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My name is Harold. I am 76 years old. I have been diagnosed by two board-certified pulmonologists to have idiopathic pulmonary fibrosis. I take 20 mg ofPrednisone daily, plus take oxygen while sleeping and when exercising. I'd like to share this story with you.Last week I had a routine colonoscopy. While the anesthesiologist was preparing to put me to sleep, he asked me if I was ever short of breath. I told him about my IPF. He said to me, "Take four deep breath an hour." Then told me to take a deep breath and I was fast asleep. I awoke in the recovery room area. Usually you don't see the anesthesiologist after the procedure, but he happened to walk into the room. I jokingly said to him, "Boy, that was the best sleep I had in a long time." He said, Remember, take four deep breaths every hour." I said, "I thought you were kidding." He said, "No. I mean

it. When you watch TV, for example, your breathing is shallow. You need to breathe deeply. It's important for all areas of your body, as well as your cardiovascular system. Remember, four deep breaths every hour. You'll remember me."Well, I tried it. I really don't count the number of breaths precisely, but take them when I remember to or when I think I need to. The difference in the I feel is startling. I am no longer out of breath when climbing stairs, and my body feels energized. I thought I'd pass this on. Thanks for listening.

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Dawn, The Prednisone can be the cause of

your burning sensation!!!!

This great medication( sarcasim here) is the cause for my heart burn!

Talk to your GP ask him about this..I take Previcid daily with two

pepcid during the day as well.

Z fibriotic NSIP/05

Z

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

Potter,

reader,carousel lover and MomMom to

Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

Dawn Green wrote:

Thanks

for your input . And I’d agree

with your assessment of the bronchial spasms….just odd or annoying….not

painful (and possibly embarrassing…because you can’t control them,

any more than you could control a hiccup!)

The burning is there whenever I inhale and goes clear up to my

throat

and is extremely uncomfortable. However,

where I’m so newly diagnosed and am not on any meds yet (except 40 mg.

of

Pred.), this may be the reason and may

calm down once

another med is introduced. I appreciate

your feedback. :o)

Dawn in N.B.

-----Original

Message-----

From: Breathe-Support

[mailto:Breathe-Support ] On

Behalf Of

Sent: Tuesday,

February 05, 2008

5:13 AM

To:

Breathe-Support

Subject:

Re:

Deep Breathing

Yes Dawn, I get the

burning & the

involuntary spasms even though my IPF would be classed as 'mild' (no O2

yet

& my Diffusion rate is 49% Lung Volume 72%, O2 ranging from 91-97

based on

level of activity)....the burning is quite uncomfortable but it's

not present

all the time. I'd describe the spasms as 'odd' rather than paiful or

causing

great discomfort at this stage & they too dissappear & then

suddenly

come on again. They do seem to go hand in hand so I've wondered if they

are a

sign of 'Activity' in the disease process. The nasty pain under my back

shoulder blade is another interloper that joins with the first 2 to

remind me

that I do indeed have a nasty lurking in my lungs!

GIna in Oz

IPF:Fibrotic NSIP/UIP???

Reynauds'

May 2007

> >

> > My name is Harold. I am 76 years old I have been diagnosed by

two

> board-certified pulmonologists to have idiopathic pulmonary

fibrosis.

> I take 20 mg of

> > Prednisone daily, plus take oxygen while sleeping and when

exercising.

> > I'd like to share this story with you.

> >

> > Last week I had a routine colonoscopy. While the

anesthesiologist

> was preparing to put me to sleep, he asked me if I was ever short

of

> breath. I told him about my IPF. He said to me, "Take four deep

> breath an hour." Then told me to take a deep breath and I was fast

> asleep. I awoke in the recovery room area. Usually you don't see

the

> anesthesiologist after the procedure, but he happened to walk into

the

> room. I jokingly said to him, "Boy, that was the best sleep I had

in

> a long time." He said, Remember, take four deep breaths every

hour."

> I said, "I thought you were kidding." He said, "No. I mean

it.

> When you watch TV, for exampl, your breathing is shallow. You need

> to breathe deeply. It's important for all areas of your body, as

well

> as your cardiovascular system. Remember, four deep breaths every

> hour. You'll remember me."

> >

> > Well, I tried it. I really don't count the number of breaths

> precisely, but take them when I remember to or when I think I need

to.

> The difference in the I feel is startling. I am no longer out of

> breath when climbing stairs, and my body feels energized.

> >

> > I thought I'd pass this on. Thanks for listening.

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make Yahoo your homepage.

> >

>

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Harold,

I am behind in reading posts and just got to yours. I am trying it starting today. What an easy way to get more O2 in our bodies. Thank you for sharing. Sarcoid/PF 3/2006 California

Deep Breathing

My name is Harold. I am 76 years old. I have been diagnosed by two board-certified pulmonologists to have idiopathic pulmonary fibrosis. I take 20 mg ofPrednisone daily, plus take oxygen while sleeping and when exercising. I'd like to share this story with you.Last week I had a routine colonoscopy. While the anesthesiologist was preparing to put me to sleep, he asked me if I was ever short of breath. I told him about my IPF. He said to me, "Take four deep breath an hour." Then told me to take a deep breath and I was fast asleep. I awoke in the recovery room area. Usually you don't see the anesthesiologist after the procedure, but he happened to walk into the room. I jokingly said to him, "Boy, that was the best sleep I had in a long time." He said, Remember, take four deep breaths every hour." I said, "I thought you were kidding." He said,

"No. I mean it. When you watch TV, for example, your breathing is shallow. You need to breathe deeply. It's important for all areas of your body, as well as your cardiovascular system. Remember, four deep breaths every hour. You'll remember me."Well, I tried it. I really don't count the number of breaths precisely, but take them when I remember to or when I think I need to. The difference in the I feel is startling. I am no longer out of breath when climbing stairs, and my body feels energized. I thought I'd pass this on. Thanks for listening.

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