Re: Draft of comprehensive list of tests and treatments

[Guest guest]

Topical treatments others have had success with, to

add to your list:

7-week lidocaine/cotton ball program (saturate cotton

ball, place in affected area over night for 7 weeks)

topical compound of ketamine, amitriptyline and

Balcofen

anithistimine

Cysta Q (IC patients seem to respond to this)

--- femifesto wrote:

> Hi All--

>

> So here is a copy of the comprehensive list of

> treatments and tests to try that I've typed up

> per everyone's suggestions. Please respond with any

> final suggestions and I'll go ahead

> and upload it to our files!

>

> Love,

>

>

>

> Hi everyone. While it is certainly tragic (and even

> that is an understatement!) that we find

> ourselves in this condition, the fact is that many,

> many women have found relief--often by

> doing their own research and becoming their own

> health advocate. I thought it would be a

> good idea to compile a list of ideas to help us all

> start the detective work. This list is by no

> means complete, please feel free to update it. Also,

> below is a link to a similar, more

> descriptive list that I have found very helpful.

>

> http://www.vulvodynia.com/faq.htm

>

>

> TESTS/UNDERLYING CONDITIONS

>

> *Allergies (food, environmental, mold, candida,

> chemical etc.)

> *Yeast (resistant/less common strains,

> embedde/ " mucotaneous " yeast, chronic,

> intestinal/ " systemic " yeast). Contact Dr. Marjorie

> Crandall at www.yeastconsulting.com)

> *Lyme Disease (Use Igenex lab, www.igenex.com)

> *AIDS

> *Diabetes

> *Cytolitic Vaginosis

> *Strep Vaginitis

> *Hormonal imbalances

> *Autoimmune conditions

> *Periodic Hyperoxaluria (Standard tests not accurate

> for our condition, use test offered by

> the Vulvar Pain Foundation).

> *Thyroid problems (standard tests not always

> accurate)

> *Sexually transmitted infections

> *Cancer

> *VIN (? anyone know about this?)

> *Celiac disease (Test available from

> www.enterolab.com)

> *Lichen disorders

> *Pelvic floor disorders

> *Vaginal/genital varicose veins

> *Endometriosis

> *Excessive douching

> *E Coli vaginal infection

> *Fibromyalgia (Contact Fatigue and Fibromyalgia

> Centers, www.fibroandfatigue.com)

> *Nerve damage

> *Partner reinfecting with any of the above with

> intercourse

>

>

>

> TREATMENTS TO TRY/ACTIONS

> *Topical aids: calendula gel, vitamin E oil, emu

> oil, olive oil, coconut oil....

> *Anti-candida diet (lots of info available, start at

> www.yeastconnection.com)

> *Low-oxalate diet (contact the Vulvar Pain

> Foundation, only employ this diet with

> additional treatments recommended by the Foundation)

> *Physical therapy

> *Biofeedback

> *Various baths: Aveeno oatmeal, sitz etc.

> *Evening primrose oil/Essential Woman oil (supports

> hormonal system)

> *Relief spray

> *Rinsing after urinating

> *Topical estrogen

> *Testosterone cream

> *Acupuncture

> *Probiotics

> *NAET

> *Immunotherapy (allergy shots)

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

For Underlying Conditions, you left off birth control pill and

excessive use of pantyliners.

For Treatment, did you include drugs like Neurontin or Lyrica or any

of the number of anti-depressants that are listed on other sites?

Do these drugs not work?

>

> Hi All--

>

> So here is a copy of the comprehensive list of treatments and

tests to try that I've typed up

> per everyone's suggestions. Please respond with any final

suggestions and I'll go ahead

> and upload it to our files!

>

> Love,

>

>

>

> Hi everyone. While it is certainly tragic (and even that is an

understatement!) that we find

> ourselves in this condition, the fact is that many, many women

have found relief--often by

> doing their own research and becoming their own health advocate. I

thought it would be a

> good idea to compile a list of ideas to help us all start the

detective work. This list is by no

> means complete, please feel free to update it. Also, below is a

link to a similar, more

> descriptive list that I have found very helpful.

>

> http://www.vulvodynia.com/faq.htm

>

>

> TESTS/UNDERLYING CONDITIONS

>

> *Allergies (food, environmental, mold, candida, chemical etc.)

> *Yeast (resistant/less common strains, embedde/ " mucotaneous "

yeast, chronic,

> intestinal/ " systemic " yeast). Contact Dr. Marjorie Crandall at

www.yeastconsulting.com)

> *Lyme Disease (Use Igenex lab, www.igenex.com)

> *AIDS

> *Diabetes

> *Cytolitic Vaginosis

> *Strep Vaginitis

> *Hormonal imbalances

> *Autoimmune conditions

> *Periodic Hyperoxaluria (Standard tests not accurate for our

condition, use test offered by

> the Vulvar Pain Foundation).

> *Thyroid problems (standard tests not always accurate)

> *Sexually transmitted infections

> *Cancer

> *VIN (? anyone know about this?)

> *Celiac disease (Test available from www.enterolab.com)

> *Lichen disorders

> *Pelvic floor disorders

> *Vaginal/genital varicose veins

> *Endometriosis

> *Excessive douching

> *E Coli vaginal infection

> *Fibromyalgia (Contact Fatigue and Fibromyalgia Centers,

www.fibroandfatigue.com)

> *Nerve damage

> *Partner reinfecting with any of the above with intercourse

>

>

>

> TREATMENTS TO TRY/ACTIONS

> *Topical aids: calendula gel, vitamin E oil, emu oil, olive oil,

coconut oil....

> *Anti-candida diet (lots of info available, start at

www.yeastconnection.com)

> *Low-oxalate diet (contact the Vulvar Pain Foundation, only employ

this diet with

> additional treatments recommended by the Foundation)

> *Physical therapy

> *Biofeedback

> *Various baths: Aveeno oatmeal, sitz etc.

> *Evening primrose oil/Essential Woman oil (supports hormonal

system)

> *Relief spray

> *Rinsing after urinating

> *Topical estrogen

> *Testosterone cream

> *Acupuncture

> *Probiotics

> *NAET

> *Immunotherapy (allergy shots)

>

[Guest guest]

what about drug options...I know some ladies are being helped by them