Guest guest Posted March 24, 1999 Report Share Posted March 24, 1999 My doctor has me trying PREVACID for Gatric Reflux Disease. This can give you the stomach and chest pain. Check with your MD. =Phil= -----Original Message----- To: urticaria@... Date: Thursday, March 18, 1999 7:38 AM >Urticaria > >Hi everybody. I am a chronic urticaria sufferer since last May. It is >coming to a year. The hives just refuses to go away. It is back with >vengence everyday. The itch is very unbearable. I have tried many >medications but to no avail. I am scared of the side effect of the >medicine. I am also suffer from intestinal problem. Since young, I have >constipation problem. I even have haemorrhoid. I have consulted many >doctors. Yet, I still couldn't find the cause of it. I have chest and upper >stomach pain too. Can anybody help? Thanks for listening. > > >______________________________________________________________________ >To unsubscribe, write to urticaria-unsubscribe@... >Start Your Own FREE Email List at http://www.listbot.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 Tootie on line you can order stevia or splenda cant think of the link off hand but do a web serch for either when i get the link that is the good one i will pass it on my conection is down for explorere right now so i cant get to my favorites --- " Foote, Glenn " wrote: > Does anyone know of a good sugar replacer. I only > see on the shelves equal, sweet'n'low and sugar > twin. I got the sugar Twin because it says its ideal > for cooking but it tastes bitter even before it is > cooked im not sure if after cooking it will be > better. I live in a small town without many stores. > Any help would be appreciated. > > Tootie > <HR> <!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " > <HTML> <HEAD> <META content=text/html;charset=iso-8859-1 http-equiv=Content-Type> <META content=' " MSHTML 4.72.3110.7 " ' name=GENERATOR> </HEAD> <BODY bgColor=#ffffff> <DIV><FONT color=#000000 size=2>Does anyone know of a good sugar replacer. I only see on the shelves equal, sweet'n'low and sugar twin. I got the sugar Twin because it says its ideal for cooking but it tastes bitter even before it is cooked im not sure if after cooking it will be better. I live in a small town without many stores. Any help would be appreciated.</FONT></DIV> <DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> <DIV><FONT color=#000000 size=2>Tootie</FONT></DIV></BODY></HTML> _____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 1999 Report Share Posted May 21, 1999 Here is the best place i have heard of to buy the stuff splenda is the closest thing to sugar www.synergydiet.com hope this helps --- susan birney wrote: > > > > Tootie on line you can order stevia or splenda cant > think of the link > off hand but do a web serch for either when i get > the link that is the > good one i will pass it on my conection is down for > explorere right > now so i cant get to my favorites > --- " Foote, Glenn " wrote: > > Does anyone know of a good sugar replacer. I only > > see on the shelves equal, sweet'n'low and sugar > > twin. I got the sugar Twin because it says its > ideal > > for cooking but it tastes bitter even before it is > > cooked im not sure if after cooking it will be > > better. I live in a small town without many > stores. > > Any help would be appreciated. > > > > Tootie > > > <HR> > <!DOCTYPE HTML PUBLIC " -//W3C//DTD W3 HTML//EN " > > <HTML> > <HEAD> > > <META content=text/html;charset=iso-8859-1 > http-equiv=Content-Type> > <META content=' " MSHTML 4.72.3110.7 " ' name=GENERATOR> > </HEAD> > <BODY bgColor=#ffffff> > <DIV><FONT color=#000000 size=2>Does anyone know of > a good sugar > replacer. I > only see on the shelves equal, sweet'n'low and sugar > twin. I got the > sugar Twin > because it says its ideal for cooking but it tastes > bitter even before > it is > cooked im not sure if after cooking it will be > better. I live in a > small town > without many stores. Any help would be > appreciated.</FONT></DIV> > <DIV><FONT color=#000000 size=2></FONT> & nbsp;</DIV> > <DIV><FONT color=#000000 > size=2>Tootie</FONT></DIV></BODY></HTML> > > > _____________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 1999 Report Share Posted June 18, 1999 Pete everybody is different they lose in a different way. --- Peffly210@... wrote: > From: Peffly210@... > > Hi Group > Can someone tell me what the average weight loss on > induction is. I feel like > I could be doing better. > Pete > > ------------------------------------------------------------------------ > How many communities do you think join ONElist each > week? > http://www.onelist.com > More than 5,000! Create yours now! > ------------------------------------------------------------------------ > We Can Work Together For A Better You > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 I use a lot of mayo. I am gonna look for the sugar free type. I think that might help me with my stall here. How about Dextrose?? Can we have something with that in it? Friends, Kathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 Kathie, nothing with large amounts. The amount used in sausage and bacon is " negligible " according to Dr. Atkins. Bacon and sausage do have traces of carbs because of it, but it is way to hard to find sausage and bacon without it, it is used in the curing process. If you eat a lot of mayo, I would try to switch, I can't believe you don't have Dukes!!!! It is the best!!! