Re: to Dilwala

February 11, 2008

I hope he is at 98 all the time, even under exertion. Will be glad to

eat crow. Still won't mean I don't consider checking osygen levels

under exertion a basic requirement for a patient.

I never suspected such a disease either, mainly because I didn't know

one existed. I only had three episodes that made me know something

strange was going on.

Beyond that you're so right in all choices being personal and when

doctors imply that any of those choices are idiotic or stupid I'm

quite disturbed. I see people here who have made totally opposite

choices on many things but I certainly don't say any have made poor

choices.

>

> Dilwala,

>

> I can document it and everything for Bruce, but doesn't like the

> taste of crow. Beth will pop by and get me and we'll be right

> there (that girl loves a road trip!). I just went to Hawaii in

June

> and it was wonderful. I'd have to think a while which island I

want

> to settle on.

>

> About your Vats... can't say what's right for you, but I always say

> you gotta go w/ your gut. Make your decision and your gut will

tell

> you what's right.

>

> You do sound a lot like me though and I just couldn't see getting

> laid up when I was functioning so well. I could've gone forever,

> for the next 70 years how I was when diagnosed. I said I was fine

> breathing 2 breaths for every one of a regular persons. I just

> wanted to focus on controlling the cough. Really, I still was

> playing ice hockey, coaching h.s. ice hockey, hiking, biking,

> running, walking, kayaking, canoeing, snorkeling, playing sand and

> indoor volleyball, taking care of one kid, then 2, traveling.

Since

> there is no absolute you could do the same. You could continue on

> doing all that you are doing and just track it w/ PFT's, CT and

> those type of non-invasive things. It doesn't sound like you are

> going to drop tomorrow and so I don't see rushing into a VATS w/ a

> doc that is treating you like you are a number rather than a real

> person. My doctor wanted to do a biopsy also, but he respected me

> enough to appreciate that it was not the right time for me. At the

> time I was bringing a brand new baby into the world and we could

> decide to do it later, but while I was still healthy and stable.

> Then I was just so high functioning and not needing O2 to do what I

> wanted to do. I couldn't do stairs and couldn't do an aerobics

> class, but I could do the things I wanted to do. I even could do

> hockey because it was a shift sport and not sustained aerobic

> activity. I could do all those things I listed just maybe at a

> different pace (just to name one trip... Yosemite and Sequoia in

> 2002) and w/ resting (I never really liked running anyway). I

think

> your first course of action is to get a doctor who will give you

> more than 20 minutes and treat you with respect and as an

individual

> and not talk in absolutes, and dismiss anything but textbook or

> traditional practices. Many in the field have had to do just what

I

> said and admit the absolutes or traditional practices of giving

> prednisone automatically to everyone was not the best practice.

>

> Sorry to be so wordy, I got on a role. Time to sign off and get

> started on 1st grade homework.

>

> Kerry

> IPF '01

> S. IN

>

February 11, 2008

Kerry,

I'll honk when I get to your house!!!

I do love a road trip!! (though Hawaii is not really a road trip unless you're driving Chitty Chitty Bang Bang!)

Beth in NC age 48 Fibrotic NSIP 06/06

"For as long as I shall live, I will testify to Love."

to Dilwala

Dilwala,I can document it and everything for Bruce, but doesn't like the taste of crow. Beth will pop by and get me and we'll be right there (that girl loves a road trip!). I just went to Hawaii in June and it was wonderful. I'd have to think a while which island I want to settle on. About your Vats... can't say what's right for you, but I always say you gotta go w/ your gut. Make your decision and your gut will tell you what's right. You do sound a lot like me though and I just couldn't see getting laid up when I was functioning so well. I could've gone forever, for the next 70 years how I was when diagnosed. I said I was fine breathing 2 breaths for every one of a regular persons. I just wanted to focus on controlling the cough. Really, I still was playing ice hockey, coaching h.s. ice hockey, hiking, biking, running, walking, kayaking, canoeing, snorkeling, playing sand and

