To VATS or NOT TO VATS, etc.

[Guest guest]

Hi!

Kerry's message was truly awesome. She is right about the messages on our board regarding subject matter, etc. coming back around again with new groups of people.

I just wanted to add one thing: If someone wishes to qualify for a transplant or to join a drug trial, then biopsy is required. Personally I was absolutely scared of having a lung biopsy. Absolutely! I avoided this subject from 1998 until 2003 when my pulmo dr insisted on it and which way did I want to have it? The day was a Tuesday, and I had it 3 days later. The longer I waited, I knew I would have backed out. So I had it quick and it was hard to get over. (for me). Prednisone really messed up my life during this time and the doctors would not let me quit taking it. Only after getting over the respiratory distress, have I remained prednisone-free.

Toodles to All!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

And if you are going to have one, better earlier while healthier.

>

>

> Hi!

>

> Kerry's message was truly awesome. She is right about the messages

on

> our board regarding subject matter, etc. coming back around again

with

> new groups of people.

>

> I just wanted to add one thing: If someone wishes to qualify for a

> transplant or to join a drug trial, then biopsy is required.

Personally

> I was absolutely scared of having a lung biopsy. Absolutely! I

avoided

> this subject from 1998 until 2003 when my pulmo dr insisted on it

and

> which way did I want to have it? The day was a Tuesday, and I had

it 3

> days later. The longer I waited, I knew I would have backed out.

So I

> had it quick and it was hard to get over. (for me). Prednisone

really

> messed up my life during this time and the doctors would not let me

quit

> taking it. Only after getting over the respiratory distress, have I

> remained prednisone-free.

>

> Toodles to All!

>

> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>

[Guest guest]

Judy did not have a biopsy and neither have I.

Kerry

>

>

> Hi!

>

> Kerry's message was truly awesome. She is right about the

messages on

> our board regarding subject matter, etc. coming back around again

with

> new groups of people.

>

> I just wanted to add one thing: If someone wishes to qualify for a

> transplant or to join a drug trial, then biopsy is required.

Personally

> I was absolutely scared of having a lung biopsy. Absolutely! I

avoided

> this subject from 1998 until 2003 when my pulmo dr insisted on it

and

> which way did I want to have it? The day was a Tuesday, and I had

it 3

> days later. The longer I waited, I knew I would have backed out.

So I

> had it quick and it was hard to get over. (for me). Prednisone

really

> messed up my life during this time and the doctors would not let

me quit

> taking it. Only after getting over the respiratory distress, have

I

> remained prednisone-free.

>

> Toodles to All!

>

> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>

[Guest guest]

Every center seems to have different rules. Thats like my

pulmonologist said some won't consider you for biopsy until you've

done prednisone and it failed to help. Thats one I hadn't heard of.

> >

> >

> > Hi!

> >

> > Kerry's message was truly awesome. She is right about the

> messages on

> > our board regarding subject matter, etc. coming back around

again

> with

> > new groups of people.

> >

> > I just wanted to add one thing: If someone wishes to qualify for

a

> > transplant or to join a drug trial, then biopsy is required.

> Personally

> > I was absolutely scared of having a lung biopsy. Absolutely! I

> avoided

> > this subject from 1998 until 2003 when my pulmo dr insisted on it

> and

> > which way did I want to have it? The day was a Tuesday, and I

had

> it 3

> > days later. The longer I waited, I knew I would have backed out.

> So I

> > had it quick and it was hard to get over. (for me). Prednisone

> really

> > messed up my life during this time and the doctors would not let

> me quit

> > taking it. Only after getting over the respiratory distress,

have

> I

> > remained prednisone-free.

> >

> > Toodles to All!

> >

> > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> >

>

[Guest guest]

The BAD thing about this is once you are on prednisone ya get so FAT then they say "lose the weight then come back"It's just a BAD joke. I did NOT find funny.  Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Every center seems to have different rules. Thats like my pulmonologist said some won't consider you for biopsy until you've done prednisone and it failed to help. Thats one I hadn't heard of.> >> > > > Hi!> > > > Kerry's message was truly awesome. She is right about the > messages on> > our board regarding subject matter, etc. coming back around again > with> > new groups of people.> > > > I just wanted to add one thing: If someone wishes to qualify for a> > transplant or to join a drug trial, then biopsy is required. > Personally> > I was absolutely scared of having a lung biopsy. Absolutely! I > avoided> > this subject from 1998 until 2003 when my pulmo dr insisted on it > and> > which way did I want to have it? The day was a Tuesday, and I had > it 3> > days later. The longer I waited, I knew I would have backed out. > So I> > had it quick and it was hard to get over. (for me). Prednisone > really> > messed up my life during this time and the doctors would not let > me quit> > taking it. Only after getting over the respiratory distress, have > I> > remained prednisone-free.> > > > Toodles to All!> > > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >>

[Guest guest]

Oh, that one really angers me...put you on prednisone....shock, you

gain weight. Oh, now you don't qualify. !%$!$%@^ & %.