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 1999 Report Share Posted July 5, 1999 Thank you it finnally throu me totally out of ketosis thou . It has been hanging in at a trace but no more.:)sue --- vladdy wrote: > , wanted to let you know I sympathize with the > antibiotics. They really do a number on me -- I get > very spaced out and confused. Do you have that > problem? Just maintain as best you can till you're > off them, and then pick up where you left off, eh? > Hope it goes okay. > > Jennie > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 1999 Report Share Posted July 15, 1999 How is it downloaded iis it into word or what. I believe it has to be word to match up and the index pages should be in 2 rows --- The Bills Family wrote: > Sue,,, I am having a problem with the cookbook from > the list... The page numbers in the table of > contents are not right.... Is there a way to fix it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 In a message dated 7/28/99 10:47:06 PM Central Daylight Time, cmbills@... writes: << . diet root beet with frozen cool whip in it,, tastes just like ice cream...yum.. >> Only what, 3 or 4 carbs max????? Thanks, I am really focusing and this list is really helping!!!!! I hate to bring it up but on a positive note, I am really glad to see we are talking about the diet!!!!!! YEAHHHHHHHHHHHHHHH!!!!! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 - that rootbeer with cool whip sounds GREAT! I never thought of that - I'm going to try that tonite... Does whipped cream have carbs... That would be something to order in a restaurant (if they had both!) Mol Some of these notes might be a little outdated or so... I have to reply as I read them in the morning or else I forget which ones to reply to. I have like 150 in my inbox... need to start deleting! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 Betty, You havbe to eat 1200 calories or more a day on this diet or your body goes into starvation mode and will not let go of the fat. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 1999 Report Share Posted September 4, 1999 use normal saline to do sinus flushes. If you have the little pink tubes, just squirt them right up her nose, then suck out the nose with one of those baby nose aspirators you can buy at the drugstore (hint, the ones that are actually for ears work better, with the long peice....that way you can go up farther in the nose) Anyway, you can do this as often as necessary without causing any problems (unless, of course you are way too forceful and such out a lung, just kidding...) You can but bronchosaline over the counter so that should not be a problem. Also, have you tried afrin? Our ent highly recomends its use at the onset of a cold, BUT ONLY FOR 3 DAYS TOTAL (its addictive) sorry to be so short and gross, but it really does work to flush out that nose..... Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 1999 Report Share Posted November 18, 1999 Janet, I think your message was beautiful. My son is still a baby, and I already try to teach him as well as our other two children that CF is like any other problem such as athsma is. We have also made therapies part of our routine and I think our kids are comfortable with themselves so far. You shed some light for me when you talked about socialization activities being for the parents. We have not yet encountered this problem, but I have thought about it often. You are right!!! Thanks for making me see a little part of our future looking brighter! You sound like a great mom, one to model. You should be very proud of your children and YOURSELF! Michele ( Mom of 3 one with cf) --- Weiner.Janet@... wrote: > From: Weiner.Janet@... > > > > From: RSBRT@...: " I understand the hesitancy of > not going to these types of > things but I also understand the > importance of the socialization (hey, we are not > alone) and yes fun too. > There are so many things that I keep and the > rest of our family from > that I feel I have to draw the line someplace, > however fine the line is. " > > I guess this is where I just don't get it. I have > two children with CF, ages > 2 1/2 and 5, and there is not a single thing that > they cannot do that normal > kids do... They are normal kids who have to do a > bunch of really annoying, > time-consuming treatments twice a day to stay > healthy... we go to the mall, to > parties, to the playground, to school, to the > supermarket, to Grandma's house, > etc, just like normal kids do. The only thing we > don't do is socialize with > other CF children because of the risk of cross > infection. As for the > socialization/ " we are not alone " thing, my husband > and I interact with other CF > parents at CFF fundraisers and thru the clinic. Who > is the party really for, > anyway? At this age, it's the parents who need to > know they're not alone, not > the children. Our children may have a need for that > kind of interaction once > they get