback

Macmillan can deliver training to you through e-learning. Only very basic IT skills needed. It will be over a five week period. Each week you will work through a module and this will be followed up with a conference call.

Good practice when starting a new support group

Have you recently set up a new group or are thinking about doing so? If so, why not make use of the training courses available. Training is tailored to an individual's specific needs and can be carried out online or delivered locally by a Macmillan trainer.

To find out more about our learning and development opportunities please go to learnzone.co.uk, call Sam or on 020 7091 2010 or email workshops@...

User involvement opportunities

There are loads of ways you can get involved and use your cancer experience to help Macmillan and other cancer-related organisations make improvements to cancer care and services.

Here’s a sample of some of the latest opportunities:

Have your say by participating in your Local Involvement Network (LINks) – click here for more information. How much do you know about the consequences of cancer and its treatment? There is growing evidence that people living with cancer gain benefit from becoming involved in managing their own condition for which they need the right information. Help us to make that information available for UK cancer survivors by taking part in the 1000 people project.

Do you have a rarer cancer and have been unable to get a drug you need on the NHS because The National Institute for Health and Clinical Excellence (NICE) has turned it down? If so, Macmillan’s media team wants to hear from you. Drugs for rarer cancers (ie not breast, lung, bowel or prostate) are often not available on the NHS because they cost more to develop and are only suitable for a small number of patients.We think this is unfair and are calling on the next government to ensure everyone can get the drugs their doctor recommends. If you’re interested in talking to the media about your experience, please email Alison Davies aldavies@... quoting ref ‘DRUGS' or 020 7840 7806.

Join Cancer Voices - would you like to have your say by reviewing cancer resources, sitting on a steering group or talking to the media about your experience? You can find out about these types of opportunities and more by visiting http://opportunities.macmillan.org.uk/p_homepage.aspx or contact on 020 7091 2006.

New inclusion user involvement grant This grant is open to support groups as well as other social care organisations, community and voluntary sector groups and NHS bodies such as Cancer Networks and Primary Care Trusts, to support and encourage the development of User Involvement activity by people affected by cancer. If you are interested in apply to this grant programme or to request further information, please contact cgibbons@... or call Carol on 020 7091 2007.

You are currently subscribed as bryan.metcalf@...Please add us to your safe senders or contacts list to ensure you continue to receive emails from us.If you would like to leave feedback about this newsletter or the work Macmillan do, please do so.If you wish to stop receiving emails, please UnsubscribeIf you or someone you know is living with cancer and would like answers, support or just a chat, call Macmillan on 0808 808 00 00. (Monday to Friday 9am-8pm) Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ.__SMS__ / __SOURCE__

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To: Prostate Cancer Support e-group <ProstateCancerSupport >Sent: Wed, April 28, 2010 5:33:31 AMSubject: UK: Macmillan e-newsletter for self-help and support groups

Macmillan e-newsletter for self-help and support groups

Having problems viewing this email?View an online version here.

Newsletter for self-help and support groups

New self-help and support group leaflets available Improved grants for self-help and support groups

National conference of cancer self-help groups

Self-management activities for your group Good practice when starting a new group User involvement opportunities New inclusion user-involvement grants

April 2010

Welcome to the first Macmillan e-newsletter for self-help and support groups. It explains some of the resources, training and funding available to support your group.

It also highlights ways you can get involved with our work by using your cancer experience to help us improve cancer care and services.

If you know people who would benefit from reading the newsletter, please encourage them to join our mailing list.

Lastly, if you have any comments about this newsletter or suggestions for what you'd like to see included in the future, please contact me.

Happy reading!

Kim LevanUser Support CoordinatorMacmillan Cancer SupportEmail: klevanmacmillan (DOT) org.ukTel: 020 7840 4902

New self-help and support groups leaflets available 1) A guide to how Macmillan can help your self-help and support groupIncludes everything you should know about grants, learning and development and other support we offer. Stick it on your wall or display it in your support centre and use it as a reference tool.

2) Putting you in touch with self-help and support groupsDesigned for anyone affected by cancer who is looking for someone to talk to, this leaflet explains the benefits of joining a support group and how to find one that suits each individual’s needs. Please help us spread the word about support groups by distributing the leaflet in public places such as GP surgeries, hospitals, libraries and community centres. This may also help to boost your membership.