If I went on prednisone I'd want daily appointments switching between

my mental health counselor and food and monitoring and exercise and

who knows what else. I become a wreck from just the thought.

> > >

> > >

> > > Hi!

> > >

> > > Kerry's message was truly awesome. She is right about the

> > messages on

> > > our board regarding subject matter, etc. coming back around

> again

> > with

> > > new groups of people.

> > >

> > > I just wanted to add one thing: If someone wishes to qualify

for

> a

> > > transplant or to join a drug trial, then biopsy is required.

> > Personally

> > > I was absolutely scared of having a lung biopsy. Absolutely! I

> > avoided

> > > this subject from 1998 until 2003 when my pulmo dr insisted on

it

> > and

> > > which way did I want to have it? The day was a Tuesday, and I

> had

> > it 3

> > > days later. The longer I waited, I knew I would have backed

out.

> > So I

> > > had it quick and it was hard to get over. (for me). Prednisone

> > really

> > > messed up my life during this time and the doctors would not

let

> > me quit

> > > taking it. Only after getting over the respiratory distress,

> have

> > I

> > > remained prednisone-free.

> > >

> > > Toodles to All!

> > >

> > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> > >

> >

>

[Guest guest]

Peggy,

It is kind of like when you see a Dr. or have pfts, etc. they always

say " take a DEEP breath and hold it " . Like if I could do that why

would I be there?

Hugs,

Kathie

> > >

> > >

> > > Hi!

> > >

> > > Kerry's message was truly awesome. She is right about the

> > messages on

> > > our board regarding subject matter, etc. coming back around

> again

> > with

> > > new groups of people.

> > >

> > > I just wanted to add one thing: If someone wishes to qualify

for

> a

> > > transplant or to join a drug trial, then biopsy is required.

> > Personally

> > > I was absolutely scared of having a lung biopsy. Absolutely! I

> > avoided

> > > this subject from 1998 until 2003 when my pulmo dr insisted on

it

> > and

> > > which way did I want to have it? The day was a Tuesday, and I

> had

> > it 3

> > > days later. The longer I waited, I knew I would have backed

out.

> > So I

> > > had it quick and it was hard to get over. (for me). Prednisone

> > really

> > > messed up my life during this time and the doctors would not

let

> > me quit

> > > taking it. Only after getting over the respiratory distress,

> have

> > I

> > > remained prednisone-free.

> > >

> > > Toodles to All!

> > >

> > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> > >

> >

>

[Guest guest]

Yes, I couldn't do the Lung Capacity parts of the PFT's on Friday as

I couldn't keep breathing in long enough for " the graph " . So, all I

got was the spirometer portions. They were bad enough. I didn't need

more numbers to reinforce its worsening.

> > > >

> > > >

> > > > Hi!

> > > >

> > > > Kerry's message was truly awesome. She is right about the

> > > messages on

> > > > our board regarding subject matter, etc. coming back around

> > again

> > > with

> > > > new groups of people.

> > > >

> > > > I just wanted to add one thing: If someone wishes to qualify

> for

> > a

> > > > transplant or to join a drug trial, then biopsy is required.

> > > Personally

> > > > I was absolutely scared of having a lung biopsy. Absolutely!

I

> > > avoided

> > > > this subject from 1998 until 2003 when my pulmo dr insisted

on

> it

> > > and

> > > > which way did I want to have it? The day was a Tuesday, and I

> > had

> > > it 3

> > > > days later. The longer I waited, I knew I would have backed

> out.

> > > So I

> > > > had it quick and it was hard to get over. (for me).

Prednisone

> > > really

> > > > messed up my life during this time and the doctors would not

> let

> > > me quit

> > > > taking it. Only after getting over the respiratory distress,

> > have

> > > I

> > > > remained prednisone-free.

> > > >

> > > > Toodles to All!

> > > >

> > > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> > > >

> > >

> >

>