indoor volleyball, taking care of one kid, then 2, traveling. Since there is no absolute you could do the same. You could continue on doing all that you are doing and just track it w/ PFT's, CT and those type of non-invasive things. It doesn't sound like you are going to drop tomorrow and so I don't see rushing into a VATS w/ a doc that is treating you like you are a number rather than a real person. My doctor wanted to do a biopsy also, but he respected me enough to appreciate that it was not the right time for me. At the time I was bringing a brand new baby into the world and we could decide to do it later, but while I was still healthy and stable. Then I was just so high functioning and not needing O2 to do what I wanted to do. I couldn't do stairs and couldn't do an aerobics class, but I could do the things I wanted to do. I even could do hockey because it was a shift sport and not sustained

aerobic activity. I could do all those things I listed just maybe at a different pace (just to name one trip... Yosemite and Sequoia in 2002) and w/ resting (I never really liked running anyway). I think your first course of action is to get a doctor who will give you more than 20 minutes and treat you with respect and as an individual and not talk in absolutes, and dismiss anything but textbook or traditional practices. Many in the field have had to do just what I said and admit the absolutes or traditional practices of giving prednisone automatically to everyone was not the best practice. Sorry to be so wordy, I got on a role. Time to sign off and get started on 1st grade homework.KerryIPF '01S. IN

February 11, 2008

MB, Don't forget to swing by and pick me up.

Love and Prayers, Peggy

ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

Kerry,

I'll honk when I get to your house!!!

I do love a road trip!! (though Hawaii is not really a road trip

unless you're driving Chitty Chitty Bang Bang!)

Beth in NC age 48 Fibrotic NSIP 06/06

" For as long as I shall live, I will testify to Love. "

to Dilwala

Dilwala,

I can document it and everything for Bruce, but doesn't like the

taste of crow. Beth will pop by and get me and we'll be right

there (that girl loves a road trip!). I just went to Hawaii in June

and it was wonderful. I'd have to think a while which island I want

to settle on.

About your Vats... can't say what's right for you, but I always say

you gotta go w/ your gut. Make your decision and your gut will tell

you what's right.

You do sound a lot like me though and I just couldn't see getting

laid up when I was functioning so well. I could've gone forever,

for the next 70 years how I was when diagnosed. I said I was fine

breathing 2 breaths for every one of a regular persons. I just

wanted to focus on controlling the cough. Really, I still was

playing ice hockey, coaching h.s. ice hockey, hiking, biking,

running, walking, kayaking, canoeing, snorkeling, playing sand and

indoor volleyball, taking care of one kid, then 2, traveling. Since

there is no absolute you could do the same. You could continue on

doing all that you are doing and just track it w/ PFT's, CT and

those type of non-invasive things. It doesn't sound like you are

going to drop tomorrow and so I don't see rushing into a VATS w/ a

doc that is treating you like you are a number rather than a real

person. My doctor wanted to do a biopsy also, but he respected me

enough to appreciate that it was not the right time for me. At the

time I was bringing a brand new baby into the world and we could

decide to do it later, but while I was still healthy and stable.

Then I was just so high functioning and not needing O2 to do what I

wanted to do. I couldn't do stairs and couldn't do an aerobics

class, but I could do the things I wanted to do. I even could do

hockey because it was a shift sport and not sustained aerobic

activity. I could do all those things I listed just maybe at a

different pace (just to name one trip... Yosemite and Sequoia in

2002) and w/ resting (I never really liked running anyway). I think

your first course of action is to get a doctor who will give you

more than 20 minutes and treat you with respect and as an individual

and not talk in absolutes, and dismiss anything but textbook or

traditional practices. Many in the field have had to do just what I

said and admit the absolutes or traditional practices of giving

prednisone automatically to everyone was not the best practice.

Sorry to be so wordy, I got on a role. Time to sign off and get

started on 1st grade homework.

Kerry

IPF '01

S. IN

February 11, 2008

Oh don't worry dear, I'm coming for you first!! We'll get Kerry and go visit Joyce!!!