older, but for now they haven't expressed > any need for it. > > Perhaps it's all in the way you present CF to your > children to begin with... I > know that one thing we have taken great pains to do > is to present all the > treatments, etc as a normal part of our family > routine. [Of course, for us, it > is normal since we don't have any non-CF children]. > Just like we always brush > our teeth, we always do nebulizers and the vest at > night. Just like mommy and > daddy need to wear contact lenses to see, and > Grandma takes blood pressure > pills, Matt and need to take enzymes to > digest their food. Mommy's eyes > don't work perfectly, Matt and 's pancreases > don't work perfectly. Mommy > has to get on the treadmill every day for an hour > because if she doesn't she > gets fat, Matt and have to do the vest for > 30 minutes because if they > don't mucus makes it hard for them to breathe. That > man in the mall using a > wheelchair, his legs don't work perfectly. Our > bodies are like machines and > sometimes the parts break down. I know this > approach has given our kids -- > particularly Matt, who is older -- a confidence > about himself that is so beyond > his years. He is not walking around with an " oh > poor me " attitude. I'm so > proud of my children! > > I am anticipating more thoughtful discussion on this > issue when my kids get > older, perhaps preteen age. Then peer pressure to > conform makes being different > more difficult. Of course, the one blessing of > having more than one CF child is > that they have someone in their own family who has > the disease so they don't > feel quite so alone and different as a child who > literally doesn't know a soul > in their shoes. > > Janet > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Hi, I'm Jean. Kids are Maggie, age 2 almost 3 (in May), with CF and Dakota, age 8, no CF but 2 years in remission from non-hodgkins lymphoma (as fate would have it, these are my natural born children!!) Maggie has been on Pulmozyme for 2 years. There are pro's and con's of this according to her peds pulmonigist (they gave me numerous medical journal articles discussing both sides, if interested I can forward the info). Talked once of taking her off, but has not mentioned it again. It is very EXPENSIVE!! appx $1500 for the 30 day supply (providing it is only once a day). Maggie just had a check up with the peditrician. She is 75% for weight and 70% for height!!! Yeah! At diagnosis (6 months old she weighed a mere 12 pounds) She has come up in the world. It's great meeting you. Been reading for a month or so. That's about all I have had time for. I'm a single mom and work FULL-TIME plus! Oh, by the way, we live in western North Carolina. Have (more of a concious choice) to drive 4 hours to University of North Carolina Hospital for CF clinic. We go again this week for Urology (long story) and Pulmonogy checkups. I look forward to talking again. Hope everyone has a wonderful week! Peace and Health, Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Dear Sally, You asked if others lets their older children care for the younger ones. Well, is a godsend with . The 8 years between them was never planned, but is truly wonderful. enjoys her antics as an adult does. And then my mother says that no one can entertain a kid like another kid, and boy is THAT a true statement!!! Anyway, bathes Sami, dresses her, brushes her teeth, entertains her, reads to her, pushes her stroller, wagon, etc,. when we go places, etc., etc. I always tell people that was the best present I ever gave . (mother of , almost 11 wcf, and , almost 3 nocf) ----- Original Message ----- > From: RSBRT@... > But I grew up with 8 siblings and we helped each > other and my Mom out a lot. But maybe I am asking too much. Does anyone > else let the siblings take care of the little ones? > > Sally > Mom of na, & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 Sally, I don't think you are asking too much. Because if they didn't want to spend the time with her, they wouldn't. They probably get as much joy out of the time spent with her as she does. Just think of all the wonderful memories they are creating together. helped feed, hold, and change for me. He was the best little mommy. And he even helped out with Clayton (2-1/2 years difference), that is until he walked in the kitchen and demanded I take his brother back where I got him and get him a new brother. He was quite upset that it didn't work that way. But he still loves his brother, and adores , and now 's father has a new baby daughter and can hardly wait to get to see her. She is a doll. Hey we had fun together in Florida with no kids. Lots of cuddle time. And we got adventurous too. We went flying in this go-cart looking thing with an engine and propeller and parachute, way up and up. Kinda scary but really cool. I never thought I would do something like that, but hey you only live once, may as well do some living while you're at it. Sending warm thoughts and wishes of good health to all. Daelynn Mandy, sorry to hear Seth isn't feeling well. Gosh. And Lori, please keep your flu bugs away from all. ahahha, hope all works out for you to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2000 