update from -Jewish week of exam for transplant!!

[Guest guest]

Good morning all! Back from -Jewish in St. Louis, spent a week

there. Wonderful complex(HUGE), some of the nicest people I've ever

met. A busy week for sure,, day began around 5am and ended around

4:30 pm. Some tests or meetings were longer than expected, but that

never bothered the staff as they were ready when you arrived at the

next test or meeting. I did get my first ever nose bleed on Monday

that conti all week to the point, my wife called the EMT " S to the

hotel room, cause I'd filled the bed,floor and the waste can with

blood. They took me to the BJ ER and we spent from 5am till 8am

getting that stopped and stuffed with cotton so we could finished out

the week of tests and meetings. Bad part-My Dr. Yusem was called home

with sick kids, so the final and important meeting with the full

staff never occured! Hopeful that call will come soon. I did hear

thatr due to my height I may have a better chance of transplant as

there aren't many 6'4 1/2 " tall. we'll see! As soon as we arrived

home on Friday and my RN daughter was bringning in dinner the nose

bleed began, so the local ER DR couldn't get it stopped and called an

ENT DR, after five shots way up my nose then packing the nose &

airing it up, they admitted me overnite. One interesting item that

I'm sure never happens to anyone!!! HA!!!!! the night RN put an IV in

my arm, but it kept bleeding back, twice he tried then gave up. 1/2

hrs later the IV alarm went off, the RN returned, still didn't know

what to do, so I suggested he UNBLOCKED THE IV DRIP MAYBE? WORLDS OF

WONDER THINGS CAME BACK TO NORMAL!!!! Also just another funny they

some reason forgot to give me my med which I hadn't taken in 24 hours

for even breakfast, so my wife(GOD BLESS HER) brought my medas from

home and a great hot coffee. The RN on duty went ballist about the

meds from home, but only med shehad for me was a antibotic!!!! go

figure!!! So today they unpack my nose -hopefully the bleeding is

done and life will returnto normal if that is possible for US PF " S.

I strongly recommend -Jewish in St. Louis to all that need

their services-they are great!!!!! sorry for the long note!!!!!!!

george ks IPF-060-07-08 and still KIcking!!!!!!!!

[Guest guest]

Glad everything went well. Hope your nose is alright.

Keep us posted .

IPF 2/07 IL

--- george mathews wrote:

> Good morning all! Back from -Jewish in St.

> Louis, spent a week

> there. Wonderful complex(HUGE), some of the nicest

> people I've ever

> met. A busy week for sure,, day began around 5am and

> ended around

> 4:30 pm. Some tests or meetings were longer than

> expected, but that

> never bothered the staff as they were ready when you

> arrived at the

> next test or meeting. I did get my first ever nose

> bleed on Monday

> that conti all week to the point, my wife called the

> EMT " S to the

> hotel room, cause I'd filled the bed,floor and the

> waste can with

> blood. They took me to the BJ ER and we spent from

> 5am till 8am

> getting that stopped and stuffed with cotton so we

> could finished out

> the week of tests and meetings. Bad part-My Dr.

> Yusem was called home

> with sick kids, so the final and important meeting

> with the full

> staff never occured! Hopeful that call will come

> soon. I did hear

> thatr due to my height I may have a better chance of

> transplant as

> there aren't many 6'4 1/2 " tall. we'll see! As soon

> as we arrived

> home on Friday and my RN daughter was bringning in

> dinner the nose

> bleed began, so the local ER DR couldn't get it

> stopped and called an

> ENT DR, after five shots way up my nose then packing

> the nose &

> airing it up, they admitted me overnite. One

> interesting item that

> I'm sure never happens to anyone!!! HA!!!!! the

> night RN put an IV in

> my arm, but it kept bleeding back, twice he tried

> then gave up. 1/2

> hrs later the IV alarm went off, the RN returned,

> still didn't know

> what to do, so I suggested he UNBLOCKED THE IV DRIP

> MAYBE? WORLDS OF

> WONDER THINGS CAME BACK TO NORMAL!!!! Also just

> another funny they

> some reason forgot to give me my med which I hadn't

> taken in 24 hours

> for even breakfast, so my wife(GOD BLESS HER)

> brought my medas from

> home and a great hot coffee. The RN on duty went

> ballist about the

> meds from home, but only med shehad for me was a

> antibotic!!!! go

> figure!!! So today they unpack my nose -hopefully

> the bleeding is

> done and life will returnto normal if that is

> possible for US PF " S.

