Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Well I wish the news was good as some of you know I am an identical triplet, when I was dx I didn't know how to tell my brother's since my mother died of the same disease 3yrs. ago I figured they would not handle it so well so I waited , and I realized that I have to tell them for there own well being that they needed to get checked out as well. so I did and as I thought they didn't take the news so well aron he's the oldest of us (by 2-minutes) said he would make an appointment. cory (the youngest) has refused to get checked out aron called me as soon as he left the dr. asking when my next trip to U of M was because " I need to go too he said " aron's chest x-rays & ct.'s showed something was not right in his lungs (ground glass) his PFT showed a mild restriction. he made the appointment to see the same doc. as me I went with him this last monday and like I thought he looked at all the stuff and said well as you know your brother Brett, has vats. confirmed UIP and, your mother and grandmother passed away from the same thing. now I can't make a dx. based on what I see here but the chances of you having UIP is probably 80% given your family history and that the only way to know for sure is to do a biopsy aron doesn't know what he want's to do (do you want to know or don't you) as everyone knows there is no cure for UIP . but there is a 20% chance it could be NSIP. without a dx. he wouldn't be eligible for clinical trials but Im not sure he even want's to participate in those. so that's were he is at. cory doesn't know about aron yet, not sure if aron will tell him or not he's going to find out sooner or later, but it doesn't matter,, cory won't do anything about it witch I don't blame him we are vary close and whatever those two decide to do I will support that. even though were triplets ....... everyone is different Im sorry I kept all of you waiting for the news and I wish the news was better thanks' for listening and being here for me BRETT brett bowser brett@... Quote Link to comment Share on other sites More sharing options...
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