Report Share Posted March 7, 2000 In a message dated 3/6/00 1:35:22 AM Eastern Standard Time, naelliott@... writes: > I always tell people that > was the best present I ever gave . > , what a beautiful thought. Thanks for putting it so nicely. Bri most of the time really enjoys doing things for and of course always asks for her " Banna " !! Sally Mom of na, & 6w/cf & ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 , weighed just about 15 pounds. He had been hospitalized with a stomach virus that wreaked havic on his little system. Of course, he lost weight and was in the hospital for 4 days. The gi guy finally relented. We were going to have it put in when he was 9 months old, but the surgeon called me at home and cancelled. He decided wasn't " skinny " enough. It was a slow go at first. He definitely didn't gain as quickly as they thought he should or wanted him to but the best part was that his immune system kicked in and he started to do things. Run, climb, talk and just be a person. Before that he was very fragile and ALWAYS sick. Strep infections, ear infections, you name it. He hasn't gained in about 6 months but he has grown a little taller. His growth has definitely slowed down now but they anticipated that it would. They anticipated catch up growth after gettting the tube and then it will stop and it has. He has just about doubled his weight in 2 years. I forget how tall he was but I can check if you want me to. We are now considering growth hormone, but very scared. The g-tube was the best thing we did for him. I have never regretted it, not even for a minute. It helped him TREMENDOUSLY! I can't say enough about it. (no subject) > From: Al72569@... > > Judy, > How much did weigh at 21 months when you got the gtube? > What made you decide to finally get it? Was he losing or just not gaining > fast > enough? How much on the average does he gain in a month? > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/0/_/229381/_/953335159/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 I also had a biopsy right after I started having hives 9 years ago...All it did was to make an ugly scar on my hand where he took the biopsy. Every once in a while I will get hives on my hands and fingers that will turn into blisters. My Dr. took the biopsy from one of the blisters. No evidence of anything other than what I already been told...I have chronic hives. Good Luck --- Phil wrote: > Urticaria > > > (no subject) > > > > Hi...I have had chronic urticaria for 2 months > now. I first went to a > > dermatologist and he put me on zyrtec,allegra. It > calmed down a little. I > had > > cervical fusion and the week after surgery I broke > out again. They told me > > there is nothing that can be done. I went to my > allergist. He told me that > it > > is not an allergy and that he thinks its an > autoimune disease. He added > > Zantac. I then went to my rheumatologist who told > me to get a biopsy from > the > > dermatologist. He has been out of town for a few > weeks and doesn't know > about > > the flair up. My rheumatologist told me it could > be urticarial vasculitis. > So > > I wait unitl I get a good and active hive with > fluid for a biopsy. I was > told > > that everything depends on the biopsy. If you have > any info on this it > would > > be a help. thank you. My name is Noreen. My e-mail > is nornova. > > > > > ______________________________________________________________________ > To unsubscribe, write to > urticaria-unsubscribe@... > ______________________________________________________________________ > Start Your Own FREE Email List at > http://www.listbot.com > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2000 Report Share Posted July 7, 2000 Dear Leanne, We will always be here for you. I am so sorry the tests made you hive so bad. I went to have the 1st. part of my crown done and lo and behold, I have been breaking out badly. I guess it was the m edicine he shot in my gum. Plus my sister called with some stressful information. So between the two, it seems like I am a strawberry. Hang in there we are pulling for you. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2000 Report Share Posted July 7, 2000 ------- Original Copy ------- >Subject: (no subject) >Date: 07/07/2000 1:05 PM >From: Jalaz5@... >To: Urticariaegroups >Reply-To: urticariaegroups Hi, Thanks everyone for responding to my questions, It's 4:00pm and I still feel like death I took 25mg of Benadryl at 9:40am, so could take some more right now, but I am sooooo tired I can barely function. My eye is swollen and my entire body feels like it also. It must be working slowly though because all the weal's have begun to connect together forming a huge mass of hives so I guess the fluid is spreading out and will hopefully subside when I go to bed tonight. I will take another Bendadryl when my husband gets home from work at 8:00pm until then I have 3kids to watch. I was the stupid one I guess to have that testing done in the first place, he was only doing it to " satisfy me, " but I've had such mild hives for about 3months now that I never in a million years figured this could happen. Thanks again to everyone who responded it really helped