> I strongly recommend -Jewish in St. Louis to

> all that need

> their services-they are great!!!!! sorry for the

> long note!!!!!!!

> george ks IPF-060-07-08 and still KIcking!!!!!!!!

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

...well now you join the ranks of stressful hospital experiences! Geeze, I'm getting to the point where I dread going to a hospital.

Do take care. have the nose bleeds stopped now?

Keep on kickin'

Sher, 69, IPF 3-06, Sleep Apnea, OR.Don't fret about tomorrow, God is already there!

update from -Jewish week of exam for transplant!!

Good morning all! Back from -Jewish in St. Louis, spent a week there. Wonderful complex(HUGE), some of the nicest people I've ever met. A busy week for sure,, day began around 5am and ended around 4:30 pm. Some tests or meetings were longer than expected, but that never bothered the staff as they were ready when you arrived at the next test or meeting. I did get my first ever nose bleed on Monday that conti all week to the point, my wife called the EMT"S to the hotel room, cause I'd filled the bed,floor and the waste can with blood. They took me to the BJ ER and we spent from 5am till 8am getting that stopped and stuffed with cotton so we could finished out the week of tests and meetings. Bad part-My Dr. Yusem was called home with sick kids, so the final and important meeting with the full staff never occured! Hopeful that call will come soon. I did hear thatr due to my height I may have a better chance of transplant as there aren't many 6'4 1/2" tall. we'll see! As soon as we arrived home on Friday and my RN daughter was bringning in dinner the nose bleed began, so the local ER DR couldn't get it stopped and called an ENT DR, after five shots way up my nose then packing the nose & airing it up, they admitted me overnite. One interesting item that I'm sure never happens to anyone!!! HA!!!!! the night RN put an IV in my arm, but it kept bleeding back, twice he tried then gave up. 1/2 hrs later the IV alarm went off, the RN returned, still didn't know what to do, so I suggested he UNBLOCKED THE IV DRIP MAYBE? WORLDS OF WONDER THINGS CAME BACK TO NORMAL!!!! Also just another funny they some reason forgot to give me my med which I hadn't taken in 24 hours for even breakfast, so my wife(GOD BLESS HER) brought my medas from home and a great hot coffee. The RN on duty went ballist about the meds from home, but only med shehad for me was a antibotic!!!! go figure!!! So today they unpack my nose -hopefully the bleeding is done and life will returnto normal if that is possible for US PF"S. I strongly recommend -Jewish in St. Louis to all that need their services-they are great!!!!! sorry for the long note!!!!!!! george ks IPF-060-07-08 and still KIcking!!!!!!!!

[Guest guest]

,

I had Dr. Yusen when I was there, too. I really liked him. Did you have Wanda as your coordinator. I liked her a lot. It is impressive there. They are a well trained group of people. Ask for a copy of all your testing and letters. I had to ask a couple of times, but they finally sent a big packet.

I pray that your search for transplant will be successful. I am wondering why the nosebleeds????

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16

>> Good morning all! Back from -Jewish in St. Louis, spent a week > there. Wonderful complex(HUGE), some of the nicest people I've ever > met. A busy week for sure,, day began around 5am and ended around > 4:30 pm. Some tests or meetings were longer than expected, but that > never bothered the staff as they were ready when you arrived at the > next test or meeting. I did get my first ever nose bleed on Monday > that conti all week to the point, my wife called the EMT"S to the > hotel room, cause I'd filled the bed,floor and the waste can with > blood. They took me to the BJ ER and we spent from 5am till 8am > getting that stopped and stuffed with cotton so we could finished out > the week of tests and meetings. Bad part-My Dr. Yusem was called home > with sick kids, so the final and important meeting with the full > staff never occured! Hopeful that call will come soon. I did hear > thatr due to my height I may have a better chance of transplant as > there aren't many 6'4 1/2" tall. we'll see! As soon as we arrived > home on Friday and my RN daughter was bringning in dinner the nose > bleed began, so the local ER DR couldn't get it stopped and called an > ENT DR, after five shots way up my nose then packing the nose & > airing it up, they admitted me overnite. One interesting item that > I'm sure never happens to anyone!!! HA!!!!! the night RN put an IV in > my arm, but it kept bleeding back, twice he tried then gave up. 1/2 > hrs later the IV alarm went off, the RN returned, still didn't know > what to do, so I suggested he UNBLOCKED THE IV DRIP MAYBE? WORLDS OF > WONDER THINGS CAME BACK TO NORMAL!!!! Also just another funny they > some reason forgot to give me my med which I hadn't taken in 24 hours > for even breakfast, so my wife(GOD BLESS HER) brought my medas from > home and a great hot coffee. The RN on duty went ballist about the > meds from home, but only med shehad for me was a antibotic!!!! go > figure!!! So today they unpack my nose -hopefully the bleeding is > done and life will returnto normal if that is possible for US PF"S. > I strongly recommend -Jewish in St. Louis to all that need > their services-they are great!!!!! sorry for the long note!!!!!!! > george ks IPF-060-07-08 and still KIcking!!!!!!!!>