Beth in NC age 48 Fibrotic NSIP 06/06

"For as long as I shall live, I will testify to Love."

to

DilwalaDilwala,I can document it and everything for Bruce, but doesn't like thetaste of crow. Beth will pop by and get me and we'll be rightthere (that girl loves a road trip!). I just went to Hawaii in Juneand it was wonderful. I'd have to think a while which island I wantto settle on.About your Vats... can't say what's right for you, but I always sayyou gotta go w/ your gut. Make your decision and your gut will tellyou what's right.You do sound a lot like me though and I just couldn't see gettinglaid up when I was functioning so well. I could've gone forever,for the next 70 years how I was when diagnosed. I said I was finebreathing 2 breaths for every one of a regular persons. I justwanted to focus on controlling the cough. Really, I still wasplaying ice hockey, coaching h.s. ice hockey, hiking, biking,running, walking, kayaking, canoeing, snorkeling, playing sand

andindoor volleyball, taking care of one kid, then 2, traveling. Sincethere is no absolute you could do the same. You could continue ondoing all that you are doing and just track it w/ PFT's, CT andthose type of non-invasive things. It doesn't sound like you aregoing to drop tomorrow and so I don't see rushing into a VATS w/ adoc that is treating you like you are a number rather than a realperson. My doctor wanted to do a biopsy also, but he respected meenough to appreciate that it was not the right time for me. At thetime I was bringing a brand new baby into the world and we coulddecide to do it later, but while I was still healthy and stable.Then I was just so high functioning and not needing O2 to do what Iwanted to do. I couldn't do stairs and couldn't do an aerobicsclass, but I could do the things I wanted to do. I even could dohockey because it was a shift sport and not sustained

aerobicactivity. I could do all those things I listed just maybe at adifferent pace (just to name one trip... Yosemite and Sequoia in2002) and w/ resting (I never really liked running anyway). I thinkyour first course of action is to get a doctor who will give youmore than 20 minutes and treat you with respect and as an individualand not talk in absolutes, and dismiss anything but textbook ortraditional practices. Many in the field have had to do just what Isaid and admit the absolutes or traditional practices of givingprednisone automatically to everyone was not the best practice.Sorry to be so wordy, I got on a role. Time to sign off and getstarted on 1st grade homework.KerryIPF '01S. IN

February 11, 2008

I do hope the amounts necessary to clear the deeds are not a problem

for Dilwala. While still working on the other islands for Hawaii he

should have no problem paying off their $6 billion debt not putting

in escrow $11 billion to cover their first years operating costs. I'm

sure Dilwala will have easily be able to come up with those amounts

and then can get his deed free and clear.

I would hate for him to end up like the family that won the house in

Tyler, TX but then couldn't afford the monthly expenses so had to

give it up. It started with just borrowing the money to pay the

income taxes on the winnings and continued with the property taxes,

upkeep, and everything else. So Dream Home didn't work out as dreamy

as hoped.

>

> Kerry,

> I'll honk when I get to your house!!!

>

> I do love a road trip!! (though Hawaii is not really a road trip

> unless you're driving Chitty Chitty Bang Bang!)

>

> Beth in NC age 48 Fibrotic NSIP 06/06

>

> " For as long as I shall live, I will testify to Love. "

>

> to Dilwala

>

> Dilwala,

>

> I can document it and everything for Bruce, but doesn't like the

> taste of crow. Beth will pop by and get me and we'll be right

> there (that girl loves a road trip!). I just went to Hawaii in June

> and it was wonderful. I'd have to think a while which island I want

> to settle on.

>

> About your Vats... can't say what's right for you, but I always say

> you gotta go w/ your gut. Make your decision and your gut will tell

> you what's right.

>

> You do sound a lot like me though and I just couldn't see getting

> laid up when I was functioning so well. I could've gone forever,

> for the next 70 years how I was when diagnosed. I said I was fine

> breathing 2 breaths for every one of a regular persons. I just

> wanted to focus on controlling the cough. Really, I still was

> playing ice hockey, coaching h.s. ice hockey, hiking, biking,

> running, walking, kayaking, canoeing, snorkeling, playing sand and

> indoor volleyball, taking care of one kid, then 2, traveling. Since