checking the messages once the DR. had come and gone and you guys were still there. nbsp; &n bsp; &nb sp; Leeann This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU - .. This is done out of respect for those who do not wish to read such postings. Leeann, I know how you feel. In 1992, after suffering from the Hives for two years, the doctors at the Allergy Clinic put me through Allergy Testing. There were times I had to be on a high dose of Prednisone before they could do the tests. I had go in for shots because of some pollen allergy, and I always had a reaction. I have many forms of Urticaria... heat induced, pressure, cold, and worst of all Exercise- induced which causes me to have Angioedema and Anaphylaxis. I've been to the Emergency room three times. Social Security now considers me disabled. I've taken pictures of my Hives. They have been HUGE, and often resemble continents on a fantastic world map. They were convinced that I did indeed have a condition which prevents me from living a normal life. I have been to a Dematologist, she was the one who suggested I had Cholinergic Urticaria. The Allery Clinic pooh-poohed the diagnosis. They've done blood tests and came up with a false positive for hepatitisC. I found out in 1999 that I did not have that. They've never done a skin biopsy. I really think that a lot of doctors don't really understand what life is like for those of us who suffer from ICU. Maybe we should try to educate doctors as to why ICU is to be taken seriously. I don't buy it when people tell me that the reason I have Hives is because I'm nervous or under stress. I believe that having the Hives causes stress, because of the inability to lead a normal life. Lucy Get 100% FREE Internet Access from Freei.Net. 100% FREE, 100% Anonymous, 100% Jam Packed with features. Check us out at http://www.freei.net. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Hi Therese: How do you function with all that medication. I just took the atatrax and I am sleepy. I take it for swelling and hives. Benedryl doesn't make me as sleepy but when I go to work its a little tough to stay up at the computer. When it wares off I try to drink coffee. It helps. all the antihistimines dont seem to do the trick for CU or swelling. Which is your best combination of drugs? Keep me posted how you are doing. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 Hi Sandy I think the more you take the Atarax your body gets use to it and it dont make you near as sleppy. How long have you been taking it? My hives have been alot better since he raised my atarax to four times a day with the benadryl also four times a day. I dont work but i try not to sleep during the day if i dont have too. I also take alot of other med. My cabinet looks like a drug store. It is alot of medicine but dont know what else to do. Therese in SC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2000 Report Share Posted July 30, 2000 Hi Sandy - I think there is a connection for me between my thyroid and my hives. If for no other reason than they are both autoimmune disorders. Also, if I don't take my thyroid med, the hives go away within 36 hours no matter how bad they are. Unfortunately, they come back, but this is the only thing I have found will influence them. (Also getting enough sleep and the low-sugar, anti-yeast diet may help). I was on synthroid for three years with no problems then the hives started gradually. I have tried other meds, I am currently on Cytomel and have had very light hives recently. We also just got me out of hypothryoid range after months of playing with different drugs so that may also be related. Why do you think yours are related? >From: FiveAlive76@... >Reply-To: urticariaegroups >To: urticariaegroups >Subject: Re: (no subject) >Date: Sun, 30 Jul 2000 23:03:53 EDT > >Hi Therese: > >I was just wondering if you are on thyroid medication. I am and i think it >may have something to do with the hives. Also my DR just increased the >dosage and i have been having more swelling than usual. I am going to call >him tomorrow and see if he can change the medication. Alot of people on >here >do take thyroid med. anything that can link to CU would be helpful. Let >me >know. >Thanks Sandy > > > >This list is in the service of those who suffer from Chronic Urticaria >(hives). We strive to support and lift each other as a worldwide >cyber-family. > >We share whatever needs to be shared to help one another in our struggle >with Chronic Urticria. > >Any posting that is off the main topic of Chronic Urticaria, we post with a >prefix of NCU -. This is done out of respect for those who do not wish to >read such postings. > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2000 Report Share Posted July 30, 2000 Hi Therese: I was just wondering if you are on thyroid medication. I am and i think it may have something to do with the hives. Also my DR just increased the dosage and i have been having more swelling than usual. I am going to call him tomorrow and see if he can change the medication. Alot of people on here do take thyroid med. anything that can link to CU would be helpful. Let me know. Thanks Sandy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.