[Guest guest]

This is the first time I have posted. My name is er. I

live in Ashland, MIssouri and was diagnosed with IPF in June 2006.

Thank you for telling such good things about . That is

where the doctors from Columbia sent me. I have seen Dr. Tonya

at the lung center and now I am scheduled to go to the lung

transplant center March 17 for all of the testing to see about

possible transplant. When you were there which hotel did you stay

at? I should be receiving all the information from them soon. I

just had my phone interview yesterday. Well I'm at work and have a

lot to do so I better go.

er

IPF 06/07

> >

> > Good morning all! Back from -Jewish in St. Louis, spent a

week

> > there. Wonderful complex(HUGE), some of the nicest people I've

ever

> > met. A busy week for sure,, day began around 5am and ended around

> > 4:30 pm. Some tests or meetings were longer than expected, but

that

> > never bothered the staff as they were ready when you arrived at

the

> > next test or meeting. I did get my first ever nose bleed on Monday

> > that conti all week to the point, my wife called the EMT " S to the

> > hotel room, cause I'd filled the bed,floor and the waste can with

> > blood. They took me to the BJ ER and we spent from 5am till 8am

> > getting that stopped and stuffed with cotton so we could finished

out

> > the week of tests and meetings. Bad part-My Dr. Yusem was called

home

> > with sick kids, so the final and important meeting with the full

> > staff never occured! Hopeful that call will come soon. I did hear

> > thatr due to my height I may have a better chance of transplant as

> > there aren't many 6'4 1/2 " tall. we'll see! As soon as we arrived

> > home on Friday and my RN daughter was bringning in dinner the nose

> > bleed began, so the local ER DR couldn't get it stopped and

called an

> > ENT DR, after five shots way up my nose then packing the nose &

> > airing it up, they admitted me overnite. One interesting item that

> > I'm sure never happens to anyone!!! HA!!!!! the night RN put an

IV in

> > my arm, but it kept bleeding back, twice he tried then gave up.

1/2

> > hrs later the IV alarm went off, the RN returned, still didn't

know

> > what to do, so I suggested he UNBLOCKED THE IV DRIP MAYBE? WORLDS

OF

> > WONDER THINGS CAME BACK TO NORMAL!!!! Also just another funny they

> > some reason forgot to give me my med which I hadn't taken in 24

hours

> > for even breakfast, so my wife(GOD BLESS HER) brought my medas

from

> > home and a great hot coffee. The RN on duty went ballist about the

> > meds from home, but only med shehad for me was a antibotic!!!! go

> > figure!!! So today they unpack my nose -hopefully the bleeding is

> > done and life will returnto normal if that is possible for US

PF " S.

> > I strongly recommend -Jewish in St. Louis to all that need

> > their services-they are great!!!!! sorry for the long note!!!!!!!

> > george ks IPF-060-07-08 and still KIcking!!!!!!!!

> >

>

[Guest guest]

,

While I was there, we stayed at the Parkway Hotel which is attatched to the hospital by pedway. Very nice and has a nice big discount for patients at . Our insurance paid everything, even snacks. It is a wonderful lung center.