Order your free copies by going to the be.macmillan website - or call 020 7840 4921.

Improved grants for self-help and support groups There are three grants available to groups this year:

Start up grants (up to £500 to set up a new group) Developing grants (up to £3000 to develop the activities of an existing group) – round two closing date: 2 July 2010 Training and conference grants (up to £3000 to host or attend a training course, networking event or conference)

To apply for any of these grants you must complete the new application form. The application form and all information relating to the grants programmes are available on the Macmillan website. Alternatively you can contact for a grant application pack on 020 7840 7841.

Please note we are no longer accepting applications sent on the old forms and you must complete the new form if you wish to be considered for funding.

National conference of cancer self-help groups

1-4 July 2010, Fallowfield Campus, Manchester

This event brings together cancer patients, their family members, carers and medical and health care professionals to encourage all those affected by cancer, to share their experience, knowledge and strength with each other in a safe, relaxed and positive environment. It aims to help each individual improve the quality of their personal cancer journey and bring together the people who run cancer support and self-help groups to help them extend and improve their skills and services.

To find out more about the conference and to book your place, please visit http://nationalcanc er.org/ or contact Lesley on 01325 312314 or Sue Tyson on 07754 309145.

Self-management activities for your group

Would you like to run activities within your group that focus on self-management, e.g. healthy eating, relaxation, stress management and exercise? If so, you could receive training in the facilitation skills that would enable you to:

stimulate interest and enthusiasm

motivate the group

deal with group members' different learning needs

give feedback

Macmillan can deliver training to you through e-learning. Only very basic IT skills needed. It will be over a five week period. Each week you will work through a module and this will be followed up with a conference call.

Good practice when starting a new support group

Have you recently set up a new group or are thinking about doing so? If so, why not make use of the training courses available. Training is tailored to an individual's specific needs and can be carried out online or delivered locally by a Macmillan trainer.

To find out more about our learning and development opportunities please go to learnzone.co. uk, call Sam or on 020 7091 2010 or email workshops@macmillan .org.uk

User involvement opportunities

There are loads of ways you can get involved and use your cancer experience to help Macmillan and other cancer-related organisations make improvements to cancer care and services.

Here’s a sample of some of the latest opportunities:

Have your say by participating in your Local Involvement Network (LINks) – click here for more information. How much do you know about the consequences of cancer and its treatment? There is growing evidence that people living with cancer gain benefit from becoming involved in managing their own condition for which they need the right information. Help us to make that information available for UK cancer survivors by taking part in the 1000 people project.

Do you have a rarer cancer and have been unable to get a drug you need on the NHS because The National Institute for Health and Clinical Excellence (NICE) has turned it down? If so, Macmillan’s media team wants to hear from you. Drugs for rarer cancers (ie not breast, lung, bowel or prostate) are often not available on the NHS because they cost more to develop and are only suitable for a small number of patients.We think this is unfair and are calling on the next government to ensure everyone can get the drugs their doctor recommends. If you’re interested in talking to the media about your experience, please email Alison Davies aldaviesmacmillan (DOT) org.uk quoting ref ‘DRUGS' or 020 7840 7806.

Join Cancer Voices - would you like to have your say by reviewing cancer resources, sitting on a steering group or talking to the media about your experience? You can find out about these types of opportunities and more by visiting http://opportunitie s.macmillan. org.uk/p_ homepage. aspx or contact on 020 7091 2006.

New inclusion user involvement grant This grant is open to support groups as well as other social care organisations, community and voluntary sector groups and NHS bodies such as Cancer Networks and Primary Care Trusts, to support and encourage the development of User Involvement activity by people affected by cancer. If you are interested in apply to this grant programme or to request further information, please contact cgibbonsmacmillan (DOT) org.uk or call Carol on 020 7091 2007.

You are currently subscribed as bryan.metcalf@ virgin.netPlease add us to your safe senders or contacts list to ensure you continue to receive emails from us.If you would like to leave feedback about this newsletter or the work Macmillan do, please do so.If you wish to stop receiving emails, please UnsubscribeIf you or someone you know is living with cancer and would like answers, support or just a chat, call Macmillan on 0808 808 00 00. (Monday to Friday 9am-8pm) Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ.__SMS__ / __SOURCE__