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16

> > >> > > Good morning all! Back from -Jewish in St. Louis, spent a > week> > > there. Wonderful complex(HUGE), some of the nicest people I've > ever> > > met. A busy week for sure,, day began around 5am and ended around> > > 4:30 pm. Some tests or meetings were longer than expected, but > that> > > never bothered the staff as they were ready when you arrived at > the> > > next test or meeting. I did get my first ever nose bleed on Monday> > > that conti all week to the point, my wife called the EMT"S to the> > > hotel room, cause I'd filled the bed,floor and the waste can with> > > blood. They took me to the BJ ER and we spent from 5am till 8am> > > getting that stopped and stuffed with cotton so we could finished > out> > > the week of tests and meetings. Bad part-My Dr. Yusem was called > home> > > with sick kids, so the final and important meeting with the full> > > staff never occured! Hopeful that call will come soon. I did hear> > > thatr due to my height I may have a better chance of transplant as> > > there aren't many 6'4 1/2" tall. we'll see! As soon as we arrived> > > home on Friday and my RN daughter was bringning in dinner the nose> > > bleed began, so the local ER DR couldn't get it stopped and > called an> > > ENT DR, after five shots way up my nose then packing the nose & > > > airing it up, they admitted me overnite. One interesting item that> > > I'm sure never happens to anyone!!! HA!!!!! the night RN put an > IV in> > > my arm, but it kept bleeding back, twice he tried then gave up. > 1/2> > > hrs later the IV alarm went off, the RN returned, still didn't > know> > > what to do, so I suggested he UNBLOCKED THE IV DRIP MAYBE? WORLDS > OF> > > WONDER THINGS CAME BACK TO NORMAL!!!! Also just another funny they> > > some reason forgot to give me my med which I hadn't taken in 24 > hours> > > for even breakfast, so my wife(GOD BLESS HER) brought my medas > from> > > home and a great hot coffee. The RN on duty went ballist about the> > > meds from home, but only med shehad for me was a antibotic!!!! go> > > figure!!! So today they unpack my nose -hopefully the bleeding is> > > done and life will returnto normal if that is possible for US > PF"S.> > > I strongly recommend -Jewish in St. Louis to all that need> > > their services-they are great!!!!! sorry for the long note!!!!!!!> > > george ks IPF-060-07-08 and still KIcking!!!!!!!!> > >> >>

[Guest guest]

> > > >

> > > > Good morning all! Back from -Jewish in St. Louis, spent

a

> > week

> > > > there. Wonderful complex(HUGE), some of the nicest people I've

> > ever

> > > > met. A busy week for sure,, day began around 5am and ended

around

> > > > 4:30 pm. Some tests or meetings were longer than expected, but

> > that

> > > > never bothered the staff as they were ready when you arrived

at

> > the

> > > > next test or meeting. I did get my first ever nose bleed on

Monday

> > > > that conti all week to the point, my wife called the EMT " S to

the

> > > > hotel room, cause I'd filled the bed,floor and the waste can

with

> > > > blood. They took me to the BJ ER and we spent from 5am till

8am

> > > > getting that stopped and stuffed with cotton so we could

finished

> > out

> > > > the week of tests and meetings. Bad part-My Dr. Yusem was

called

> > home

> > > > with sick kids, so the final and important meeting with the

full

> > > > staff never occured! Hopeful that call will come soon. I did

hear

> > > > thatr due to my height I may have a better chance of

transplant as

> > > > there aren't many 6'4 1/2 " tall. we'll see! As soon as we

arrived

> > > > home on Friday and my RN daughter was bringning in dinner the

nose

> > > > bleed began, so the local ER DR couldn't get it stopped and

> > called an

> > > > ENT DR, after five shots way up my nose then packing the nose

&

> > > > airing it up, they admitted me overnite. One interesting item

that

> > > > I'm sure never happens to anyone!!! HA!!!!! the night RN put

an

> > IV in

> > > > my arm, but it kept bleeding back, twice he tried then gave

up.

> > 1/2

> > > > hrs later the IV alarm went off, the RN returned, still didn't

> > know

> > > > what to do, so I suggested he UNBLOCKED THE IV DRIP MAYBE?

WORLDS

> > OF

> > > > WONDER THINGS CAME BACK TO NORMAL!!!! Also just another funny

they

> > > > some reason forgot to give me my med which I hadn't taken in

24

> > hours

> > > > for even breakfast, so my wife(GOD BLESS HER) brought my medas

> > from

> > > > home and a great hot coffee. The RN on duty went ballist

about the

> > > > meds from home, but only med shehad for me was a

antibotic!!!! go

> > > > figure!!! So today they unpack my nose -hopefully the

bleeding is

> > > > done and life will returnto normal if that is possible for US

> > PF " S.

> > > > I strongly recommend -Jewish in St. Louis to all that

need

> > > > their services-they are great!!!!! sorry for the long

note!!!!!!!

> > > > george ks IPF-060-07-08 and still KIcking!!!!!!!!

> > > >

> > >

> >

>